ERN GENTURIS - A Tribute to Those Diagnosed with a Brain Tumour and to Their Families oncodaily.com/blog/brain-tum… #OncoDaily #Oncology #Cancer #Health #Medicine #MedTwitter #MedEd #MedOnc #MedNews #ERN #EuropeanReferenceNetwork #BrainTumour @CancerWorldmag

💡 Did you know there is a specific #EuropeanReferenceNetwork for rare 𝗻𝗲𝘂𝗿𝗼𝗺𝘂𝘀𝗰𝘂𝗹𝗮𝗿 𝗱𝗶𝘀𝗼𝗿𝗱𝗲𝗿𝘀? @euro_nmd is a network of healthcare centres that works to boost research and improve the standards of care for these pathologies 👉 share4rare.org/news/euro-nmd…

🌍 ERN ReCONNET will organize its 2⃣nd International Congress, save the date for April 9th - 11th, 2025 in Prague (Czech Republic). ✍ Registration is OPEN and special fees are available, check if you can apply to those. Abstract submission is also open, the deadline is Nov. 25th! Don't miss it, check the link for all info and details. Join us in Prague! 🔗 bit.ly/3Rdb3Xf #europeanreferencenetwork #guidelines #Patient @ern_reconnet #InternationalCongress #Diseases #EU4Health #HealthUnion

Opening of the #EndoGA2024 of @RareEndoERN, the largest #EuropeanReferenceNetwork, by @AlbertoMPereir1 and Olaf Hiort in Milano, Italy : two days of conferences, updates and meetings - glad to represent France !

💡How do we improve the rare adult solid cancer care within the European Union? → We are patient centred all over the EU → We ease the link between patients and expert centres #rarecancer #raresolidcancer #rareadultsolidcancer #ERN #Europeanreferencenetwork #EuropeanUnion

🌟 Join us this #InternationalNetworkingWeek as we celebrate the #EuropeanReferenceNetworks! 🌟Read about them here: health.ec.europa.eu/european… #NetworkingForChange #ConnectAndEmpower #EuropeanReferenceNetwork #RareDisease #UroSoMe #SoMe4PedSurg #PedUro #FPMRS #UroOnc

New #ERNsOnAir! In this episode, @BarbaraBrunmair of @SIOPEurope discusses techniques her #EuropeanReferenceNetwork has employed to fast-track patients to vital, virtual, specialist advice. Listen now! 🎧 go.eurordis.org/0AhtQC

@DonnellyStephen @LeoVaradkar @MichealMartinTD @mmcgrathtd @Paschald It's #Budget2024 Day! Time to #ThinkRare. 300,000 people living with #RareDiseases. 31% have no access to expert care. Support #EuropeanReferenceNetwork integration into HSE. @roinnslainte @BernardGloster

As soon as I heard your #europeanreferencenetwork was @ERNIthaca I had to find you this from actual Ithaca!

You can watch 'ESE Talks... Rare Diseases: MEN-1' joint webinar from @ESEndocrinology, @RareEndoERN and @EuroSPE on the ESE YouTube Channel! ow.ly/sMX350M8c08 #Endorcrinology #BecauseHormonesMatter #EuropeanReferenceNetwork #OurEndocrineCommunity #EndocrineNeoplasia

We used the opportunity of the #RomeWorkshop22 to have a face-to-face Executive Committee meeting ! Always nice to get together and discuss important issues in person. #RareEpilepsy #ERNs #EuropeanReferenceNetwork

Great opportunity to join a #EuropeanReferenceNetwork as #ProjectManager ! More info below 👇

Prof. Milan Macek @FnMotol introduced the #EuropeanReferenceNetwork. It is necessary to support further development of #EuropeanReferenceNetwork to bring the value for both patients and healthcare professionals #HealthOfEurope

📢 ERN-EuroBloodNet Co-coordinator Béatrice Gulbis is present at the 17th meeting of the #EuropeanReferenceNetwork coordinators with the @EU_Commission and representants of the 24th #ERN! ➡️The achievements & challenges of the #ERNeu actions are being discussed. #RareDiseases

📢Live from Brussels The 17th meeting of the #EuropeanReferenceNetwork coordinators with the European Commission is underway! VASCERN Coordinator @JondeauG is present. The accomplishments & #challenges of the #ERNeu, #registry more are being discussed. #RareDiseases

📣#EuropeanReferenceNetwork healthcare professionals Would you like to take your collaboration to the next level with visits, trainings, knowledge sharing? Apply to the #ERN exchange programme! Hear from past participants to learn more 👉audiovisual.ec.europa.eu/en/…

A new paper recently published on registries "An overlook on the current registries rare and complex connective tissue diseases and the future scenario of TogethERN ReCONNET". @ern_reconnet is a great #EuropeanReferenceNetwork

We are the #EuropeanReferenceNetwork for rare and complex epilepsies. But what constitute a rare and/or complex #epilepsy ? See Prof. Arzimanoglou’ slide below 👇🏻 Still time to meet us room C at the #EEC2022 for more info! @IlaeWeb

The Endo-ERN newsletter is out now! Read more about the joint webinar from ESE, Endo-ERN and ESPE, upcoming webinar, CPMS Newsletter, ESPE 2022, Call 4 new ePAG Advocates and much more! buff.ly/3yVXEtQ #EuropeanReferenceNetwork #RareDisease

Time for an update on our #EuropeanReferenceNetwork by our coordinator, Alexis Arzimanoglou. « our main mission is to share expertise and advices on state of the art practices aiming at improving accessibility of diagnostics and treatments for #rareepilepsies » #EEC2022