My 5 year old’s friend asked her recently why her dad didn’t pick her up from school. She explained that I have ALS and it would take me forever to get there.
So today I surprised her and picked her up from school. Her reaction was e.v.e.r.y.t.h.i.n.g. (sound on).
Tomorrow, @PaganoniMDPhD joins us to discuss clinical trials accelerating the development of effective treatments for #ALS as the keynote speaker of the Licht Lecture.
➡️ow.ly/r6HR50EdDrv
Fabulous trial reduced loneliness, depression, and anxiety in Meals on Wheels participants who live alone over four weeks.
How? College volunteers w 2 hrs training simply called a roster of 6-9 folks 2-5X/week (elders' choice) to ask how they are.
jamanetwork.com/journals/jam…
Everybody breaks. There is no shame in that. Don’t give it a second thought. Instead focus on being the kind of person who extends a helping hand to the person who broke without them having to ask. It’s harder than you think...
Good night moon.
In a family meeting, after you explained the situation is worse, I see many doctors ask,
"What would he WANT?"
I think this is a BAD question, although I'm aware it is well-intentioned.
I will tell you why...(thread)
1/
sad tales but important history in the making too, heralding a long-awaited inflection point towards the law evolving to serve people through the end of their lives
nytimes.com/2021/01/22/healt…
The SUPPORT Study in 1990's demonstrated poor communication at EOL.
Maybe lawsuits can help? We have tried everything else.
@cupallcare@cuonline Filing Suit for ‘Wrongful Life’ nytimes.com/2021/01/22/healt…
Lots of questions about the Covid-19 vaccines -- here are some of the more common ones, with my answers. Directed at clinicians, but probably something here for all. Any that we missed?
@NEJMnejm.org/covid-vaccine/faq