I’m thrilled to announce that the state of Minnesota and Governor Tim Walz proclaimed May 12th #MECFS day! #stateproclamation #mecfsawareness @WCCO @KSTP @kare11 @StarTribune @PioneerPress @GovTimWalz

A must-watch presentation about transforming ME/CFS care by #MEAction’s Scientific Director, Jaime Seltzer, is now available: youtube.com/watch?v=DxuOL6eE… @exceedhergrasp1 presented at the @NSU_INIM conference in May. Thanks for having us INIM! #MECFS #MyalgicEncephalomyelitis

Check out this webinar for #DisabilityPrideMonth- tomorrow, July 11th. We love "disability-led, joy-centered spaces." Community care is such a critical part of any movement but it does not get the attention or funding it needs. disabilityphilanthropy.org/r… #pwME #MECFS #LongCovid

Disabled impacted by #Beryl need help? Discapacitade impactade por Beryl y necesita ayuda? Call/text (llame) Disability & Disaster Hotline 800-626-4959 or hotline@disasterstrategies.org #Beryl #HurricaneBeryl #Disability #Disabled #Discapacidad #DisabilityTwitter

Have you had a chance to check out the amazing work of the Pillow Writers lately? #MEAction was excited to partner with longtime ME advocate & mother of a #pwME, Bobbi Ausubel, to host a writing group & we could not be more in awe of this program! pillowwriters.wordpress.com/

We have already received some amazing work for the Severe ME Artists Project. Keep them coming. Submissions due by July 25th! Please see full details including the links to submit here: meaction.net/2024/06/26/seve… #pwME #SevereME

With fewer than 1/3 of medical school curriculums currently addressing ME/CFS and less than 1/2 of medical textbooks containing information about the disease, it’s undeniable that ME/CFS has slipped through the cracks of our modern medical system. This needs to change in order for people with ME/CFS to get the help that they need. This is the fourth video in a ten part video series by #NotJustFatigue

A #pwME on the east coast needed a wheelchair accessible room to rent.

We hope you are having a happy and safe 4th of July! Reminder that we are on summer break and return on July 8th. May your air conditioning, fans, headphones, sunglasses/curtains/eye masks, and electrolytes be up to the day! #pwME #Spoonie #MECFS #Summer

Today in our Solve Science Spotlight series, we're summarizing the @U2Fight_World presentation by Solve Ramsay Research Program alum @C_Scheibenbogen on #MECFS, #LongCovid & the need for more rapid trials to test treatments. ow.ly/Rp6P50SuQ1z

The Summer 2024 edition of #TheChronicle is available online now! Click through to learn more about the three critical appropriations requests to Congress we championed to secure funding and resources for #MECFS #LongCovid & other #IACCIs. Read more: rb.gy/17uzac

Recording now available for "Covid Vaccinations: Efficacy, Options, & Special Considerations for Chronic Illness," with Solve CSO Tim Hsiao, infectious disease epidemiologist @jessicamalaty of @vaxyourfam & @BatemanHorne 's Dr. Melanie Hoppers. ow.ly/j5zG50Sv2UC

Solve CEO Emily Taylor joined forces with journalist & filmmaker @r_prior, and science and policy researcher @DystopianSpiral, to author a white paper calling for the @NIH to restructure funding for #MECFS #LongCovid and other #IACCs. Read more: rb.gy/883egu

Join the healthcare revolution! Solve Together already has over 2,000 #MECFS & #LongCovid patients and healthy participants using the platform to track their symptoms, set pacing notifications to prevent #PEM, and engage in clinical research. Learn more: rb.gy/esdo0i

"ME/CFS and Long COVID Study Suggests Immune Cells Robbing the Body of Energy" Link in image: healthrising.org/blog/2024/0… From American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society (AMMES) July e-newsletter #MEcfs #CFS #PwME #LongCovid

“That seems to me like one of the reasons why the Patient-Generated Hypotheses Journal is such an important project, because it is a pathway to scribing these things" Check out the Q&A on the latest issue of our Hypotheses Journal👇

Excited that this work will add to our understanding of these conditions and could lead to better symptom management and treatment options for the millions who suffer.

Congratulations to @manruipa & @BrunoPaiva_UNAV on the publication of their Solve Ramsay Research Grant Program funded-study of the connections between #MECFS, #LongCovid & Covid-19 post-vaccine studies!

Longevity Research: Could it Turn Back the Clock in long COVID and ME/CFS? longCOVID #MECFS healthrising.org/blog/2024/0…