Northern Ireland Disability and Carers Group - comprises disabled parents/carers/academics/disabled people & allies/PA's/ and a few renegade OT's!

Joined January 2015
127 Photos and videos
N.I.Disability & Carers Group retweeted
A carer‑friendly community might offer= awareness understanding kindness local activities supportive workplaces All of that is positive — but none of it replaces the statutory support that 24/7 P1 unpaid carers urgently need. #CarersWeek #CarersWeek2026
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#CarersWeek @BeforeWeDie My bed for the last 4.5 weeks, who knows how long more. This is the reality for carers who have children with ID & complex medical needs. There are no facilities for us in adult hospitals. What do people thinks comes of our children when they reach 18?😓
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N.I.Disability & Carers Group retweeted
The STUC stands alongside our unpaid carers. Too often, their labour is overlooked, undervalued and ignored by those in power. See the video below from @WeAreCarers and show your support during Carers Week wecarecampaign.org.uk/
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N.I.Disability & Carers Group retweeted
🫂 Many carers are unaware there is support available to help them in their new caring role. 🤝 Community pharmacists are often a first point of contact for carers, helping when time is tight and responsibilities many. 🔗 Find out more: online.hscni.net/our-work/so… @PatientClient
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N.I.Disability & Carers Group retweeted
During our ‘Care Sector’ (Module 6) hearings, we heard about the impact the pandemic had on unpaid carers. Their stories are an important part of our investigation. Read this news story to find out more 👇 covid19.public-inquiry.uk/ne… #CarersWeek
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N.I.Disability & Carers Group retweeted
Our local carer services are everywhere, from schools and hospitals, to workplaces. Find out more about our network of local carers centres across the UK: carers.org/our-network #CarersWeek
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N.I.Disability & Carers Group retweeted
At the start of #CarersWeek, let’s talk about what family carers are actually going through. Behind closed doors, there is an older wife/husband caring for their spouse while their own health suffers. There is a parent doing everything for their child. There is a working adult giving up their career and financial security because there is no other choice. There are people surviving on adrenaline and lack of sleep and financial worry. We do it out of love, but the system takes advantage of that love. We are forced to fight the government and the system until we break, begging for a few hours of relief, a basic payment, or help with an appointment. The lack of political will to support carers is devastating. This Carers Week, we don’t need empty platitudes or pats on the back. That doesn't change our reality. We need the commitments made to us to be followed through. Let's make Carers Week 2026 about real, positive action. 🤝💜 #CarersWeek #CareChampions #CarersMatter @kodonnellLK @MichealMartinTD @SimonHarrisTD
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N.I.Disability & Carers Group retweeted
Today’s blog post sets the scene for a series of articles throughout Carers Week that will shine a light on the daily realities faced by unpaid carers, young carers and kinship carers. Across the week, we will explore the emotional, financial and practical challenges that often go unseen, from balancing work and education with caring responsibilities, to navigating complex health and social care systems. By sharing these stories and insights, we hope to raise awareness, encourage understanding, and highlight the vital contribution carers make to families and communities every single day. #CarersWeek #UnpaidCarers #CostOfCaring #CaringCosts #WythnosGofalwyr caring-life.uk/2026/06/07/ca…
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N.I.Disability & Carers Group retweeted
A high-profile report by former Labour minister Alan Milburn suggests he will recommend more young disabled people must engage with employment support and face sanctions if they fail to do so, but ignores the safeguarding risks of such a strategy. disabilitynewsservice.com/mi…
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Trust run daycentre shouldn't be knocked down they do provide 1/1 OT, speech and the other services facebook.com/share/v/1BswPMk…

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N.I.Disability & Carers Group retweeted
Reason 4362 why we need to fight Digital ID being deployed in the United Kingdom and why it would make us all more vulnerable.
UTV can reveal investigations have been launched into suspected unauthorised access of confidential patient information held on Northern Ireland's electronic health record system Encompass. The Department of Health has confirmed that a "small number" of inquiries are underway, while insisting the system contains safeguards to detect and protect against improper access. Our Health Correspondent @Deborah_utv reports.
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We must protect disabled people so this doesn't happen again. Trusts need to stop protecting their staff.
Health records of patients in Northern Ireland’s largest health trust have been accessed without authorisation more than two dozen times since 2023. belfasttelegraph.co.uk/news/…
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Definitely
Marie Curie and a coalition of more than 30 charities is calling on the Timms review to stop people with terminal illness and progressive conditions being forced to repeatedly reapply for PIP  bigissue.com/opinion/pip-tim…
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It's happening more than we know about, disabled people must be protected @paulfrewDUP @DianeDoddsMLA @carlalockhart let's see the trusts covering for their staff now. facebook.com/share/1EP7JC81Q…

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It's happening more than we know of very personal data has been shared by non clinical staff who have accessed disabled people's medical records. Trusts done nothing but cover up for their staff
"Over the past two years, communication with staff on this matter has increased, in line with a rise in reported incidents." NI health trust reports rise in incidents of inappropriate access to patients' medical records. 📰 | @BelTel belfasttelegraph.co.uk/news/…
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N.I.Disability & Carers Group retweeted
"Over the past two years, communication with staff on this matter has increased, in line with a rise in reported incidents." NI health trust reports rise in incidents of inappropriate access to patients' medical records. 📰 | @BelTel belfasttelegraph.co.uk/news/…
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How many other families have been affected by this? Non clinical staff should not be accessing anyone's private medical files, Trusts needs to discipline and sack staff. Families left hurt distraught by what has happened to them @DianeDoddsMLA
UTV can reveal investigations have been launched into suspected unauthorised access of confidential patient information held on Northern Ireland's electronic health record system Encompass. The Department of Health has confirmed that a "small number" of inquiries are underway, while insisting the system contains safeguards to detect and protect against improper access. Our Health Correspondent @Deborah_utv reports.
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As we begin Carers Week, let's recognise the incredible unpaid carers providing support 24/7, often with little recognition and at great personal cost. Thank you for everything you do. You are seen, valued, and appreciated. 💜 #CarersWeek #UnpaidCarers
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