Dementia is the biggest health crisis of our time and affects not only those living with it, but also their loved ones and carers.
Our Lived Experience Survey captures the voices of people affected by dementia, made up of those living with the condition, unpaid carers, and loved ones.
The findings expose a system buckling under pressure and serious gaps in care, diagnosis, and public awareness β leaving too many families to cope alone.
What has been your experience of dementia?
ALT Text on a two-tone background states, 'Just one third of people say that their experience of the dementia diagnosis process was positive.' and 'Long wait times and the need to see multiple healthcare professionals are key factors making the process difficult.'
ALT Text on a two-tone background states, "Two in five people with dementia feel ashamed or stigmatised." and "As a result, many have not sought a diagnosis due to concerns about what their families and friends will say if they are diagnosed."
ALT Text on a two-tone background states, 'Seven out of ten carers for people with dementia say that caring has negatively impacted their lives.' and 'It has impacted on their mental health and made them feel more socially isolated.'
ALT Text on a two-tone background states, 'One in five people affected by dementia have received no health care, social care or financial support.' and 'Of those who received support, fewer than half were satisfied with it.'