HerzXLand 🇩🇪 retweeted
Hat mich irritiert, als der Arzt aus allen Wolken gefallen ist, weil ich bislang mit ME/CFS einen progredienten Verlauf hatte, dem er Ausdruck verlieh mit: „Und das OBWOHL Sie LDN nehmen???“
Ähm ja, die meisten Krankheiten können sich trotz Medikamenten verschlechtern
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Dorothea Sachsen-Anhalt retweeted
open.substack.com/pub/theint…
Some thoughts on the DGNB's position paper regarding diagnostic methods for Post-COVID and ME/CFS. Formally, it is weak. An expert opinion without a search strategy.
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ALT Substack tile: The Rhetoric of Overreach. The Assessment of Post-Infectious Syndromes Between Science, Law and Interests in Germany. By: The Interplay
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よーこアラカルト retweeted
Jun 13
マイコプラズマは、ME/CFSやSLEなどの自己免疫疾患・難病を引き起こすと分かってきてる感染症。
蔓延してくると、そういった厄介な病気も増える可能性がある。
しかも、抗菌剤使えばいいや〜と舐めてると、耐性菌が出てきてるのでさらに厄介。
飛沫感染などで伝播するので、基本の感染対策を。
Jun 12
3年半意識不明のタイ王女（47）が死去 マイコプラズマに感染 先月から容体悪化
マイコプラズマは細胞壁が無いため、βラクタム系抗菌薬が使えません
そのため、マクロライド、テトラサイクリン、キノロン系抗菌薬が使用されますが、耐性菌の出現が問題となっています news.yahoo.co.jp/articles/47…
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ネコボンバー🐾 retweeted
この方のアカウントには、ドイツ他ヨーロッパ諸国などでのME/CFS患者の、訃報がたくさん並んでいる。中には飢餓で亡くなった、というリプもある。
見てるだけでも苦しい。
🖤#RIP Klaus Schorn 🖤
Klaus hat sich verabschiedet...🥀
Es ist unerträglich, schon wieder ein #MECFS Tod!💔
Wir brauchen politischen u. gesellschaftlichen Druck, damit endlich lebensrettende Medikamente für #MECFS zugelassen werden!
klaus-schorn.de/2026/06/absc…
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Rosa retweeted
open.substack.com/pub/theint…
Gedanken zur Stellungnahme der DGNB bzgl. Diagnosemethoden bei Post-COVID und ME/CFS. Formal ist sie schwach. Eine Expertenmeinung ohne Suchstrategie.
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ALT Substack-Kachel: Die Rhetorik der Überdehnung. Die Begutachtung postinfektiöser Syndrome zwischen Wissenschaft, Recht und Interessen in Deutschland. Von: The Interplay
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Rosa retweeted
Prof. Köllner verbreitet regelmäßig in Vorträgen/Fortbildungen schädliche FAKE NEWS zu ME/CFS & Post COVID mit dem Siegel der Deutschen Rentenversicherung (!!!)- PP-Folien öffentlich einsehbar im Netz. In 🇦🇹 sorgt genau das jetzt für einen Skandal!
orf.at/stories/3428120/
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mona retweeted
Noch immer werden Krankheiten, an denen vor allem #Frauen leiden, nicht wirklich erforscht. ME/CFS, MS, Rheumatoide Arthritis und viele mehr. Die fehlende Forschung ist ein Riesenskandal, den die Gesellschaft so hinnimmt. #GenderHealthGap
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What happened Wien your cns exploded? What synptoms you got? My cns exploded from lex wd. Hyperadrenic post, dysautonomia, cfs. Yhteen years bedridden. Will this ever go away?
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Lisa retweeted
THIS is why if you are very ill with ME/CFS, you must obtain and look at your images and not rely on radiology reports.
When I run my CTA from 2022 through AI, I can see why I have epigastric pain!
My radiology report mentions none of this, and my doctors won't even look at my epigastric region or do a CPE. I don't get it.
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MaggieSunflower retweeted
Live This Thursday: Deconstructing Long COVID, Fibromyalgia, and ME/CFS with J.D. Haltigan PhD
This Thursday, June 18th at 3:30 PM Eastern
Instead of parroting standard wellness narratives or institutional talking points, we are going to examine the actual diagnostic paradigms, systemic incentives, and data behind these diagnoses. And of course, therapy methods that work!
Make sure to join us and give my friend @JDHaltigan a follow!
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'chronic fatigue'? You mean ME/CFS .. Classified as physical Neurological disease by the WHO since 1969 ... also by the CDC, NIH, National Academy of Sciences and UK NICE. Not a "condition" - but a sometimes fatal disabling disease. Quit your disinformation!
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chronic fatigue? You mean ME/CFS. Genetic scientist Prof Chris Ponting: "We now have genetic evidence that biological mechanisms are involved in ME ... on the current evidence ME appears to be a distinct disease – with its own genetic profile"
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>>> Wegweisend:
The potential causes of myasthenia and fasciculations in severely ill ME/CFS patients: the role of disturbed electrophysiology
Klaus J. Wirth
Jürgen M. Steinacker
frontiersin.org/journals/phy…
1/ Most people think muscles run on strength.
Physiologically, muscles run on electricity.
Every muscle contraction depends on carefully maintained ion gradients across cell membranes. Sodium moves in. Potassium moves out. Calcium triggers contraction. ATP powers the pumps that keep the entire system organized.
Without ATP, muscle cells don’t simply become “tired.” They become electrically unstable.
A recent hypothesis paper in Frontiers in Physiology proposes that many symptoms reported in ME/CFS and Long COVID—including weakness, twitching, and exercise intolerance—might ultimately reflect disturbances in this cellular electrical infrastructure.
Importantly, this paper presents a hypothesis, not proof. But it offers a useful framework for understanding how energy metabolism and symptom generation may be connected.
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⎐كُـود⎐كوبِون⎐خـِصم⎐ احفظوا الصورة ممكن تحتاجونها بعدين🤍
⎐ايهرب⎐ايهيرب اهرب ⊵DBW9404⊴
⎐ستايلي⎐ ⊵AT1⊴
⎐نون⎐ ⊵SSDD⊴
⎐نمشي⎐ ⊵ARA62⊴
——————
cfS
أفضل العروض 😆 🛌
Two-timepoint multidomain follow-up of post-COVID condition and ME/CFS: overlapping autonomic, small-fiber, and cognitive changes
👇
pubmed.ncbi.nlm.nih.gov/4228…
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Susanne Wiederkum retweeted
Ich finde es ja wirklich lustig, wie die Beschäftigung mit ME/CFS dazu geführt hat, dass neben all den Universitätskliniken jetzt @cereprax in Rudolfsheim-Fünfhaus gelistet ist ;)
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Rachel retweeted
1) Watched this presentation by Dr. Steve Gardner from PrecisionLife.
Their genetic analysis suggests that ME/CFS is highly polygenic and heterogeneous. They are using their data to make drug repurposing trials more effective, for example on GLP-1 receptor agonists.
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