Husband and father of two teenage boys. Challenging ALS by making the most of this life and living by faith.
Joined June 2019
- Tweets 351
- Following 57
- Followers 236
- Likes 490
32 Photos and videos
6 Jan 2022
As your constituent & someone impacted by #ALS, I urge @senatorburr to support new and increased federal investments in #ALSresearch that will lead to more clinical trials to help find effective treatments, prevent new cases and find a cure for ALS. #ALSAdvocacy
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5 Jan 2022
As your constituent & someone impacted by #ALS, I urge @senthomtillis to support new and increased federal investments in #ALSresearch that will lead to more clinical trials to help find effective treatments, prevent new cases and find a cure for ALS. #ALSAdvocacy
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28 May 2021
As your constituent, I urge @deborahrossnc to cosponsor the #ACTforALS Act. People with #ALS urgently need effective treatments. This bill will increase the number of clinical trials while supporting expanded access to promising new drugs. #ALSAdvocacy
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25 May 2021
As your constituent, I urge @senthomtillis to cosponsor the #ACTforALS Act. People with #ALS urgently need effective treatments. This bill will increase the number of clinical trials while supporting expanded access to promising new drugs. #ALSAdvocacy
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25 May 2021
As your constituent, I urge @SenatorBurr to cosponsor the #ACTforALS Act. People with #ALS urgently need effective treatments. This bill will increase the number of clinical trials while supporting expanded access to promising new drugs. #ALSAdvocacy
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5 Apr 2021
Could not agree more
5 Apr 2021
Ending ALS takes all of us working together. Attacks & threats against ALS Association leaders & staff are unacceptable & ultimately cost time and resources better directed to fighting this disease. Read a statement from the Association's Board of Trustees:bit.ly/39MIvxM
4 Mar 2021
Thank you @MLB for honoring Lou and bringing more awareness to a disease he thought would be cured 8 decades ago.
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4 Mar 2021
So honored to have been a part of this. We have been dreaming of this day for a long time! Huge thank you to Adam, B Wayne, Chuck and all the amazing people in this group who would not give up until they made Lou Gehrig day a reality!
#lg4day
4 Mar 2021
🚨🚨🚨🚨🚨🚨🚨
THIS. IS. HAPPENING!!! There will be a Lou Gehrig Day in baseball this season! Thanks to @MLB and all 30 teams for making this happen and thanks to YOU all for your support of #LG4Day! Read more here: espn.com/mlb/story/_/id/3100…
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4 Mar 2021
Yes!!! Thanks for breaking the news @JeffPassan
#lg4day
4 Mar 2021
Exclusive at ESPN: Major League Baseball will hold an annual Lou Gehrig Day on June 2 after a group of people affected by ALS banded together to convince teams and the league to honor him like they do Jackie Robinson and Roberto Clemente.
News at ESPN: es.pn/385Arra
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29 Oct 2020
Looking forward to seeing this happen next season!
29 Oct 2020
Last week, we learned ALL 30 teams are on board with a league-wide Lou Gehrig Day in baseball, and we lost one of our co-founders @BryanWayneMusic. Read all about how it all came together and how BWayne continues to drive us to get it done! #LG4Day
lg4day.com/wp-content/upload…
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27 Oct 2020
Great memories of ending my Iron Horse tour at Truist Park with Andra and the @braves staff. Wish it was a Braves - @RaysBaseball World Series!
27 Oct 2020
Thanks to the @Braves for supporting #LG4Day! The favorite team of LGD member, @lfchallengeals, they had a fantastic season and they have a promising future ahead! Special thanks to Derek Schiller, President & CEO, for signing the team up!
#baseball #mlb #braves @kehearn
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Larry Falivena retweeted
26 Oct 2020
🐐GOAT ALERT🐐
WILLIE MAYS is now a supporter of #LGDay! Inducted into the @baseballhall in 1979, Mays played in 24(!) All-Star games, won 2x MVP, 12x Gold Glove, and has the MVP of the World Series named after him!
Thanks to @bcraw35 for talking to Willie about our cause!
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26 Oct 2020
26 Oct 2020
In June 2019, a man named Bryan Wayne Galentine had an idea. He hoped Major League Baseball would create a Lou Gehrig Day on June 2 in which all players would wear No. 4 to honor his legacy and raise awareness for ALS, the disease that took Gehrig’s life and affects so many.
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The Players Association extends its deepest condolences to Bryan’s family, friends and members of the ALS community. We greatly admired his courage and commitment to the cause of establishing a Lou Gehrig Day and finding a cure.
23 Oct 2020
We are devastated to announce that our co-founder, Bryan Wayne Galentine, has died suddenly of ALS. A big fighter for the ALS cause, he was on many committees at @iamalsorg and he was PASSIONATE about #LG4Day, always driving the group to go faster.
RIP BWAYNE, we got this!
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24 Oct 2020
Happy to have known you BWayne! I will definitely miss seeing your smile in our Zoom meetings. Thanks for inspiring me with your big dream for LG4 Day, your faith and for pushing people to make omelets!
23 Oct 2020
We are devastated to announce that our co-founder, Bryan Wayne Galentine, has died suddenly of ALS. A big fighter for the ALS cause, he was on many committees at @iamalsorg and he was PASSIONATE about #LG4Day, always driving the group to go faster.
RIP BWAYNE, we got this!
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23 Oct 2020
More to come!
22 Oct 2020
#LG4Day in the media! Our teammate @adamfwilson426 did an interview with a Yankees website. Check it out!
More media to come!
22 Oct 2020
22 Oct 2020
In the 1928 World Series, Lou Gehrig went 6/11 with 6 walks, 4hr, and 9rbi (and an OPS of 2.433!!) in the 4 game sweep. If @mookiebetts keeps this up he's going to eclipse Lou!
On the other hand...Gehrig never won @tacobell tacos for the entire country!
18 Oct 2020
If you haven't already, please take 30 seconds to sign this petition so this treatment can be available to pALS asap!
16 Oct 2020
New data published today suggests survival benefit of several months with AMX0035. @alsassociation and @iamalsorg renew call for FDA, Amylyx to make AMX0035 available ASAP. Sign the petition today: als.org/petition
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Larry Falivena retweeted
14 Oct 2020
Who's the greatest Catcher of all time AND supports #LG4Day? @JohnnyBench_5, of course...14x All-Star, 10x Gold Glove, 2x MVP, and 2x WS Champ with the @Reds!
Bench was also a Lou Gehrig Award winner in 1975 (pictured below), so that makes him extra special!!
#baseball @phidelt
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