Husband to Katie & father to Felix, comms manager in London, sport lover with CF - author, podcaster & speaker about my survival experiences to help others
Joined August 2008
- Tweets 446
- Following 953
- Followers 796
- Likes 515
46 Photos and videos
5 Sep 2023
Thrilled to have benefited from 3 years of the CF wonder drug Kaftrio! Enjoy my little celebration video!
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Tim Wotton retweeted
5 Nov 2022
"This has to be for everyone"
#Trikafta4all
At 51 and still playing hockey (in a team with his son!) @timwotton is living proof of how effective #Kaftrio/#Trikafta really is
All people with #cysticfibrosis in every country should have the chance to access CF modulators #hope
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4 Nov 2022
It's not always been easy to share my hidden disability in the workplace. I hope this is changing with increased diversity, inclusion & belonging. Here's my testimony via my blog post '(In)visible in the workplace'... timwotton.wordpress.com/2022…
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Tim Wotton retweeted
4 Jun 2022
Let's help people with #cysticfibrosis in poor & middle income countries gain access to life-saving CFTR modulator therapies
A RT or small donation will help
@TanyaKoorts @SrbijaCf @FQuistica @vaincrelamuco @CFAware @CF_vs_Everest @timwotton @CF_Mummy
crowdfunder.co.uk/p/cf-drugs…
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Tim Wotton retweeted
22 Dec 2021
“I have a strong urge to write something that will change people... to give them a way of seeing something they didn’t even realize they weren’t seeing.” - Mallory Smith
✨ So she did.
🎬 And now the documentary based on her secret journals comes out January 25th.
ALT A young woman is leaning against a tree trunk, looking contemplative, on a sunny day with palm trees and sand in the background. She is using a nasal cannula.
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16 Jun 2021
Very kind promotion from @CfJimmyb about my CF survival memoir ‘How have I cheated death?’. Thanks & all the best for CF Week!
23 Apr 2021
Delighted with @cftrust for the kind promotion. Onwards & upwards! Love to all CF community who are more resilient than they ever realise x
23 Apr 2021
Have you read Tim's blog yet? When @timwotton was diagnosed with cystic fibrosis in 1971, his parents were told he would only live to his teenage years. Instead, he celebrated his 50th birthday earlier this year. ow.ly/Y6ey50EvN1D
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5 Feb 2021
Check out some of the reasons I feel optimistic, despite all the gloom of the pandemic, via my latest blog post 'Optimistic'... wordpress.com/view/timwotton…
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13 Nov 2020
#cysticfibrosis #cftrust I've been on the new CF drug #Kaftrio for a few months now. Something Changed! is my new blog... timwotton.wordpress.com/
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Tim Wotton retweeted
16 Sep 2020
Cystic fibrosis treatments: 700 more will enjoy access to new drug express.co.uk/news/uk/133613…
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Tim Wotton retweeted
10 Sep 2020
@fatallyfibrosed @MotherhoodvsCF @CFno1LeftBehind @Alidilly @timwotton @MrDeanP @_MissMoo_ @Guatemalagirl @gayle_pledger @GreatStrides65 @jess_cranfield @OliDillon @g_maynard @Daily_Express @blakeydark @VertexPharma @ashfieldlee @MattHancock
10 Sep 2020
express.co.uk/news/uk/133380… Great to see this. @Daily_Express has fought alongside #cysticfibrosis sufferers for 18 months now. Over 300 articles in that time on the cruel disease, proving media can be a positive force for action. #dailyexpresscrusade4cf #kaftrio @MattHancock @NHSuk
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5 Sep 2020
Dear Marc & the CF community... I started kaftrio this morning! Early stages feel like an IV stirring things up! Here’s comes the hot stepper! 🤗😉
4 Sep 2020
Shout out to all my friends taking delivery of the best present they could ever wish for this weekend and over the coming weeks.
Enjoy it, celebrate it, share it!
#kaftrio #Trikafta #ThanksKaftrio
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27 Aug 2020
During lockdown, there was little prospect of returning home or starting a great new medication... but hope came with this trick, which you can read about on my blog - 'Seeing is believing'... timwotton.wordpress.com/
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Tim Wotton retweeted
18 Aug 2020
24 weeks ago to the day, I started #kaftrio #trikafta.
At the time, my ability to run was pretty much non-existent, managing just 1min on flat treadmill.
With a bit of help from @NHSC25K, I’ve just ran for 20 minutes without stopping. I couldn’t be happier!
#ThanksTrikafta
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Tim Wotton retweeted
13 Aug 2020
Only 19 days (maximum) till we get that all important .@EU_Commission rubber stamp
Please hurry up
Don’t make us wait another 19 days
Do it now We are desperately waiting🙏🏻
I’d like Jess to get this before she goes off to university
#kaftrio
.@KingsCollegeNHS
.@hah_insights
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10 Aug 2020
Good on you Marc! There are thousands of us in the UK desperately waiting to start this drug ASAP! I should know as I was up all night coughing (for my 49th year!)
10 Aug 2020
After 20 years of rising to uncontrollable coughing, waking up relaxed, calm, rested and taking a long deep breath is something I’ll never take for granted.
It’s hard to explain to others who’ve always had that luxury.
#thankskaftrio
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Tim Wotton retweeted
5 Aug 2020
As a community I think we'd all like an update on Hailey Mann's situation as soon as possible @cftrust @NHSGrampian @NicolaSturgeon
From previous experience, it seems entirely possible that Hailey could have #Kaftrio by the end of this week if the right people make that happen.
5 Aug 2020
Miss Mann, said: "We still don't have the European licence, so until that comes through we don't have the drug.
"It could be weeks or months & I don't have the time.
"I need it now and I do not believe there's not a way to do that."
bbc.co.uk/news/uk-scotland-5…
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Tim Wotton retweeted
30 Jul 2020
Hope in tablet form
But some have desperate need
For Kaftrio NOW
Some people are teetering on the edge - September could be too late - is there a way to give access now to people in this position? @cftrust @EMA_News @blakeydark @MattHancock #PoetryHealth #kaftrio
@PoetryHealth
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