2 Mar 2023
Only a few places are left in our "Living with NETs" program.
Starting the 14th of March, participants will learn more about #NETs and helpful skills for #livingwithNETs.
ow.ly/wRrU50N4ff8
#LetsTalkAboutNETs #NeuroendorineCancer #NeuroendocrineTumours #CancerAwareness
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15 Dec 2022
Did you know that #NETs are still more common than brain, ovarian and cervical cancer?
Currently, 24,000 Australians are living with #neuroendocrinecancer, and 5,400 are diagnosed annually.
#LivingwithNETs
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22 Nov 2022
π·You could WIN 45 bottles of red wine plus 1 x Lemair Wine Cooler fridge just in time for Christmas! Head here to donate to win! ππΎow.ly/pwes50LEiSm
#LivingwithNETs #neuroendocrinecancer
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Thank you to Helen Pollard in sharing the important patient perspective #livingwithNETs #UKINETS2020
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10 Sep 2020
I am starting an Instagram live at 17:30 GMT! Featuring Jessica Howell who is #livingwithnets
Tune in to listen and learn about this rare kind of tumour. You can find the account @100StoriesBook π
@ncukcharity
#cancer #live #interview #storytelling
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We told it was coming! Now it's out. @TBajoras has released a new album to soothe your #COVID19 soul & solitude called, "By Day or By Night" #LivingwithNETs @LACNETS @CarcinoidNETs netrf.org/2020/04/13/the-heaβ¦
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5 Aug 2020
Lanreotide shots every 3 wks
Vit B every 6 wks
Blood tests, Dotatate scans, Triple phase liver scans every 3 months.
Is now the time to admit I might have a problem with needles? π€π
#NETCancer #LivingWithNets
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19 Jun 2020
What are some of the different treatment options for people #LivingWithNETs? #NeuroendocrineCancer Expert, Edward Wolin, MD, answers questions about treatment of neuroendocrine tumors: buff.ly/2TIUyU7 @MountSinaiNYC
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13 May 2020
"I'm one of those people that gets knocked down seven times, gets back up eight." - NET Cancer Thriver, Beth Leonard. #LivingWithNETs @Guruofprocess
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6 Apr 2020
What activities do you do to let go of fear and anxiety? #MotivationMonday #LivingWithNETs
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5 Mar 2020
"I take all of that negative energy that's balled up inside, that hurt, and do something productive with it." - NET Cancer Thriver, Beth Leonard #LivingWithNETs
buff.ly/3cBjpC0
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6 Feb 2020
When NET Cancer Thriver, Steve Mazan, was diagnosed with #NeuroendocrineTumors in 2005, his doctors told him he may only have 5 years to live... #LivingWithNETs
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28 Jan 2020
"It's almost like having a molecular-scale cruise missile with a molecular nuclear warhead on it." Learn more about this exciting new treatment here: buff.ly/2pDh9Xm #LivingWithNETs
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27 Jan 2020
"There are things that will work for one person that won't work for another." Listen to your body & be your own best advocate! #LivingWithNETs
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14 Jan 2020
#NeuroendocrineCancer Thriver, Stacie Chevrier, goes to yoga to get rid of fear and anxiety #LivingWithNETs
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31 Dec 2019
It's so important to have a strong support system when #LivingWithNETs! #NeuroendocrineTumor Thriver, Mark Patton, met his strongest supporter and wife in college...
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13 Dec 2019
Don't be afraid to question your health care providers! Be your own best advocate! #LivingWithNETs
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12 Dec 2019
Be your own best advocate & find a support group to share your experiences with! #LivingWithNETs #NeuroendocrineCancers
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Thank you everyone who attended - I agree, definitely a main stage event for the future #letstalkaboutNETs #livingwithNETs/NECs/NENs
Really looking forward to "patient" led session this afternoon at #ukinets2019 @netpatientfound @UKINETS
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