Det var lite fokus fra FHI på å ignorere virusutløste symptomer under pandemien. Vi vet jo alle at slike patogener som feks ev68, sars-cov-2, hhv-3, EBV, lepra og sånt smitter sosialt.
hehe. #lighteningprocess#mecfs . Smil. :P
Anbefalinger om LP -der kursdeltakerne for 20.000 kr for et helgekurs, skal lærer seg å 'ikke gjøre sykdom'- synes like lite egnet for ME-pasienter som for feks kreft- og ALS-rammede.
Det finnes mye bra innen alternativ hjelp. LP for ME er ikke en av disse.
#lighteningprocess
#MECFS patients, carers & campaigners when they read @NICEComms new draft guideline & #GET, #CBT, #Lighteningprocess all withdrawn......then realise due to years of neglect, underfunding & lack of research, there’s no actual treatment!!
#memesforme#ME
I have been astonished by Cochrane, NICE and several key journals as I used to trust them. No longer.
In #ME they are still persisting in the view that the #LighteningProcess is safe for children and exercise not only safe but a valid Rx for an exercise intolerant group.
The total absence of criticism by @senseaboutsci & @fgodlee of the #FITNET / #LighteningProcess studies conducted by Esther Crawley, & the #PACE Trial despite being heavily criticised in other countries shows scientists hv long way to go to gain conf of public in health research