Excellent news! Now let's make sure these funds reach #MECFS research. This disease has one of the lowest quality-of-life scores of any illness. It's been starved of funding for decades. Let's stop the suffering. #millionsmissing @EmergeAus #MEAwarenessDay

9 News: The 'archaic' rule forcing Australians with a disability to choose between 'love and survival For Brothers, who lives with Myalgic Encephalomyelitis..POTS..moving into a shared home would mean the immediate loss of her Disability Support Pension 9news.com.au/national/the-ar…

Please sign

Please sign petition in article. The Australian welfare system ties disability support to a partner’s income, leaving many trapped in abusive relationships or struggling to survive. People with disabilities deserve dignity, safety, and independence. c.org/tS9P6j5VMR

This is so important to point out! #mecfs is one of the worst and most debilitating diseases you can get - more common than anybody thinks - yet no funding for research and thus no cure.

As usual, @julierehmeyer manages to capture things so beautifully here as she reflects on the loss of her dear friend with #MECFS. The feelings and thoughts so perfectly expressed in this piece by Julie are familiar to so many in the community: so many nytimes.com/2026/04/03/style… 1/

New Cell paper from the team that discovered glymphatic clearance (how your brain removes waste during sleep). Sleep hours DIDN'T predict brain cleaning. Neither did REM or deep sleep. They found what actually matters - and why some sleeping pills might undermine it 🧵

And the winner of FameLab Australia 2025 is ... Tammy Lee! 🎉 👏 🏆 Tammy Lee, an embryologist representing @uwanews, is the winner of the FameLab Australia 2025 science communication competition. Kenya Fernandez, a microbiologist from the @Sydney_Uni, and Caitlin Dudley, a plant scientist representing Queensland Alliance for Agriculture and Food Innovation (QAAFI), were named runners-up. Congratulations to all finalists, who showcased their science communication skills and delivered outstanding talks! A big thank you to all FameLab partners for their support throughout the year: the @wamuseum, @cheltfestivals, @commitaus, Community Broadcasting Foundation, @CurtinUni, @ForrestResearch, @MurdochUni, @WaInspiring, the Wellspring Group & Foundation and @uwanews. Find out more 👉link in bio.

Reminder - FameLab Australian Finals livestream tonight 12 amazing early career researchers who have 3 mins to tell us about their science! From 6pm WST // 8pm AEST #FameLab #FameLabAus #STEM @foundation_wam @em_sci perthvideo.net/famelab-2025?…

What a blast! A totally epic night @em_sci

Reminder - FameLab Australian Finals livestream tonight From 6pm WST // 8pm AEST #FameLab #FameLabAus perthvideo.net/famelab-2025?…

12 researchers. 12 cutting-edge projects. Just 3 minutes each. It's science explained like never before! 🎟 FameLab Australia Final: tickets on sale now! 📅 18 Sep 2025, WA Museum Boola Bardip visit.museum.wa.gov.au/boola…

Lives We Cannot Live is a 3-year project photographing people with #MECFS an incurable & debilitating illness. #LivesWeCannotLive #PwME #millionsmissing Info on exhibition and book tinyurl.com/58khuv8z

I have a 1hr mini communication session coming up on 24 September (online). ⭐️Presenting with punch: from ramble to remarkable⭐️ More info or book here - atem.org.au/events/event/pre… Or if you’d like a private session - get in touch via here or via my business @commitAUS

None of my #LongCOVID presentation at Keystone was confidential. In fact there was a point in my presentation where I literally urged listeners to share widely and break the conference photography rules. My team’s science is intended to be shared and communicated widely.

♥️ big news and hope

♥️ big news - and hope abc.net.au/listen/programs/n…

will lead pharmaceutical industries to develop new treatments and new drugs that will help this community that has really been unseen, unheard and totally ignored for 30, 40 years. 3/

Anne: Today’s research findings however do give those people who have been invalidated for years and years, ignored for years and years, gaslit, made to believe that they’ve got a psychological condition, today and overnight we have received findings that finally validate that 1/

♥️ big news abc.net.au/listen/programs/n…