This NIHR Policy Research Unit is part of @NIHRresearch and hosted by @UniofExeter in collaboration with Bradford, LSE, Newcastle & UNSW. Views own.
Joined November 2015
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329 Photos and videos
NIHR PRU in Dementia and Neurodegeneration Exeter retweeted
27 May 2025
Huntington's Disease Association - Living alone with Huntington’s disease - research findings thanks to @DeNPRUExeter for this important work @HDA_tweeting hda.org.uk/news/living-alone…
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📢Job alert!📢
Stakeholder Engagement & Impact Manager sought! Year-long maternity cover contract!
Hybrid role, but remote working considered. Dynamic and interesting role ranging across #dementia & #neurodegeneration
tinyurl.com/yc6zdxaa
Closing date 13/03/2025
@UoE_Jobs
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NIHR PRU in Dementia and Neurodegeneration Exeter retweeted
#ARCadvent day 1⃣5⃣:
The joint @NIHRresearch & @alzheimerssoc cohort of up to 60 ARC dementia research fellows (#DEMCOMM fellows) joined up to bid for extra funding for new #dementia research initiatives. Five projects received further funding.
arc-wx.nihr.ac.uk/post/alzhe… @arc_wessex
ALT NIHR National Institute for Health and Care Research #ARCadvent Top ARC stories of the year Day 15 Alzheimer’s Society awards further £370,000 for dementia research Main image: A man reading papers on a desk
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A wonderful study on such an important topic! We're currently drafting reports from our 'living alone with dementia or another neurodegenerative condition' policy research project - keep your eyes peeled next year! 👀
#ARCadvent day 1⃣1⃣:
Research supported by @arc_nt has explored the needs of people with #dementia who live on their own. This study has produced the 'Living Alone with Dementia' set of resources ⤵️
livingalonewithdementia.co.u…
ALT NIHR National Institute for Health and Care Research #ARCadvent Top ARC stories of the year Day 11 Supporting people with dementia living alone without formal support Main image: A woman washing vegetables in a kitchen sink
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NIHR PRU in Dementia and Neurodegeneration Exeter retweeted
26 Nov 2024
.@ReinhardGuss flying the flag for livingwithdementiatoolkit.or… co-created with people with #dementia and carers full of evidence to help people live well #UKDC2024 @DeNPRUExeter
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NIHR PRU in Dementia and Neurodegeneration Exeter retweeted
11 Nov 2024
THE NEXT #SOCIALCARE in @NIHRresearch Policy Ressearch Units hosted by #ASCRU2 will be on 11 Dec! 🗓️
Join @f_vadean, @stvallan, @ClaudiaACooper1, @birksyvonne, @a_r_mckinlay Sam Rickman for a webinar showcasing the latest #PolicyResearch. 🔍
REGISTER: lse.zoom.us/meeting/register…
ALT Social Care Research in NIHR Policy Research Units Wages and labour supply in the Adult Social Care sector (Dr Florin Vadean, ASCRU2) Do staff employment conditions make a difference to care outcomes? (Dr Stephen Allan, ASCRU2) Improving the quality of dementia -specific education for the care workforce (Prof Claudia Cooper Prof Yvonne Birks, DeNPRU-QM) Understanding the functionality of Integrated Care to optimise physical and mental health (Dr Alison McKinlay, PRUBehSci) Gender bias in large language models in long-term care (Sam Rickman, ASCRU2)
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NIHR PRU in Dementia and Neurodegeneration Exeter retweeted
Excellent session chaired by the splendid Dr Charlwood of @DeNPRUExeter on Mental health access and challenges for people with Neurological conditions. Representation from HD and MND 2.
Session available to watch soon.
Credit to @jonny_acheson for artwork used on slides.
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Do you work with people living alone with #ParkinsonsDisease? Join our consultation next Tues (12th) at 2.30 to help shape policy recommendations!
Pls RT @ParkinsonsUK @ParkinsonsEN @UHP_Parkinsons @Parkinsons_BFW
eventbrite.com/e/10496675328…
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NIHR PRU in Dementia and Neurodegeneration Exeter retweeted
Please do come along next Weds to this webinar to hear how people with Neurological issues access mental health services. @kernowpdnurse from @livewellsw will be discussing Parkinson’s and access to mental health help. I’m sure it will be a lively discussion!
There's still time to register for next Wednesday's webinar on accessing #mentalhealth services. Professionals & experts by experience share insights from Parkinson's, motor neurone disease and Huntington's disease.
