4 Oct 2025
It's #HCUAwareness Month - Day 4! ๐
We've made SO much progress since 1962 when #homocystinuria was first identified, and we won't stop working until a cure is found for all! ๐
#GoBlueforHCU #HCU #HopeConnectsUs
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4 Oct 2024
It's #HCUAwareness Month - Day 4! ๐
We've made SO much progress since 1962 when #homocystinuria was first identified, and we won't stop working until a cure is found for all! ๐
#GoBlueforHCU #HCU #HopeConnectsUs
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2 Oct 2024
#HCUAwareness month - Day 2! ๐
โก๏ธ Did you know that there are 10 types of #homocystinuria?
Homocystinuria is an elevation of the amino acid #homocysteine in urine or blood.
#GoBlueforHCU #HCU #HopeConnectsUs
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23 Oct 2023
It's #HCUAwarenessMonth2023 - Day 23! ๐
This week, we shine a spotlight on #SevereMTHFR! ๐ฆ
#HCUAwareness2023 #Homocystinuria #treatment #homocysteine #methionine #HCU #HopeConnectsUs #GoBlueforHCU
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19 Oct 2023
Work smarter, not harder! ๐
Check out these #medication hacks from #CblG mom, Brittany!
#HCUAwareness2023 #CobalaminDisorders #treatment #Homocystinuria #HCU #HopeConnectsUs #GoBlueforHCU
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12 Oct 2023
#HCUAwarenessMonth2023 Day 12 - Let's talk #treatment for #ClassicalHCU!
Follow along with Gabbi - Classical #HCU patient & college student as she takes us through a day in the life!
#HCUAwareness2023 #Homocystinuria #CBSDeficiency #lowprotein #HopeConnectsUs #GoBlueforHCU
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11 Oct 2023
It's #HCUAwarenessMonth2023 - Day 11! ๐
๐นToday's challenge - share an image of yourself, detailing some of the symptoms you've experienced due to classical homocystinuria!
#HCUAwareness2023 #Homocystinuria #ClassicalHCU #CBSDeficiency #HCU #HopeConnectsUs #GoBlueforHCU
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10 Oct 2023
It's #HCUAwarenessMonth2023 - Day 10! ๐
This week, we focus on Classical HCU!
Spread awareness!
โก๏ธ Download & share this infographic: bit.ly/hcu-nbs
#NewbornScreening #Homocystinuria #ClassicalHCU #CBSDeficiency #HCU #HopeConnectsUs #GoBlueforHCU
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2 Jun 2023
Take a break from the heat ๐ฅต, read the HCU Herald! - mailchi.mp/hcunetworkamericaโฆ
#HCUHero #PatientStory #Lowprotein #Research #Assistanace #ClinicalTrials #Homocystinuria #RaceForResearch #CobalaminC #TransitionToAdulthood #OwnIt #HopeConnectsUs #GoBlueForHCU
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.@HCUAmerica & @HcuNetworkAust are now accepting Expression of Intent (EOI) applications from researchers with an interest in developing new therapies to treat Severe #MTHFR & #CobalaminG! Learn more: bit.ly/3J74ly9 #HopeConnectsUs #GoBlueforHCU
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21 Oct 2022
#HCUAwareness2022 #HCUFact 21
Patients with severe #MTHFR should avoid the following:
-Folic Acid
-Protein Restriction
-Nitrous Oxide
-Dehydration
-Fasting
#Homocystinuria #RemethylationDisorders #GoBlueForHCU #HopeConnectsUs
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21 Oct 2022
Day 21 of #HCUAwareness2022: #High5forHCU
โก๏ธ List 5 ways HCU makes you a stronger, better person.
#Homocystinuria #GoBlueForHCU #HopeConnectsUs
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15 Oct 2022
Did you know that October is #Homocystinuria (HCU) Awareness Month? Here are some ways that you can get involved and help raise awareness - and you can always see @HCUAmerica for more ideas: bit.ly/3CQawnn
#GoBlueForHCU #HCUAwarenessMonth
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15 Oct 2022
Day 15 of #HCUAwareness2022:
Challenge: Wear Jeans for Your Rare Genes! ๐ ๐งฌ
โก๏ธ Take a ๐ธ of yourself sporting your favorite #HCU t-shirt & jeans!
Share it with us in the comments, or tag us in your post!
#Homocystinuria #GoBlueForHCU #HopeConnectsUs
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14 Oct 2022
#HCUAwareness2022 Fundraiser update! All donations will be MATCHED, up to $30,00! ๐คฏ๐
โก๏ธ THANK YOU to our donors:
Carlos Herrera, Patricia Mehltretter, & Barbara Zarou!๐
#HCU #HopeConnectsUs #GoBlueforHCU
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14 Oct 2022
#RaceForResearch swag is coming your way!!! ๐๐
Be on the lookout for your new gear! ๐ญ
#Homocystinuria #HCU #HopeConnectsUs #GoBlueforHCU
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13 Oct 2022
#HCUAwareness2022 #HCUFact 13:
#Cobalamin disorders are diverse, not all symptoms may apply. Symptoms may include:
-Poor feeding & growth
-Global developmental delays
-Seizures
-Maculopathy (vision loss)
#GoBlueForHCU
ytcropper.com/cropped/Jh5d9bโฆ
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11 Oct 2022
Meet Grayson! He's an #HCUHero / #CblGWarrior who never lets #HCU stop him from doing the things that he loves! ๐
#HCUawareness2022 #Homocystinuria #GoBlueForHCU #HopeConnectsUs
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6 Oct 2022
October is HCU awareness month! Our team members have โgone blue for HCUโ to help highlight this family of rare metabolic disorders. To learn more about classical homocystinuria, visit bit.ly/3wQK7l9. #InRareForLife #GoBlueForHCU #HCU
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6 Oct 2022
Day 6 of #Homocystinuria (HCU) Awareness Month: Share a #LowProtein meme. If you find more, share them with us!
Want to get creative? Create one and send it our way and we'll share it.
#HCUAwareness2022 #GoBlueForHCU #DietForLife #HopeConnectsUs
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