Thank you @ArcturusRx for being part of our team! Our friends at Arcturus assembled 80 Hospital Bags for The Bonnell Foundation and delivered them to 8 hospitals in support of our program. The CF Community is a close one. We all support one another. #CFStrong #cfcommunity @LauraTbonnell Photo credit: Arcturus.

Big news from The Bonnell Foundation!  Since launching our Hospital Bag Program in March 2024, we’ve surpassed all expectations, shipping 500 beautifully curated bags to cystic fibrosis (CF) clinics across the country. So far, our bags have reached families and patients in: Michigan, Minnesota, California, Kentucky, Texas, Arizona, Pennsylvania, South Carolina, Alaska, Massachusetts, New York, Nebraska, Florida, Louisiana, Vermont, Kansas, Illinois, and Connecticut. These comfort bags bring care and hope to parents whose children are hospitalized and to adults with CF spending time in the hospital. Included in the bags are coffee mugs, gift cards, phone chargers, journals, stationery, dry hair shampoo, toothbrushes, and toothpaste (and more). If you’re a social worker, we’d love to hear from you. Email The Bonnell Foundation to request Hospital Bags for your CF patients. A huge thanks to our generous sponsor @ViatrisInc for making this possible!!! #CysticFibrosis #CFCommunity #HospitalBagProgram #TheBonnellFoundation #CFStrong #RareDisease #Gratitude #Viatris #CFSupport

Resilience & Hope: two words to describe Jennifer McKinnon's story. Doctors said Jennifer wouldn’t live past the age of three. Today, she’s a single mom of twins, an advocate who’s raised over a million dollars for CF research, and the founder of Just One More Breath. Her story is proof that while CF is tough, it can be done. Learn more about @LauraTbonnell and Jennifer's conversation, by tuning in on Monday, November 10th on @Spotify, @YouTube, or wherever you get your podcasts! Sponsors: @VertexPharma and @ViatrisInc #ResilienceAndHope #CysticFibrosisAwareness #JustOneMoreBreath #CFStrong #DefyingTheOdds #InspirationInAction #TheBonnellFoundation

Celebrate Affordable Access: bit.ly/4qGrBqz A new FDA approval is making treatment more affordable for people with cystic fibrosis. #CysticFibrosisNews #CFCommunity #Tobramycin #CFResearch #CysticFibrosis #CFWarrior #CFStrong #Bionews #RareDiseaseCommunity

What a night! The Harvest of Hope Gala was bursting with energy, love, and sparkle. Our Diamonds and Denim theme brought out incredible fashion and even more incredible hearts. You can watch the live podcast on Monday, October 27th. Huge thanks to our co-chair, Heather Trammell. Heather is not only a CF mom but also a source of wisdom and support in our community. She did an amazing job organizing the Gala and has already committed to leading again in 2026. Heather and her husband Chris (who, fun fact, is now best friends with Joe Bonnell) bring so much heart to our mission. We were also grateful to have Tara Fahrner with us. Tara is a CF mom to 2½-year-old Beau, who was diagnosed at birth through newborn screening. Tara describes the diagnosis as a shock, but she’s thankful for the strong CF community that has surrounded her family. She and Heather both serve on the Quality Improvement Team at the University of Michigan as well as our Advisory Board. And a big shout-out to Dave Ingraham, who traveled three hours from Lake City, Michigan, to be at the Gala. Dave’s truck is wrapped with The Bonnell Foundation logo and QR code, and he drives it in parades to spread awareness. He’s fully embraced his granddaughter Briar Lynn’s journey with CF, supporting both her and his daughter, a single mom. His dedication is inspiring. Host: @LauraTbonnell Sponsors: @ViatrisInc and @VertexPharma Watch on @Spotify and @YouTube #HarvestOfHopeGala #CysticFibrosisCommunity #ShiningForCF #HopeAndResilience #TogetherForACure #BonnellFoundation #CFStrong #FamilyOfHope #CelebrateHope

Last week, #BEFAthlete Victoria Rapley celebrated her soccer senior day at SUNY Cobleskill! ⚽ To top it off, Victoria (#7) scored the 7th goal of the game! Go Victoria! 👏 #BoomerEsiasonFoundation #CysticFibrosisAwareness #BEFAthlete #CFStrong #Collegesoccer

