Working mom. Advocate for Newborn Screening and MSUD.
Joined August 2011
- Tweets 277
- Following 219
- Followers 69
- Likes 842
58 Photos and videos
Jordann Coleman retweeted
Thank you @RepMcGovern for advocating on the House floor today for the 2.7 million Americans with gastrointestinal or inherited metabolic disorders who rely on #medicalnutrition. It's #TimeforMNEA
30 Jan 2024
I introduced the Medical Nutrition Equity Act with @RepRutherfordFL so families impacted by inherited metabolic diseases or gastrointestinal conditions can access the specialty food and formula they need to live their lives to the fullest. Congress should pass it NOW!
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Jordann Coleman retweeted
17 Feb 2023
Today marks the 1-year anniversary of the start of what's been called the #formulashortages but people in my rare-disease community know as the #formulacrisis: a way-too-long thread.
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Jordann Coleman retweeted
TY to @joniernst and @SenBooker for your comments in support of the #MNEA S2013/HR378 in today's hearing on #foodasmedicine. Passing this legislation before year's end is imperitive to achieve equity for those who rely on #medicalnutrition. #MNEAFinishLine
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Jordann Coleman retweeted
The #formulashortage showed #medicalnutrition is necessary for thousands to survive & thrive. Our crisis of access won’t end when supply resumes. Save the date 9/28 for #WHConfHungerHealth & bring #MNEA S2013/HR3783 to the table. #MedicalNutritionEquityNow NutritionEquity.org
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Jordann Coleman retweeted
4 Jun 2022
Thank you @FrancesSSellers for continuing to shine a light on those in the #metabolic community who rely on medical nutrition for lifelong treatment of their disorders. The #formulashortage won’t end until we pass the #MedicalNutritionEquityAct. washingtonpost.com/health/20…
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Jordann Coleman retweeted
.@FrankPallone @CathyMcMorris TY for @EnergyCommerce hearing on formula shortage. Solving the formula shortage crisis requires addressing #SupplyAndACCESS. Pass the #MedicalNutritionEquityAct this year
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Jordann Coleman retweeted
.@repdianadegette @repmgriffith TY for @EnergyCommerce hearing on formula shortage. Solving the formula shortage crisis requires addressing #SupplyAndACCESS. Pass the #MedicalNutritionEquityAct this year
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Jordann Coleman retweeted
TY Sarah Chamberlin @howmuchphe for testifying on the importance and NECESSITY of specialty formulas used to treat certain inherited metabolic diseases & gastrointestinal conditions that prevent patients from digesting or metabolizing regular foods #SupplyAndACCESS #PassMNEAnow
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Jordann Coleman retweeted
Thank you @repmarkpocan for announcing during the @AppropsDems hearing on #formulashortage that you will cosponsor #MedicalNutritionEquityAct! #SupplyAndACCESS
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Jordann Coleman retweeted
Thank you @chelliepingree for your question about insurance coverage and the #MedicalNutritionEquityAct during the @AppropsDems hearing on #formulashortage and TY for co-sponsoring MNEA! #SupplyAndACCESS
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13 May 2022
Thank you @StephanieABC7 for sharing our story! thanks for highlighting the needs of those w/ #metabolic and conditions who rely on these formulas as a primary medical treatment for life. Their crisis won’t end when supply resumes until we pass the #medicalnutritionequityact”
13 May 2022
#BayArea 9-year-old running out of life-saving medical formula amid shortage #abc7now abc7ne.ws/3NbKCwx
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12 May 2022
Thank you @TODAYshow and @jolingkent for sharing the impact on the Metabolic Community. The crisi won’t end when supply resumes. We need the #MedicalNutritionEquityAct to protect us!
12 May 2022
Parents across the country are facing a crisis as supply chain issues and recalls have caused a massive baby formula shortage. @jolingkent has the latest.
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11 May 2022
Shortages of life-sustaining formulas are a crisis--one that never ends for those with inadequate coverage for medical nutrition. Until we pass the MNEA, lives are at risk. @MaxineWaters pls co-sponsor & pass the #MedicalNutritionEquityAct this year! politi.co/3FssXhB
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11 May 2022
Shortages of life-sustaining formulas are a crisis--one that never ends for those with inadequate coverage for medical nutrition. Until we pass the MNEA, lives are at risk. @RepJuanVargas pls co-sponsor & pass the #MedicalNutritionEquityAct this year! politi.co/3FssXhB
11 May 2022
Shortages of life-sustaining formulas are a crisis--one that never ends for those with inadequate coverage for medical nutrition. Until we pass the MNEA, lives are at risk. @RepDavidValadao pls co-sponsor & pass the #MedicalNutritionEquityAct this year! politi.co/3FssXhB
11 May 2022
Shortages of life-sustaining formulas are a crisis--one that never ends for those with inadequate coverage for medical nutrition. Until we pass the MNEA, lives are at risk. @NormaJTorres pls co-sponsor & pass the #MedicalNutritionEquityAct this year! politi.co/3FssXhB
11 May 2022
Shortages of life-sustaining formulas are a crisis--one that never ends for those with inadequate coverage for medical nutrition. Until we pass the MNEA, lives are at risk. @RepThompson pls co-sponsor & pass the #MedicalNutritionEquityAct this year! politi.co/3FssXhB
11 May 2022
Shortages of life-sustaining formulas are a crisis--one that never ends for those with inadequate coverage for medical nutrition. Until we pass the MNEA, lives are at risk. @RepMarkTakano pls co-sponsor & pass the #MedicalNutritionEquityAct this year! politi.co/3FssXhB
11 May 2022
Shortages of life-sustaining formulas are a crisis--one that never ends for those with inadequate coverage for medical nutrition. Until we pass the MNEA, lives are at risk. @RepSwalwell pls co-sponsor & pass the #MedicalNutritionEquityAct this year! politi.co/3FssXhB
11 May 2022
Shortages of life-sustaining formulas are a crisis--one that never ends for those with inadequate coverage for medical nutrition. Until we pass the MNEA, lives are at risk. @MichelleSteelCA pls co-sponsor & pass the #MedicalNutritionEquityAct this year! politi.co/3FssXhB
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