Health data privacy and security devotee; HIPAA myth buster; former fed (OCR & ONC); Terp fan; dog mom; Citizen Health data governance; Personal twitter account
Joined February 2010
- Tweets 10,482
- Following 972
- Followers 5,072
- Likes 23,687
85 Photos and videos
Pinned Tweet
17 Dec 2019
hhs.gov/hipaa/for-profession… Relevant quote: "[I]ndividuals have a right to receive a copy of their PHI by unencrypted e-mail if the individual requests access in this manner."
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@healthprivacy retweeted
Sorry to hear you are not feeling well. I hope you figure out what is going on or it just resolves on its own. Caveat re: GPT esp if public rather than subscribing account.
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14 Aug 2025
Our passion for helping patients & their families has been there from the start & is deeply embedded in our company DNA. So grateful to our investors; our team; our patient advocacy group, academic & commercial research partners; and, most importantly, patients on our platform.
14 Aug 2025
We've secured $30M in funding from @8vc @transformcptl, Headline to use AI to transform consumer healthcare, starting in rare disease. citizen.health/citizen-healt…
📊 Centralized records 🧠 Personalized AI Advocate 🔬 Research participation
Build with us: citizen.health/careers
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@healthprivacy retweeted
Join the Office of the Assistant Secretary for Technology Policy in one of three positions: Chief Technology Officer (CTO); Chief Artificial Intelligence Officer (CAIO); Chief Data Officer (CDO). These Executive-level roles will help drive innovation and success at HHS – apply now! healthit.gov/topic/careers-o…
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@healthprivacy retweeted
22 Jul 2024
I recently had the experience of being asked—with @GraceCordovano—of being asked to put together a patient advisory panel. We strongly recommended that they pay them & suggested means. They went to their ethics committee—without us—& decided paying patients was unnecessary.
22 Jul 2024
The unpaid labor of patients, survivors, and caregivers has been invisible for too long - thanks to @agaricus @stales @BraveBosom @aijenpoo and many others for their insights
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@healthprivacy retweeted
1 Jul 2024
Today is #SocialMediaDay.
Patient communities need safe spaces online.
#BeLikeLight
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@healthprivacy retweeted
24 Jun 2024
A significant milestone of the 21st Century Cures Act is now complete!
hhs.gov/about/news/2024/06/2…
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We asked @GraceCordovano, PhD, about the regulations she believes are still missing and would like to see implemented...
Learn how transparency and data sharing initiatives are tackling "friction points": healthcareittoday.com/2024/0…
@DrFirst @UnblockHealth #AI #digitalhealth
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18 Jun 2024
Just a few suggestions on how to build trust and accountability in network exchange.
18 Jun 2024
In their new Forefront article, Tina Grande Deven McGraw of the Healthcare Trust Institute @ciitizen argue that patients and health care organizations need to be able to trust that exchange participants will act as responsible stewards of patient data. bit.ly/3RAh409
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@healthprivacy retweeted
2 Jun 2024
SUNDAY, JUNE 2:
Find me in “When Bad News Comes through the Portal” at #ASCO24
I’m talking about all of your favorites:
✔️open notes
✔️open test results 🔥
➕a bit of my oncology experience
It’s all kicks off at 11:30am.
#opennotes @myopennotes @BIDMC_Research
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8 May 2024
Way to go @healthapiguy! Measurement of and publicly reporting on outcomes leads to improvement - just ask the health care quality improvement experts. This will help patients get seamless, reliable access to payer data, regardless of their plan. open.substack.com/pub/flexpa…
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@healthprivacy retweeted
23 Jun 2022
Maybe someday, women in America will have as many rights as guns do.
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25 Apr 2024
I’m excited to participate in @AllHealthPolicy's 9th Annual Signature Series workshop tomorrow, coming together with a range of stakeholders to tackle these practical questions: What does a good AI advisory board look like? What should the AI curriculum be for policymakers?
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22 Apr 2024
OK, I had my head in e-mail and work all day and totally missed this! HHS OCR finalizes their proposed rule bolstering HIPAA protections in light of the Supreme Court decision in Dobbs.....
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@healthprivacy retweeted
12 Mar 2024
🙏🏾
12 Mar 2024
Earned it. Deserved it.
Jahmir Young: All-Big Ten First Team
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@healthprivacy retweeted
12 Mar 2024
I know, I know, the ink is barely dry on HTI-1.
But we won't apologize for relentlessly advancing health IT to improve people's lives. 🇺🇸
healthit.gov/buzz-blog/inter…
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@healthprivacy retweeted
Congratulations to Dr. Wiltrout, @IDreamofGenes & @BCH_PoduriLab for this analysis of @ciitizen data collected with & supported by SRF!
Comprehensive phenotypes of patients with #SYNGAP1-related disorder reveals high rates of #epilepsy & #autism
pubmed.ncbi.nlm.nih.gov/3847…
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@healthprivacy retweeted
5 Mar 2024
To the social media team at THE Dictionary: I can always count on you to make my day.
5 Mar 2024
Facebook and IG are down - time to bust out your Dictionary.
Let’s. Go.
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@healthprivacy retweeted
27 Feb 2024
Amazing season for Jahmir Young.
27 Feb 2024
They step up against the best 🔥
Scoring leaders against Quad 1 opponents (min. 4 GP):
1. Jahmir Young - 24.5
2. Dalton Knecht - 24.1
3. Zach Edey - 23.8
4. David Jones - 23.8
5. Terrence Shannon Jr. - 23.7
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