NUTRITION & BODY POSITIVITY 💙 Your nutrition needs will shift through every phase of your CF journey — and that’s okay. ➡️ Gene modulator therapy may boost appetite or lead to weight gain. That doesn’t mean you’re doing anything wrong — it means your metabolism and nutrient needs are changing. Focus on balanced meals, gentle movement, and enough fiber to support digestion. ➡️ Infertility treatments (like IVF) can cause water retention, bloating, and cravings. Fueling your body with complex carbs, healthy fats, and anti-inflammatory foods like berries, leafy greens, and fatty fish can support hormone balance. ➡️ Post-transplant? Your body is rebuilding. Medications may affect your blood sugar, appetite, and weight. Small, frequent meals rich in protein, antioxidants, and hydration are key. And yes, your body may look different now — that’s part of healing. ➡️ Gaining weight for the first time after struggling to keep it on? Or worried about sudden weight changes? It’s normal to feel conflicted. Instead of chasing a number, aim for a way of eating that supports your energy, digestion, and mental clarity. Nutrition is not about control — it’s about support. Your body is your partner, not your project. 🫶🏻❤️‍🩹 #BEFEatWell #CysticFibrosis #NutritionSupport #BodyPositivity #CFStrong #InfertilityNutrition #PostTransplantNutrition #GeneModulatorJourney #HealthyAtEverySize #CFNutrition

Team Boomer is on the move! 🏅 Join us across the globe as we run, raise awareness, and fight for a future without cystic fibrosis. Whether you're lacing up for your first marathon or cheering from the sidelines, there’s a place for you on Team Boomer. 🗓️ Upcoming Marathons – 2025 • Sept 21 – BMW Berlin Marathon 🇩🇪 • Oct 12 – Bank of America Chicago Marathon 🏙️ • Nov 2 – TCS NYC Marathon 🗽 Sign up now for 2026! 💙 Every step supports CF warriors everywhere. 👉 Ready to get involved? Visit esiason.org to sign up or learn more! #TeamBoomer #CysticFibrosisAwareness #RunForACause #BoomerEsiasonFoundation #CFStrong #MarathonSeason

From NY Social Worker: "Katie, an Amish woman w/ CF, couldn’t access grants online. We applied on her behalf and thanks to the Bonnell Foundation, she now has the oxygen support she needs to keep farming." Community. Compassion. Access. #CF #BonnellFound #HealthEquity #CFstrong

youtu.be/yGoJnBZGfVg Thanks to modern medicine, today’s child with cystic fibrosis can lead a normal life. With breakthrough treatments and early care, kids with CF are growing up healthier, stronger, and reaching for their dreams just like anyone else. #CysticFibrosis #CFStrong #MedicalAdvances For more in‑depth info and resources, you can visit Boston Children’s CF web page—they offer detailed guides, treatment protocols, and family support programs: childrenshospital.org/

Cystic Fibrosis, Infertility & the Power of Pineapple 🍍✨ Cystic Fibrosis (CF) impacts many aspects of health, including digestion, nutrient absorption, and even fertility. While medical advancements have opened new doors for those with CF looking to build a family, infertility remains a challenge for many. That’s where the pineapple comes in—both as a symbol of infertility awareness and a nutrient-packed fruit with real health benefits. Pineapple contains bromelain, an enzyme known for its anti-inflammatory properties, which may support digestion (a common concern in CF) and overall wellness. It’s also rich in vitamin C, manganese, and fiber, making it a great addition to a balanced diet. For those navigating CF, infertility, or both, the journey can feel isolating—but you’re not alone. Whether it’s through medical advancements, nutrition, or community, there’s hope and support along the way. Tag someone who needs a little pineapple power today! 🍍 #CysticFibrosis #InfertilityAwareness #PineapplePower #BromelainBenefits #CFStrong

So many great discussion ⁦@ECFSConference⁩ conference! The most recent on registries and their importance was very interesting. #CF #Milan getting to see and mingle with so many amazing people!! #CFstrong

