Join us at @MissionMSA’s 2025 International MSA Congress! AskBio's symposium on #GeneTherapy and MSA: Exploring Innovation Through Science and Patient Perspectives will be held on Saturday, May 10 from 3:30-5:00pm..
Learn more about #MSA2025: bit.ly/3EgImoL
#BiomarkerTesting helps cancer survivors find personalized treatment options, bringing #hope & precision to their cancer journey! 🌟 Learn how two survivors used this powerful tool for better outcomes.
LCRF is pleased to announce its collaboration with Bayer Pharmaceuticals to fund two research grants focused on innovative strategies to advance understanding and management of #LungCancer with HER2 mutations and/or other HER2 alterations. Find out more at LCRF.org/her2research
Researchers at MIT have questioned whether SMART goals (specific, measurable, achievable, realistic, time-bound) actually work. They suggest we might get better outcomes if we make our goals FAST (frequently discussed, ambitious, specific and transparent) not SMART.
It is with great sadness that we say good-bye to our dear friend and powerful lung cancer advocate, Ivy Elkins. We will remember Ivy as vibrant, compassionate, and unselfish; never defined by her cancer, and always proving that she was a person, not a statistic.
Only 4% of evidence based guidelines mention patient preferences. @EnriqueSoto8 on decision making for older adults but message applies to all - ASK, ASK, ASK!
And we MUST add pt pref to evidence guidelines- pts are the only reliable source of data on their preferences!
#ASCO24
Day 2 at @ASCO started out strong with a powerful conversation among advocates and @BayerPharma . If we all work together anything is possible! Thank you @DrMerchant for all you do for us patients and survivors! 💙#ASCO24
Stars aligned at 7am! Thrilled to meet new advocate Andrea and introduce her around at the @BayerPharma breakfast! Thanks @DrMerchant for providing the venue #ASCO24
As we anxiously await data to read out at #ASCO24, please remember, People Come First!
@MaryBoulanger4 will present her work that highlights prognostic communication challenges & patients' unmet psychosocial needs - both JUST AS IMPORTANT as OS & HR's.
bit.ly/3R4cXJs
Up to 90% of Prostate Cancer patients experience fatigue from the disease or its treatments. Inspired by a previous Patient Day roundtable, this article discusses fatigue in PCa patients, and offers a guide to support patients with fatigue.
Read it here:
authors.elsevier.com/sd/arti…
34% of patients with advanced cancer and 29% of caregivers prioritize symptom management over life extension. Interventions to target prognostic awareness & reduce discordant goals of care can help develop realistic expectations. ja.ma/3xqIj64