8th October - our webinar with Immune Deficiency Foundation of Australia (IDFA). Vice President @emmye1984 will talk about what Ig is, how this treatment aims to protect from infection. Alongside presentations on the benefits of Ig therapy! Register here: lnkd.in/dwUj3Mec

Cuts and scrapes are minor for most — but for Luke, who lives with WHIM syndrome, they could be life-threatening. Watch his story expert insights from Dr. Teresa Tarrant on this rare primary immunodeficiency. 💙🎥 medicalstories.tv/title/whim…

💛This summer, discover a story that will move you to action. "Do Something: The Jeffrey Modell Story" follows Fred and Vicki Modell as they transform unimaginable loss into unstoppable hope. After losing their son Jeffrey to #PrimaryImmunodeficiency, the Modells refused to let his story end there. Today, JMF leads the fight for early diagnosis, life-saving treatments, and ultimately, cures through groundbreaking research, physician education, and patient advocacy. What started as a parent's worst nightmare became a beacon of hope for thousands of families worldwide. 🎬 Stream "Do Something: The Jeffrey Modell Story" in 7 languages here: bit.ly/4cwt1MP

This years visit to raise awarenss of Primary Immunodeficiencies as part of World Primary Immunodeficiencies Week. Thanks @DrShaneRRR for having us every year. Einstein A Go-Go – rrr.org.au/shared/broadcast-… via @3RRRFM @MonashImmunol @MonashSTM @AusPIPS150

Its Worl Primary Immunodeficiency Week! The best way to raise awareness of disease is to listen to the stories of individuals with lived experience. Thanks @info4pi for this great series of blogs bringing awareness to this rare disease.

Meet Jodi Taub — a Primary Immunodeficiency (PI) patient and licensed psychotherapist who specializes in chronic illness and rare disease. 💬 In honor of #WorldPIWeek, Jodi wrote a powerful blog for us—answering the most common (and often misunderstood) questions she gets about PI. 📖 Read the full blog at bit.ly/3Gzn6eH

Next Wednesday, 30th April, join VP Emily, who will chair this Wednesdays webinar in collaboration with IDFAs Carolyn. The webinar will talk about invisible diseases that Primary immunideficient patients live with. There's still time register here: us02web.zoom.us/webinar/regi…

Its World Primary Immunodeficiency Week and to start our campaign to raise awareness we are sharing the 10 warning signs of Primary immunodeficiency. #WPIW2025 @WorldPIWeek

Very proud of @emmye1984 AusPIPS Vice President

Each child that is diagnosed and treated, is another reason why Newborn Screening is so crucial.

New Medicare funding for #SCIg. This will end the postcode lottery associated with access to SCIg. Read our press release below. Thanks @Mark_Butler_MP for your support.

Congratulations to Prof Jo Douglass, chair of our Medical & Scientific Advisory Panel, who has today been awarded an Order of Australia for her distinguished commitment to Medical Research, clinical Immunology and Allergy @ascia_news @TheRMH @UniMelb @WEHI_research #JMFMelbourne

AusPIPS relies on grants and donations to continue their work to support and advocate for patients with Primary Immunodeficiency. Please vote for us to share in $500,000. It's free to vote and only takes a minute so please visit mygivingcircle.org/auspips-i… and vote for us today!

Today our Vice president a medical researcher in the field of Primary Immunodeficiencies joined @DrShaneRRR on Triple R - 3RRR 102.7FM @einstein_agogo to raise awareness of this rare disease as part of World Primary Immunodeficiency Week. #WorldPIWeek rrr.org.au/shared/broadcast-…

Proud to be stakeholders on this important strategy to support Primary Immunodeficiency patients

A fantastic resource by the @WorldPIWeek team! World PI Week is a great time to raise awareness if rare diseases. #WPIW

We are extremely grateful to the JMF's vision in establishing the JMCN, with the Australian Centre in Melbourne. #JMFMelbourne

Join us this #RareDiseasesDay as we partner with IDFA to present this webinar focusing on how crucial patient voices are in raising awareness of the needs of the rare diseases community. The event is cochaired by VP @emmye1984 #rarediseases @MonashImmunol us02web.zoom.us/webinar/regi…