Raising awareness for SCID newborn screening, SCID mom, Cued Speech Proponent, Photo Hobbyist, Crafter, Computer Geek, Web Designer...
Joined March 2008
- Tweets 3,481
- Following 560
- Followers 412
- Likes 79
121 Photos and videos
Barb Ballard retweeted
16 Dec 2025
š Your partnership makes this possible. In 2025, 23 SCID families received life-saving scholarships from the SCID Foundation. Help us give hope, support, and relief to families facing SCID today.
Donate š scidfoundation.org/donate
#SCID #scidawareness
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Barb Ballard retweeted
3 Jul 2025
āļø SCID Summer SocialāJuly chatSCID! āļø
š
Tuesday, July 22nd š 6pm EDT | 5pm CDT | 4pm MDT | 3pm PDT
Grab a cool drink, put on those shades, and join us for a midāsummer meetup thatās all about connection and good vibes.
Registration is FREE but required bit.ly/46nIC0P
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Barb Ballard retweeted
27 Jun 2025
England plans to sequence every newbornās genome within 10 yearsāscreening for 200 conditions, including SCID types missed by TREC like Reticular Dysgenesis, ZAP70, & ADA-SCID.
Article: bit.ly/3VUbXK2
Conditions list: bit.ly/4coS8ze
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Barb Ballard retweeted
23 Oct 2024
Join us right here on X (@fetchrewards) for a PARTY š this Friday, 10/25/2024. There will be tons of exciting content, special guests, PLUS an exclusive giveaway. So give us a follow and stay tuned for the fun! Reply to this post with a š„³Ā and your referral code to RSVP!
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Barb Ballard retweeted
29 Apr 2024
Since Adam passed, we have served more than 125,000 kids at @victoryjunction. To see Adamās smile on their faces, lets me know heās still here with us. Thank you, @wbtv_news for sharing this storyā¦
Watch here: qclife.wbtv.com/2024/04/29/kā¦
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13 Mar 2024
We are accepting applications for the Aisha Chaudhary Educational Scholarship through June 30th for the fall semester.
Do you qualify?
Learn more and read about last year's recipients on our website.
scidangelsforlife.com/scholaā¦
#scid #scidangels #scholarship #educationalscholarship
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A little girl in California who essentially has no immune system will receive a lifesaving treatment for "bubble boy disease" thanks to the persistence of a dogged group of parents, a pediatrician, a veteran newsman and a few episodes of "Grey's Anatomy." cnn.it/3Lem3zw
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Barb Ballard retweeted
3 Jan 2023
Our #ADASCIDInfo website includes a collection of resources created to support individuals and families as they navigate their journeys with the rare #immunedeficiency ADA-#SCID. Take a look: bit.ly/3FfGJEh (US website) or ada-scidinfo.com/global/ (International website)
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Barb Ballard retweeted
14 Jan 2023
Starting in the spring 2023, all babies born in Quebec will be screened for this life threatening primary immunodeficiency āØ Newfoundland is now the only province in Canada to not be screening for SCID. #scid #newbornscreening #newborn #Quebec #ImmUnity
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5 Apr 2022
Are you a SCID patient currently enrolled in undergraduate or graduate study at a college, university or vocational-technical/trade school? You may qualify for a $5,000 educational scholarship for the Fall 2022 semester. #SCID #primaryimmune #RareDisease
scidangelsforlife.com/2019/1ā¦
19 Mar 2022
Recognizing Dr. Rebecca Buckley for Women's History Month scidcompass.org/news/scid-trā¦
#SCID #primaryimmune #stupidSCID #topdoc #WomensHistoryMonth
29 Nov 2021
SCID Angels provides a safe environment while supporting and advocating for all SCID families.
Will you help us achieve our goal by supporting our #GivingTuesday2021 Campaign?
scidangelsforlife.com/pleaseā¦
26 Nov 2021
Select SCID Angels for Life by visiting: smile.amazon.com/ch/26-23013ā¦
Shop the Black Friday Deals using AmazonSmile so that your purchases can help support us
Just remember to shop at smile.amazon.com, or in the app with AmazonSmile turned ON (at no extra cost to you).
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22 Nov 2021
Participate with SCID Angels for LIfe for #GivingTuesday2021! Donate now at scidangelsforlife.com/pleaseā¦
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16 Jan 2020
Join me in standing for the more than 12,000 babies whose lives are saved or improved by #NewbornScreening each year by calling on @SecAzar to immediately renew the activities of the #ACHDNC: p2a.co/o5HdbOm
Barb Ballard retweeted
22 Jun 2019
Elizabeth K. Garabedian, RN received a standing ovation while accepting the Marcia Boyle Service Award at the IDF Zebra Gala. #IDF2019NC
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Barb Ballard retweeted
23 Jun 2019
With the conclusion of the Farewell Ceremony, thatās a wrap on #IDF2019NC! Thank you to everyone who joined us over the past few days and we canāt wait to see you in Dallas in 2021!
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Barb Ballard retweeted
11 Dec 2018
#Breaking Every state in U.S. now screening newborns for Severe Combined Immunodeficiency (SCID). IDF & partner organizations have worked over 10 years to achieve this. Read about milestone & what work lies ahead: primaryimmune.org/SCIDnewborā¦ #SCID #idfadvocacy #newbornscreening #NBS
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12 Dec 2018
#Repost @idfcommunity
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Wonderful news today, #idfcommunity! All babies born in the U.S. are screened for Severe Combined Immunodeficiency (SCID). With Louisiana implementingā¦ instagram.com/p/BrQ0GAvlSoh/ā¦
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