@Peninsula_ARC @NIHRARCs @FPOPofficial
eventbrite.com/e/96818009171…
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NIHR PRU in Dementia and Neurodegeneration Exeter retweeted
1 Nov 2024
Please do come along. For my part, I’ll be talking about challenges for some people with Parkinson’s accessing mental health services in a timely way.
#Parkinsons
#MentalHealthAwareness
There's still time to register for next Wednesday's webinar on accessing #mentalhealth services. Professionals & experts by experience share insights from Parkinson's, motor neurone disease and Huntington's disease.
@Peninsula_ARC @NIHRARCs @FPOPofficial
eventbrite.com/e/96818009171…
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There's still time to register for next Wednesday's webinar on accessing #mentalhealth services. Professionals & experts by experience share insights from Parkinson's, motor neurone disease and Huntington's disease.
@Peninsula_ARC @NIHRARCs @FPOPofficial
eventbrite.com/e/96818009171…
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NIHR PRU in Dementia and Neurodegeneration Exeter retweeted
19 Oct 2024
@ParkinsonsUK @SpotlightYOPD @NeuroAlliance @RcnNeuroForum @livewellsw @moversand6
Please do come along…. If we don’t know the barriers and challenges to accessing MH services, we won’t be able to change things.
Have you registered for our next webinar yet? We're looking at accessing #MentalHealth services for people with a neurodegenerative condition. Speakers include @kernowpdnurse, Head of Policy from @HDA_tweeting & two experts by experience
06/11/24 @ noon
eventbrite.com/e/96818009171…
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Have you registered for our next webinar yet? We're looking at accessing #MentalHealth services for people with a neurodegenerative condition. Speakers include @kernowpdnurse, Head of Policy from @HDA_tweeting & two experts by experience
06/11/24 @ noon
eventbrite.com/e/96818009171…
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Congratulations @ENLIVEN_project on their win in the Health, Wellbeing, & Life Sciences category at the @Exe_Innovation Knowledge Exchange Awards 2024! ENLIVEN revolutionised access to nature for people with #dementia working with 11 outdoor providers /1
youtube.com/watch?v=tcCRv5ex…
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You can read more about the Awards here:
news.exeter.ac.uk/research/e…
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NIHR PRU in Dementia and Neurodegeneration Exeter retweeted
Over 900,000 people in the UK live with #dementia. The Improving the Experience of Dementia and Enhancing Active Life (IDEAL) project led by @Peninsula_ARC is the largest UK study of living well with dementia & also provides resources
arc-swp.nihr.ac.uk/news/idea…
👉Follow #ARCimpacts
ALT Picture of person speaking with care worker and #ARCimpacts logo
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NIHR PRU in Dementia and Neurodegeneration Exeter retweeted
2 Oct 2024
You may have missed this fabulous webinar - but you can now read the wonderful guide: What Works When Working Together - co-created with people with different neurodegenerative conditions denpruexeter.nihr.ac.uk/reso…
Please join us next Monday (30th) at 11am for our first #webinar! We will launch the 'What works when working together?' #free digital guide and you can hear directly from the team!
#cocreation #PPIE #dementia #Parkinsons #MMD #HuntingtonsDisease
eventbrite.com/e/96823953952…
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Please join us next Monday (30th) at 11am for our first #webinar! We will launch the 'What works when working together?' #free digital guide and you can hear directly from the team!
#cocreation #PPIE #dementia #Parkinsons #MMD #HuntingtonsDisease
eventbrite.com/e/96823953952…
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Very excited to be working with you on this! #StrongerTogether
12 Sep 2024
The project will be undertaken by the @UniofExeter Policy Research Unit and we (@ParkinsonsUK) will be helping to insert the views of people with Parkinson's.
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The🐈⬛'s out of the bag! As announced on @moversand6 @DHSCgovuk have asked us to map the Parkinson’s #research #evidence and research funding landscape so that future research funding can be targeted to the topics where evidence is most needed. /1
moversandshakerspodcast.com/…
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It will identify and prioritise gaps and provide recommendations to guide future research commissioning. It will cover Parkinson’s and associated conditions including multiple system atrophy, progressive supranuclear palsy, corticobasal degeneration and Lewy Body dementia. /3
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We are delighted to be partnering with @ParkinsonsUK on this important work and look forward to working with a range of stakeholders to make this happen. More information soon! /End
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