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12 Nov 2025
Mayo Clinic Gastrointestinal Oncologist Dr. Jason Starr sits down with Lisa Yen (LACNETS) and Stephanie Alband (INCA & The PheoPara Alliance) to discuss how we’re Bridging the Gap for patient advocacy. 🎙️ Listen now: loom.ly/mnr2n0k #NETCancer #PatientAdvocacy #NANETS
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27 Sep 2025
🤖 Posting Day 6 a little early in case my day gets busy tomorrow. Part 1, check comments for Part 2 We’re going airborne 🛸 🚁 RWAs are booming ($21B ). But what if the next big tokenized asset class isn’t real estate or treasuries… it’s robot fleets? Introducing: Tokenized Drone Fleets (LACNets)—where drones become yield-bearing assets on-chain. 👇 🌐 What’s a LACNet? Think of it as a “low-altitude economy network.” •Drones & eVTOLs = logistics, mapping, inspection, comms •Each drone provides compute services •Tokenization turns capacity into tradable, revenue-sharing assets 💡 How it works: 1.Tokenized fleet capacity (flight hours, compute cycles) 2.Verifiable usage via telemetry oracles (uptime, payloads, jobs) 3.Smart contracts handle tasking, payments, and splits 4.Liquidity via AMMs, futures, reputation staking 🚀 Why now? •RWAs crossing critical mass ($21B ) •DePIN/machine economy infra (like peaq) already live •New research lays out UAV blockchain frameworks for real deployment 💸 Token models that could emerge: •Capacity tokens (reserve drone hours) •Revenue-share tokens (claim service profits) •Staking/slashing for operator reliability •Data NFTs for selling high-value sensor data ⚠️ Risks: •Regulation (airspace, multi-jurisdiction) •Oracle integrity (telemetry spoofing = garbage data) •Token/value disconnect (adoption ≠ returns) •Ops realities (weather, downtime, batteries) 👀 Signals to watch: •Drone firms launching tokenized fleets w/ audited KPIs ($/mile, uptime) •On-chain tasking payouts in live pilots •Edge-data standards (e.g. AerialDB) integrated with oracles •DePIN integrations (wallets, machine identity, pay-per-task) 🧭 Investor strategy: •Play infra (machine-economy L1s, oracles) = “picks & shovels” •Focus on audited pilots, not press releases •Demand clear terms: fees, reserves, insurance, buyback mechanics 🔑 TL;DR LACNets = tokenized, verifiable drone capacity coordinated by smart contracts. It’s risky early, but if law data liquidity line up, drone fleets could be the first robotics RWA category to scale globally.
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Tune in today at 3 PM Pacific to watch "Evolving Management of Carcinoid Heart Syndrome: What We Know & What's New" with Dr. Venkatesh. 📺📌 ncf.net/events/apr29 #NETcancer #ncfcancer #LACNETS #NeuroendocrineCancer #NeuroendocrineTumor @CarcinoidNETs @HealingNET1 @NANETS1 @netcancerday @
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#Cabozantinib is now @US_FDA approved based off #CABINET study for previously treated pNET or epNET. - ⬆️ PFS in both subsets - mPFS pNET 11.4mos Vs 3mos and epNET 8.5mos Vs 5.6mos - SE: HTN, Diarrhea, Fatigue #OncTwitter #MedTwitter @NANETS1 @LACNETS #gism @OncoAlert
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12 Mar 2025
NET expert Dr. Junaid Arshad shares why patient education events are so valuable for those affected by neuroendocrine tumors. Don’t miss the upcoming LACNETS in-person event at the Arizona Cancer Center in Tucson, AZ, on Saturday, March 29th! Watch now: loom.ly/6QCmAHI

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LACNETS, now Neuroendocrine Cancer Foundation @NCFCancer representing at #ENETS25. 1st stop = INCA table to greet fellow global pt advocates @netcancerday @CureNETs @NECancerAus @NCkanker @PheoPara @CarcinoidNETs @ENETS_ORG
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Do you know someone who works tirelessly to help those affected by #pheo #para #PPGL? Here's your chance to thank them! 👉pheopara.org/2025/02/nominat… @RareDiseases @LACNETS @HealingNET1 @RonnyAllan1 @raredisorders @NANETS1 @CureNETs
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We are pleased to announce the evolution of the LACNETS organization by introducing our new name: Neuroendocrine Cancer Foundation. This rebranding signifies the strides we have made in reaching more patients and caregivers, and also in offering more educational and support resources. Read the full announcement here: ncf.net/post/lacnets-is-now-… #NCFCancer @CarcinoidNETs
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Replying to @NCFCancer @NANETS1
The credit for this metaphor goes to Pr Sébastien Gaujoux from Paris - it represents the concept so well!