May is Cystic Fibrosis Awareness Month — a time to raise awareness and stand with those affected. From expanded access to treatments like Trikafta to stories of resilience in our own community, we’re making real progress. Let’s keep pushing for a future without CF. 💙#CFAwarenessMonth #Trikafta #NewmarketAurora #CFStrong #HopeForACure4o

That’s a wrap on Breathe Week 2025! 💪💨 From coast to coast, you showed up—running, biking, sharing your stories, and helping us #FightCFAnywhere. Together, we pushed limits, raised awareness, and moved for a cure. 💙 To every participant, donor, and supporter: THANK YOU. You remind us that the CF community is strong, unstoppable, and united. #BreatheWeek #FightCFAnywhere #TeamBoomer #CFAwarenessMonth #CFStrong #BoomerEsiasonFoundation

5BBT 2025 – That’s a Wrap! 🚴‍♂️💨 What. A. Ride. Team Boomer showed up and crushed the TD Five Boro Bike Tour. From the early morning start to the last borough crossed, our athletes pedaled for something bigger than the miles: a future without cystic fibrosis. 💙 Huge thanks to every rider, donor, cheerleader, and teammate who made this weekend unforgettable. You helped raise funds and awareness, and we couldn't be more proud of this community. #5BBT #TeamBoomer #BoomerEsiasonFoundation #CFStrong #CFAwarenessMonth #FightCFAnywhere #EndCF #RideWithPurpose

This Breathe Week we are focusing on the importance of exercise. For people living with cystic fibrosis, exercise isn't just a healthy habit—it’s a part of care. CF affects the lungs and digestive system, causing thick mucus to build up and making it harder to breathe and absorb nutrients. That’s where physical activity makes a real difference. Consistent movement can help: 💨 Clear mucus from the lungs 💪 Strengthen respiratory muscles ❤️ Boost cardiovascular health 🍎 Support digestion and energy 🧠 Improve mental health and focus And it’s not just about the science—exercise gives people with CF a way to stay strong, feel in control, and connect with their community. At the Boomer Esiason Foundation, we've seen how our Team Boomer athletes use sports and movement to show what’s possible. From training rides to everyday workouts, they're proving that living with CF doesn't mean standing still. This CF Awareness Month, we're shining a light on the role of exercise in the lives of those with CF. Whatever movement looks like for you—it matters. #CFAwarenessMonth #BoomerEsiasonFoundation #TeamBoomer #CysticFibrosisAwareness #ExerciseForCF #CFStrong #FightCFAnywhere #MovementMatters #AthletesWithCF

Today marks the start of CF Awareness Month — a time to come together, educate, and take action. What is CF? 🧬 Cystic fibrosis (CF) is a genetic, progressive disease that primarily affects the lungs and digestive system. It causes thick, sticky mucus to build up, leading to serious lung infections, breathing challenges, and difficulty absorbing nutrients. There’s no cure — yet. But thanks to groundbreaking research, a strong community, and ongoing advocacy, there is a future of hope and possibilities. At the Boomer Esiason Foundation, we’re committed to raising awareness, funding progress, and standing with everyone affected by CF. 💙 Learn more and join us: esiason.org #CFAwarenessMonth #WhatIsCF #BoomerEsiasonFoundation #FightCFAnywhere #CFStrong #EndCF #CysticFibrosisAwareness

My heart. It’s here in Egypt with these beautiful CF families. My second family/home.Thx ⁦@NasrSamya⁩ Dr. Nasr changing the world for the better and getting families the meds they need. Much more to do. More details to come about this trip. #CF #inthistogether #cfstrong

Today’s podcast will inspire caregivers and have you bursting with hope! Why? Podcast host Laura Bonnell and guest @BobCoughlin (his son has CF) talk about advancements in treatment, a cure on the way, and the importance of advocacy. Bobs energy is infectious! #CFSTRONG #CFpower

We tried. The RDAC is dead. We will try again. Thanks to everyone who gave their voice to get try and get this passed. We will get it done in 2025. #CFstrong #rarestrong @RareDiseases @michbio @JasonMorganMI