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...so by "incorporating" your Shared Care Record into its #FDP, @NHSEngland is once again attempting a #DataGrab including your #GPhistory - this time hiding behind the #ICSs, instead of @NHSDigital as in 2021's #GPDPR or #caredotdata, as in 2014: medconfidential.org/whats-th…
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...caused by the #CoverUp, like undermining #trust across the board, was in some ways even worse than what they tried to hide. Does any of this sound familiar to #caredotdata veterans? (Or at least, those who learned something?)
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This 👇 in ♠️s See also #caredotdata, #GPDPR, etc. and "selling the benefits"...
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..we HAVE taken legal advice on that. #NHSTrusts don't just get to #sell copies of their patients' data - for shares in dodgy 'AI' companies, or anything else. In case they've not been paying attention (cf. #caredotdata, #GPDPR) this is precisely what destroys #trust 🤦‍♂️🤦‍♂️🤦‍♂️
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#TruDat So why are @DHSCgovuk / @NHSEngland trying to replicate - with #ICS '#SharedCareRecords'* - what the architect of #caredotdata (also) stuffed up when he went to Australia? Doesn't seem very #strategic... __ *medconfidential.org/2021/sha…

Much for the U.K. to learn about the utility of the shared record. If it’s not useful - it’s not used.
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...and, a bit like @NHSEngland did after #caredotdata in 2014*, they've created some "advisory groups". You can read the #TermsOfReference and published 'Action notes' for the '#GPData #Check and #Challenge Advisory Group' here: digital.nhs.uk/data-and-info… __ *Check who's missing:
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“Major projects have lowered public buy-in”. No shit! Whose brilliant idea was it that the body (in some cases, the people) who pushed #caredotdata & #GPDPR - not to mention long-held #DataLake/#TargetArchitecture* ambitions - gets to define the rules? *medconfidential.org/wp-conte…
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...which are all eminently #engineerable, given the political will, and resourcing. So why didn't @NHSEngland learn from #caredotdata, and will they *actually* learn from #GPDPR and this Review? After all, it's not like they haven't had many of the 'blueprints' for years...
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Clear sense on #TREs too (recommendation 3) 👇 If 'any man and his dog' is allowed to build a TRE, we'll simply end up with the farcical proliferation of so-called 'safe havens' that existed pre-#caredotdata. A small number of *mutually-accredited* TREs keeps EVERYONE honest...
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Oh joy. "Thorny" is somewhat of an understatement! For all of the familiar hand-waving on potential 'benefits', this could all too easily turn out to be the EU's #caredotdata... More info on the #EUHealthDataSpace here: ec.europa.eu/health/ehealth-…

The Health Data Space will address the thorny issue of re-using health data for ‘secondary use’ which, for the Commission, can significantly boost the innovative field of personalised medicines. @BertuzLuca and I have taken an in-depth look at the proposal euractiv.com/section/digital…
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Worth noting that by an equivalent point with #caredotdata in 2014, the #CareDataAdvisoryGroup had not only published its Terms of Reference but the minutes of its first FOUR meetings: web.archive.org/web/20140617… #GPDPR #TransparencyFail 🤦‍♂️🤬

“We find ourselves in a difficult position of being part of a panel of which the public is unaware & about which nothing is published” – Part of our letter to @NHSDigital @NHSX continuing to push for transparency around #GPDPR - bit.ly/3G6nkVb @NDGoffice @medConfidential
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It is #caredotdata all over again. If the #NHS is going to keep making these mistakes you wish they would at least make different mistakes.
‘This is the biggest data grab in the history of the health service’ says @guardian I’m all for sharing data but let’s not sneak it through without proper Comms & cause irreversible damage to trust #privacy #healthdata #nhs amp-theguardian-com.cdn.ampp…
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9 Sep 2015
Care.Data on hold.... Again.... #CareDotData goo.gl/qRB63V

21 Jan 2015
Nice piece with @tkelsey1 on #CAREdotDATA diginomica.com/2015/01/20/nh… let's avoid all the media spin and hype about it's relaunch!

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