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Replying to @areyoflight
I experienced and reported disability hate crime during Visible Difference Awareness Month over my #VisibleDifference which is a result of a rare and progressive disease called Parry-Romberg Syndrome/ Disease and most noticeable as a #FacialDifference with body & #FacialAsymmetry
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Two hundred years ago, the rare disorder #ParryRombergSyndrome, a.k.a. progressive hemifacial atrophy, was discovered. Since then, researchers have yet to uncover its cause or how to stop it. Now, the @PRS_Foundation is calling on scientists to find answers with their 1825-2025 Campaign. Help this community solve their two-centuries-old #MedicalMystery! Read their NORD Guest Blog: rarediseases.org/parry-rombe… #Atrophy #Epilepsy #Autoimmune #Scleroderma #FacialDifference #VisibleDifference #MedicalHistory
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Listen to how I turned a life-altering diagnosis into a mission of purpose. Hear about incredible #nurses and their impact on my health outcome. Find out how you can embrace vulnerability, build resilience, and connect with others on a deeper level. Reach out to me so we can collaborate going forward. To watch this 30 minute virtual session, register here: lnkd.in/gUgXmxAw and receive my free gift. #anursesjourney #resilience #healthcare #cancer #facialdifference #newlifenewlegacy #julieatkinson @survivorsday @Coping_Cancer @Cancer_Buzz @CancerSupportHQ @CancerSupportSF
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Fond memories to look back on 10 years ago at @CharlotteMaxJAH, Johannesburg, where I used to volunteer with @SmileFundSA, shortly after I recovered from a deadly, antibiotic-resistant infection. I was privileged to see facial reanimation surgery as a #FacialDifference or facial reconstruction patient myself. I learned so much from all these interns, doctors, hospital staff and fellow volunteers. Something I still treasure today as an #AMR advocate. I always value learning about the hard work that goes into changing and saving lives in healthcare, from beyond my patient bed. As a patient also in Charlotte Maxeke when I had the accident that changed me in many ways forever, I'll always be grateful to all those that worked hard to save my own life. There are some phenomenal people working against the odds for public health in SA. #PatientAdvocacy
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Update from last week’s surgery. I’m feeling almost 💯 back to full energy level. Swelling is down and eye feels good. 👁️ This was my 4th surgery in left eye, although I don’t remember the first 3! Part of my condition with Goldenhar Syndrome includes dermoid cysts in my eyes. All good for now. 🙏🏻 Thanks so much for your kind words and well wishes. They mean a lot. ❤️ @petedank 🎸 #petesdiary #goldenharsyndrome #facialdifference #differentiscool #eyesurgery
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This was my first photo at age 35 after a facial reconstruction following a car accident in South Africa and a long 10-year recovery. There were days when I didn't think I'd have a face left, especially after overcoming three years of antibiotic resistant infections in between, which left me hopeless at times. I refused to give up, but not all patients have the same privilege of surviving #AMR no matter how hard they try. My fight continues in 2025 after 11 years as an advocate to continue raising awareness. #osteomyelitis #AntibioticResistance #FacialDifference #AntimicrobialResistance #TraumaPatient #Maxillofacial #Craniofacial
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Kara runs today! Help her cross the finish line strong: donate $8 or more in honor of Kara's 8K Let's rally together—consider donating today to help her cross the finish line! childrenscraniofacialassocia… #RunningForACause #CCAKids #BMWDallasMarathon #craniofacial #facialdifference
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Seeking trainers! We're launching a workplace inclusion programme on #FaceEquality & we're looking for trainers to deliver it. As a pilot, it's only open to self-employed people in Great Britain. Details here: s.mtrbio.com/dmhutceoup #WorkplaceInclusion #FacialDifference #DEI
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Exciting news! We're making headlines in @enablemagazine, the UK’s favourite disability magazine 🗞️ It's time to turn the page on stigma. Check out our feature in #Enable and join our mission for #FaceEquality. issuu.com/dcpublishing/docs/… #FacialDifference
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#EffyRedman, author of #SavingFace, a #memoir about growing up with #MoebiusSyndrome, is featured in this article from Canvas Rebel. Redman discusses her writing process and her #career as an #author. canvasrebel.com/meet-effy-re… #FacialDifference #LGBT #nonfiction #writing
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"Never in my life did I see someone with a #FacialDifference on the runway." Read what model, musician and FD advocate Austin Halls had to say about strutting his stuff at the #NYFW @runwayofdreams1 show this year 👇 faceequalityinternational.or… #FaceEquality
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"We're not scary people and we don't want to be feared." Having a facial difference doesn't make someone evil or villainous. You can help break the link by being mindful choosing your costumes and makeup. Happy Halloween!  #FaceEquality #FacialDifference #SephoraUK
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Are you someone with #FacialDifference who has experiences of using #FacialRecognition technology? Fill out our #Survey and help us #Campaign for technology to be more #Inclusive of the facial difference community 💛 🔗 smartsurvey.co.uk/s/LA64GB/ #FaceEquality
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"Inclusion is the path to a brighter future, where every voice is heard, every perspective is valued, and every person has the opportunity to thrive." Dr. Johnnetta B. Cole.  #FaceEquality #FacialDifference #JohnnettaCole #QuoteOfTheDay
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It's that time of year again 🎃🕸️ and we've got deja-boo 👻 as the same tired #Stereotypes continue to haunt the #FacialDifference community. Stay tuned for an exciting campaign coming very soon. #FaceEquality #Halloween
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"Please do not dim that beautiful light that's inside of your soul for anyone. Ever." Letitia Wright.    #FaceEquality #FacialDifference #BlackHistoryMonth
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About to meet my local MP to create awareness around #facialdifference
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Today is #WorldMentalHealthDay and we're highlighting some of the unique mental health challenges for the facial difference community.  #FaceEquality #FacialDifference #MentalHealthAwareness
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