@ItsSuchMS profile picture
It's Such MS @ItsSuchMS
Joined October 2010
  • Tweets 33
  • Following 10
  • Followers 18
9 Photos and videos
Pinned Tweet
It's Such MS@ItsSuchMS
2 Jun 2024
Just a gentle reminder that if you need one for whatever reason make sure you register for a postal vote by 5pm on the 19th of June! #FuckTheTories
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Finally got through to @WGBpl for tickets for @BowlingForSoup. I can buy an access ticket but it doesn't guarantee a platform place, that'll be first come first served. So, I can pay £40 for a ticket, turn up but may have to leave cos I can't stand all night! No BFS for me again!
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Hi @WGBpl I'm trying to book access tickets but the stated number rings out and asks me to call an 0844 no. which charges 7p/min. Is that the number that I have to call? And if so, why, as a disabled person am I penalised when buying tickets.
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I filled in the form on the website for a call back at @WGBpl own convenience and then spotted that they only check this "at least 3 times per week". That's dead helpful for an event that is likely to sell quickly... How is any of this in any way equitable to non-disabled people
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@attitudetweets this is exactly why your manifesto for the next government matters so much #GE24
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Also I have added a load of posts including some access reviews, some wins and some losses to my Instagram account recently @itssuchMS
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Missed an opthamology appointment yesterday, a calendar in the NHS app would be very handy for those of us with neuro conditions (and having all my appointments and referrals in there)! #NHS #NHSapp #multplesclerosis #MS #disabilityawareness #appointmentanxiety🧵(1of4)
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I put it on the 16th of May! A calendar in the app that automatically adds appointments with reminders would definitely help. Although a lot of my appointments are outsourced to private clinics (hate that someone is making money out of my illness!)...(3of4)
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and the referrals, appointments and even test results don't show in the app at all!! It's really frustrating, even if I could link it to my google calendar, it would make a huge difference to my appointment anxiety!. (4of4)
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New wheels day! My experience with #Motability has been great (although I can't speak to the experiences of others) and having a car again is going to be awesome! The walker/rollator is going to help me be more independent and spend more time out. Win/win! #Disabilitytwitter
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Just discovered I paid VAT on the walker I ordered earlier, "that's a bit off" I thought since you don't pay VAT on private school fees. On checking, if I fill in a form and send it to Amazon I can get my VAT back. Thought this might help others. #MS #Disabled #DisabilityTwitter
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Heading to Alton Towers for the night with the family. We have Merlin passes and got a carers pass for my wife but unfortunately the RAP were all gone. How do people find navigating Alton Towers with mobility probs? Any tips? #MS #MultipleSclerosis #DisabilityTwitter
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Getting two new vehicles this week! #MS #MultipleSclerosis #DisabilityTwitter
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Had a look at my own medication intake 4015 a year for me although that looks likely to change in the near future. At the minute it's 5 in the am 6 in the pm! No wonder I rattle when I walk 😂
Andy Reynard ✍️😄🩼@andy_reynard
8 Apr 2024
MS is... swallowing over 3,000 pills and injecting yourself 156 times every year and thinking it's completely normal. And that's just to ease symptoms and slow the progress of the condition, not to do anything crazy like cure it. #BallsToMStheMemoir #MultipleSclerosis #MS
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Hoping to use these accounts to document my experiences with MS and accessibility, symptoms, processes, day-to-day challenges, appointments etc. there's more info on my Instagram page instagram.com/itssuchms. #MultipleSclerosis #Ms #ChronicIllness #Disability #Accessibility
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It's Such MS retweeted
Bob Pilkington@Bobzombie81
18 Mar 2024
Today the UK government went Infront of a UN committee to explain it's poor treatment of disabled people, they went for the Lord Melchett approach, i.e. a total pig-headed unwillingness to look facts in the face will see us through. Went about as well as you'd expect.
Canary
@TheCanaryUK
18 Mar 2024
Tories just SHAMED themselves at the UN – as it accused THEM of causing disabled people’s deaths. Lying, gaslighting, contempt from the UK across the 90-minute hearing #CRDP24 #CRPD24 @Dis_PPL_Protest @InclusionLondon Read our editorial by @MrTopple below thecanary.co/editorial/2024/…
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