Writing up my #PhD a realist evaluation of coach learning & development programme @LeedsBeckett and campaigning for better healthcare #MEcfs #POTS

Joined November 2010
575 Photos and videos
NickyProctor retweeted
I'm joining the call for up-to-date scientific representation & meaningful patient engagement in Long Covid and ME. I'm proud to support the Open Letter to RCPsych, backed by 58 orgs & 1200 signatories. #HearOurVoices #RCPsychIC 📩 tinyurl.com/46enh82n
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NickyProctor retweeted
We are LIVE at the Royal College of Psychiatrists Congress NOW. This is to ensure the concerns of the community are heard about the framing of Long Covid (in a very British, polite way!) #RCPsychIC More details & about our social media campaign 👇️ 🖇️ longcovidadvoc.com/post/rcps… 🎙️ on Substack
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NickyProctor retweeted
SOCIAL MEDIA OUTREACH TOMORROW! At 10am Paul Garner, Trudie Chalder & Alan Carson are presenting on Long Covid at RCPsych Congress. The community have serious concerns about this framing. 58 orgs & 1200 signed an open letter. Template to C P below 👇️
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NickyProctor retweeted
I'm joining the call for up-to-date scientific representation & meaningful patient engagement in Long Covid and ME. I'm proud to support the Open Letter to RCPsych, backed by 58 orgs & 1200 signatories. #HearOurVoices #RCPsychIC
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I'm giving an online webinar/talk on microclots in #LongCOVID and #MECFS on Wednesday this week June 17 at 2pm UK time. Registration required but free register.gotowebinar.com/reg… #TeamClots

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I'm joining the call for up-to-date scientific representation & meaningful patient engagement in Long Covid and ME. I'm proud to support the Open Letter to RCPsych, backed by 58 orgs & 1200 signatories. #HearOurVoices #RCPsychIC 📩 tinyurl.com/46enh82n
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Please read about this social media campaign on Monday 15th June by @LongCovidAdvocacy. Help raise awareness and support by saving and sharing the leaflet below. 👇 #HearOurVoices
🗞️ Stop Press: MON 15th - We are coordinating an outreach campaign to the Royal College of Psychiatrists Congress to ensure the community's concerns about the framing of Long Covid are heard. This is a powerful opportunity for them to #HearOurVoices Template to C P below 👇️
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Thames Water wants to set its own rules. The Board of Ofwat is split over whether to let them. Tip the scales in favour of people and planet: email the Board now, and urge them to reject Thames Water's creditors @We_OwnIt weownit.org.uk/stop-thames-w…
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NickyProctor retweeted
Psychiatry as a profession…..you will not learn till there’s accountability and dismissal. Can the failing Psychiatrists from the Nottingham Inquiry be dismissed asap. Can we make an example of them to improve standards….now…let’s not wait for the conclusions. Our country needs to be in safe hands now and we don’t have time to wait for another disaster. I would like a call from @jamesmurray_ldn your private sec has my number. Let’s get rid of terrible Psychiatrists and shine a light on the good services. @rcpsych @nuwandiss @AllisonPearson @redrumlisa @Fhamiltontimes @Alison1mackITV @EmilyMayTV @GBNEWS @MartinDaubney
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NickyProctor retweeted
How many times do we have to beg / plead for hospitals to offer basic life sustaining care for women such a Caroline? #myalgicencephalomyelitis
Save Caroline Roberts’ Life now: A very severe #ME/CFS patient with high mortality risk. - Sign the Petition! c.org/sQhHQ9BLRb via @UKChange It’s the same terrible story. Caroline was admitted to hospital last week. The hospital refuses to offer any nutritional support 😡
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Someone was putting together a thread of specialist clinicians for ME/CFS. Here’s @wecrunchme list I wanted to share (sorry I can’t locate the original post now) crunchme.notion.site/clinics…
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NickyProctor retweeted
Urgent to the #LC #mecfs community Lack of reasonable care in hospital occurring for a severe patient Sharing a letter for the NHS ceo of the hospital docs.google.com/document/d/1… They ask that you send an email if you can Also will post their GFM gofundme.com/f/get-caroline-…
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c.org/ys5yvptnhY Please sign. Person with very severe ME not receiving appropriate treatment in an NHS hospital.
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NickyProctor retweeted
We are proud to be one of the 58 orgs & 1200 individuals to sign this open letter regarding the framing of Long Covid in the Royal College of Psychiatrists 2026 International Congress longcovidadvoc.com/post/open…
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NickyProctor retweeted
A new resource, 'Caring for Caregivers', has been produced by The 25% ME Group and @MEAssociation. The booklet provides information for #unpaidcarers of people with #ME. #ME #SevereME #CarersWeek 25megroup.org/wp-content/upl…

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NickyProctor retweeted
2025 update: 318.8bn € in cumulative costs from Long COVID and ME/CFS in Germany since 2020. More than 60 % of Germany's entire federal budget. Almost three times the defense budget. And the sum grows every year. Only research breaks this. Report: t.ly/5HMbW
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NickyProctor retweeted
Early women pioneers of climbing such as Lucy Walker, the first woman to summit the notorious Matterhorn mountain in 1871 all wore skirts on their climbs..... #WomensArt
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NickyProctor retweeted
We're back for our first #ThereForME Update in a while! Today we're sharing a roundup from ME Awareness Month (AKA May 📅) - from World ME Day events, to research announcements and ME in the media. Link in next post 👇
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