Research Study: COBra (Patient Reported Core Outcomes in Brain Tumour Trials) aims to understand the experiences of people affected by glioma.
Joined July 2021
- Tweets 37
- Following 45
- Followers 47
- Likes 17
6 Photos and videos
COBra Study retweeted
Well done @BaddeleyElin presenting qualitative data from the @StudyCobra today at the #EANO2023 focusing on understanding the holistic needs of patients with glioma and their caregivers. @DPMRes @CUmedicengage @BrainTumourOrg
@annmarienelson0 @CPROR_UoB
,
1
12
15
1,533
COBra Study retweeted
Great to see Elin Baddeley and @stephsivell represent the centre at the #EANO2023 to help present work from the @StudyCobra, led by Prof. Anthony Byrne, a mixed methods study to develop a core outcome set for use in #glioma trials in the UK. academic.oup.com/noa/article…
22 Sep 2023
Members of the COBra team are at #EANO2023! Find the final core outcome set results poster all day today by Ameeta Retzer and colleagues @CPROR_UoB @MCPCRCCardiff. Come visit @BaddeleyElin and @stephsivell by the poster between 6-7.30 CEST @EANOassociation @BrainTumourOrg
1
1
3
325
23 Sep 2023
We are back again at #EANO2023 today. Find our poster on understanding the holistic needs of people living with glioma and their caregivers all day today by @BaddeleyElin @stephsivell and colleagues from @MCPCRCCardiff and @CPROR_UoB.
@EANOassociation @BrainTumourOrg
4
4
165
22 Sep 2023
See the full paper 'Development of a core outcome set for use in adult primary glioma phase III interventional trials: A mixed methods study' academic.oup.com/noa/article…
3
2
130
22 Sep 2023
Members of the COBra team are at #EANO2023! Find the final core outcome set results poster all day today by Ameeta Retzer and colleagues @CPROR_UoB @MCPCRCCardiff. Come visit @BaddeleyElin and @stephsivell by the poster between 6-7.30 CEST @EANOassociation @BrainTumourOrg
6
9
1,078
COBra Study retweeted
Tonight we launch our new work programme! 🚀 This follows the successful refunding of our Marie Curie core programme award for a further 5 years. Watch this space for updates from the event.😍@DPMRes @Cardiffuninews @MarieCurieCymru @annmarienelson0 @MarieCurieEOLC
8
14
4,243
COBra Study retweeted
📢GET IT NOW! @PIRIToolkit Free download at: cardiff.ac.uk/marie-curie-re…
@MCPCRCCardiff @theWCRC @CUmedicengage @DPMRes @NIHRinvolvement @ResearchWales @annmarienelson0 @MarieCurieEOLC
14
13
5,275
COBra Study retweeted
The countdown has begun! join us for the @PIRIToolkit launch today at 1.30. Register free at: goodgrieffest.com/events/let…
8
9
1,698
COBra Study retweeted
1 Nov 2022
In support of #BrainTumourAwarenessWeek here's a quick showcase of some of the brain tumour work that has been done @MCPCRCCardiff 🧠
@StudyCobra @SilviaGoss1 @BaddeleyElin @annmarienelson0 @stephsivell
1
10
11
COBra Study retweeted
31 Oct 2022
It is brain tumor awareness week. This poster (paper coming) from one of our MS students is about the role played by speech and language therapists @RachelEvansMK @cudippallmed @annmarienelson0 @FionaRawlinson1 @stephsivell @DPMRes @MarieCurieEOLC @MCPCRCCardiff @BrainCancerAwa
11
11
COBra Study retweeted
20 Oct 2022
📣Still time......
an important chance to shape the future of GP practice and end of life care. We are looking for your feedback whether you have ever taken part in the Daffodil Standards programme or not. Thank you.
Find out more➡️ bit.ly/3r5AI6y
2
14
10
COBra Study retweeted
4 Oct 2022
Wonderful talk from Alisha @alishaannnewman and Robert McAllister (PPI) to start the NIHR Centre for Engagement and Dissemination event series @MCPCRCCardiff @annmarienelson0 @DPMRes @stephsivell @SilviaGoss1 @EmilyHarrop10 @kathyseddon @Daniella_M_H @DrMichelleEdwar @SimonNoble
1
4
8
COBra Study retweeted
Missing data pose risks to research findings. See new guidance on how to reduce, handle and report missing data in palliative and end of life care trials here: mariecurie.org.uk/globalasse… @annmarienelson0 @SimonNoble
15
15
COBra Study retweeted
29 Apr 2022
Interested in glioma patient-reported outcomes?
@StudyCobra are seeking clinicians, researchers, policymakers, third sector participants & patients/caregivers to complete a survey to help develop a standard way of reporting patient outcomes➡️email Elin: baddeleye1@cardiff.ac.uk
3
2
7 Apr 2022
We are recruiting! If you, or a loved one, has been diagnosed with a glioma brain tumour, we want to know your views. Please get in touch to find out more - baddeleye1@cardiff.ac.uk @BrainTumourOrg @brainstrust @MCPCRCCardiff @CPROR_UoB
15
9
7 Apr 2022
We are recruiting experts to a 2-round survey to develop a core outcome set for glioma interventional trials. Have your say now! If you meet the criteria, get in touch baddeleye1@cardiff.ac.uk
@MCPCRCCardiff @CPROR_UoB
#glioma #braintumour
12
10
COBra Study retweeted
28 Mar 2022
We are looking for people #Wales with problems with memory or understanding (e.g people living with dementia, learning disabilities or have been critically ill) & carers, to help us develop a tool to ensure research is more inclusive of these groups @ResearchWales @CTRCardiffUni
28 Mar 2022
Help to develop a new tool so people with problems with their memory or understanding can be included in research
Researchers who design trials need to do everything possible to make their research relevant to the people it will affect.
Apply today: healthandcareresearchwales.o…
ALT Group discussion
11
11
COBra Study retweeted
28 Mar 2022
Each year, over 12,000 people in the UK are diagnosed with brain tumours.
In recognition of #BrainTumourAwareness Month, we shine a light on some of the incredible organisations offering help and support to those living with a brain tumour in the UK.
cancercaremap.org/article/su…
8
8
COBra Study retweeted
29 Mar 2022
This #BrainTumourAwarenessMonth I want the world to know...
"My WHOLE life has changed, not just me!"
Please retweet to amplify the experiences of those who have heard the words 'you have a brain tumour' and help create a more supportive society #BTAM2022 #PeopleNotPatients
1
11
6
COBra Study retweeted
4 Feb 2022
Today is World Cancer Day, this year the theme is "Close The Care Gap'.
We will be telling you all about the work The Charity is doing to support the community and how you can help.
#ACureCantWait #Support #CloseTheCareGap #WorldCancerDay
17
30