For patients with the rare kidney condition FSGS without nephrotic syndrome, treatment options have been limited. A new approval offers hope. fda.gov/drugs/drug-alerts-an…

🎉🎉🎉Historic day for the #FSGS community— the FDA has fully approved Sparsentan as the first drug for patients with FSGS!! And in addition to adults, it’s approved for children ages 8 and over too 🙌 Special shout out to the #PARASOL ☂️ project that played a pivotal role in defining endpoints for FSGS trials! So proud to be a part of this amazing community (& former investigator for the DUPLEX trial). And grateful my patients now have a therapy to treat a devastating kidney disease 🙏🏼 @ISGDtweets @nephcure @LauraMarianiMD @ASmith_Stats @mehelmuth @KretzlerM @rheault_m @kirkcampbell streetinsider.com/Business W…

I am so proud of this community and proud to be a part of this historic moment ❤️

PARASOL biostats leads Abigail Smith and @mehelmuth gave a guest lecture in @HamiltonCollege BIO 202: Biostatistics class - Nice examples to learn about statistical methods & considerations in longitudinal studies and clinical trials & highlight real life impact of biostats work

This is huge! I'm so proud to have been a part of making this happen!!!

I'm proud to be a part of this work and team! @ASmith_Stats @LauraMarianiMD ajkd.org/content/mostread

A small subgroup of the PARASOL team celebrating with our well-traveled banner

PARASOL biostats all-stars Abigail Smith and @mehelmuth with the poster! #KidneyWk

A little stroll post-PARASOL workshop took us to the place where the magic happens @NIH @Moinsaleem @Tobias_B_Huber @DannyGale_1

The fantastic @LauraMarianiMD revealing data-derived trial endpoint proposals to allow feasible clinical trials in #FSGS #ParasolProject @ISGDtweets

Excited to announce our recent paper "Natural History and Clinicopathological Associations of TRPC6-Associated Podocytopathy" appearing today as pre-print in @JASN_News A great collaboration across the world to put together 64 cases for 39 families segregating TRPC6 missense variants and describe their course of disease and clinicopatological features! #FSGS #RareDisease #HumanGenetics #TRPC6 #rFSGS #nephroticsyndrome @GlomCon @ISGDtweets @GbadegesinLab @TheSampsonLab @actiobiosci @CUIMCGlomCenter @asbomback @Martinelli_Elen @ASNKidney @the_asci @tzeyinlim @JMartinoActual @SlavePetrovski @AstraZeneca @mehelmuth @kidneyomicsamps @KretzlerM @CureGn @Moinsaleem @nephcure @ASPNeph @NephroticSyn @NephroticF @ESPNSociety @IPNA_PedNeph @thePNRC @AmerAcadPeds @rFSGSInitiative journals.lww.com/jasn/abstra…

Increased risk of kidney failure in patients with genetic kidney disorders @CureGN pubmed.ncbi.nlm.nih.gov/3922…

Thank you for reporting! More to come on this, stay tuned :) #APOL1 #FSGS @GbadegesinLab @kidneyomicsamps @TheSampsonLab @OpeyemiOlabisi8 @H3Africa @goKDIGO @PrAniang @CUIMCGlomCenter @ApolloNetwork13 @GuptaYask @ilori_titi @AfricanAFRAN @dhekidney @NephJC @MegSise @mehelmuth @CureGn @kirkcampbell @GlomCon @LauraMarianiMD

I'm so proud to be a part of this amazing team!!!

Racial & Ethnic Disparities in Acute Care Utilization Among Patients with Glomerular Disease bit.ly/3rnjkKR (FREE temporarily) @JKrissberg @MichelleOShaug3 @mehelmuth @SalemAlmaani @KayeBrathwaite @DoreyGlenn @CureGn

Just out. Proud to work with these folks from @UMichKidney , @UNCKidney @nationwidekids and @CureGn and @nephcure “Elevated Exposure To Air Pollutants Accelerates Primary Glomerular Disease Progression” kireports.org/article/S2468-…

"Predicting Patient Response to Standard-of-care Therapies in Glomerular Diseases" by @mehelmuth @LauraMarianiMD, et al, is presented at WCN'24 in Buenos Aires. Their work was transformed into a visual abstract by #ISNWCN Social Media Team member @goldenglom

ISGD reunión during the WCN’24: ✅ Members from around the 🌎 ✅ GN in ten ✅ Parasol project ✅ Defining MCD and idiopathic nephrotic syndrome ✅ Hot topics in GN session webinar May 10 2024

😊Thank you to everyone who came to this morning's breakfast! Wonderful to meet so many members in person and especially to connect w/ the outstanding neph community here in Argentina and Latin America. We're looking forward to future collaborations! 🎉 -Laurel and Tobias

⛱️ You can now access a replay of last week's webinar about the PARASOL Project: eu1.hubs.ly/H08dVm80 @nephcure @nkf @ASNKidney @MiKTMC