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The Intl #pheo #para #PPGL conference in Montreal 🇨🇦 is going to be #PHabulous! More info: 👇👇👇pheopara.org/2025/02/interna… @RareDiseases @LACNETS @HealingNET1 @RonnyAllan1 @raredisorders @NANETS1 @CureNETs @netcancerday @VHLAlliance @AmendInfo @AMENDInfoUSA @APheipas
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Our one-on-one peer support program can match you up with someone who is also affected by #pheo #para #PPGL. Connect by phone, email, text, or messenger. Learn more 👉pheopara.org/community/get-s… @RareDiseases @LACNETS @HealingNET1 @RonnyAllan1 @raredisorders @NANETS1 @CureNETs
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Dr. Junaid Arshad explains why you should join @LACNETS & @UAZCancer for an in-person patient education event at the Arizona Cancer Center in Tucson, Arizona, on Saturday, March 29th. Register now: Lacnets.org/Events/Arizona @drjunaidarsh @NANETS @CarcinoidNETs @netcancerday @CureNETs
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📢Learn the latest on #genetics and #genomics related to neuroendocrine cancer from the new webinar by @LACNETS - join on February 7th, 2025, from 9 am to 10.30 am Pacific. 📌Find out more and register: incalliance.org/lacnets-webi… #LetsTalkAboutNETs
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Please follow the legend @JamesHoweV !! It is so incredible for NET social media team to have Dr Howe join Twitter/X. I am extremely lucky to be in training @UIowaCancer where I have the luxury and great fortune of working with him and learning from him. 🙏🏻 P.S. please tune in to a great discussion on Dr Howe and team’s recent paper in @AnnSurgOncol at #ASOChat @NANETS1 @LACNETS @CureNETs
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📢We're thrilled to announce the Neuroendocrine Tumor Research Foundation #NETRF has awarded a Mentored Research Grant to Dr. Guo @StanfordMed to continue his investigations of #PPGL #pheo #para #SDHB. 🎉🔬💵👏 @CureNETs @RareDiseases @LACNETS @HealingNET1
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📢TODAY (Jan 28th) . . . !!! #pheo #para #PPGL online support meeting with our European #PHriends! Register 👉bit.ly/40rCP5T @RareDiseases @LACNETS @HealingNET1 @RonnyAllan1 @raredisorders @NANETS1 @CureNETs @netcancerday @VHLAlliance @AmendInfo @AMENDInfoUSA @APheipas

Tue, Jan 28th! Join us for a special Europe-friendly meeting time 🌍⏰as we share & connect online about our #pheo #para #PPGL journey. Led by patients & caregivers, just like you. Register 👉bit.ly/40rCP5T @raredisorders @RareDiseases @LACNETS @HealingNET1 @RonnyAllan1
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📣PPA welcomes new Program Coordinator, Cindy Chen! 🎉Cindy's non-profit experience & passion for helping others will be a gift to the #pheo #para #PPGL community! 👉pheopara.org/2025/01/ppa-wel… @RareDiseases @LACNETS @HealingNET1 @RonnyAllan1 @NANETS1 @CureNETs @raredisorders
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