Joined April 2015
28 Photos and videos
Ted Monroe retweeted
Another study shows cerebral hypometabolism in #LongCovid patients with PEM. Cerebral hypometabolism is a decrease in the brain's ability to turn glucose into energy, leading to a severe cellular energy deficit. journals.sagepub.com/doi/ful…
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Ted Monroe retweeted
A thread today about Immunoglobulin G (IgG) antibodies to various pathogens and why they seem to be elevated a lot in people with #LongCOVID, #MECFS, chronic #lyme/tick- and vector-borne illnesses and other complex chronic illnesses. First, let's start basic: what is IgG? 1/
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Seeing Double – Long Covid diplopia "A few days ago... I had sudden onset diplopia... all now fractured into a great optical orchestra like a cubist painting by Braque or Picasso." #longcovid #MyalgicEncephalomyelitis #chronicillness tedmonroe91.substack.com/p/s…
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Ted Monroe retweeted
Replying to @hannahspierMD
1/Hannah, we have now almost 500,000 peer reviewed published research into long covid now. “Fatigue”, “post exertional malaise (PEM)” “Brain Fog” “difficulty concentrating” are not psychiatric symptoms. They have a pathological basis and clear demonstrable abnormalities 1/
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Ted Monroe retweeted
Out Today - New edn of Virginia Woolf’s ‘On Being Ill’ with contributions from 12 contemporary writers My essay on #LongCovid is alongside essays on depression, migraine, endometriosis, the fantasy of the cure & more poetry on psychosis and anxiety Buy thenewmenardpress.com/on-bei…
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Ted Monroe retweeted
This is the dumbest article. There’s no conspiracy against mind-body techniques, most long covid patients have tried them. Meditation helped me a bit. It’s just that we want research $ going towards a CURE, not wasted on things we expect, from experience, to have small effect.
My latest feature for @WIRED is about long Covid. It focuses on extremely sick patients who believe they recovered, partially or fully, with the help of "mind-body therapies." But it is ALSO about why featuring these patients leads to the kind of reaction you see here:
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Ted Monroe retweeted
It's undeniable that many people who believe they have (or have been diagnosed with) LC see benefits from "mind-body" approaches, and that should be discussed. However, below I'll transcribe a reply to the article that I think is the main flaw in coverage like this.
Jun 1
Six years since the height of the pandemic, the scientific community remains baffled by long Covid. But there might finally be a way forward for long Covid treatment—if only you were allowed to talk about it. wired.com/story/the-painful-…
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Ted Monroe retweeted
"The convict and the convalescent have much in common with the poet: dislodged from the normal patterns of time and space, concentrated physically in one room with a need for imaginative escape" An essay about #chronicillness and reverie tedmonroe91.substack.com/p/a… #ME #LongCovid
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Ted Monroe retweeted
May 28

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Ted Monroe retweeted
May 29
“He was indeed looking up at the stars, there’s no doubt about that––but he was also indubitably in the gutter. Wilde’s celebrated bon mot insists that some of those who are in the gutter are nonetheless looking up at the stars. Yet perhaps the formula ought properly to be reversed: some of us who are looking at the stars are in the gutter.”
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Ted Monroe retweeted
Wonderful day for a new #LongCOVID paper! Thanks to an incredible collaboration with @VirusesImmunity and brilliant work done by @keylas3, we studied the effects of injecting antibodies taken from people with LC into mice compared with what happened sciencedirect.com/science/ar… 1/
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Ted Monroe retweeted
Researchers estimate long COVID could cost the US more than $8 billion by 2027. At least 44 million Americans have reported symptoms, with lost work productivity driving over 90% of the economic burden. fortune.com/2026/05/24/long-…
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My essay on #Long Covid features in this delightful new edition of Virginia Woolf’s On Being Ill. Book comes out on 2nd June!
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Ted Monroe retweeted
May 22

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Ted Monroe retweeted
Cure ME/CFS and long COVID. Tens of millions of people are lying in dark rooms right now, waiting for someone to crack a biology that medicine still barely understands. With the right data, if AI can decode the mitochondrial dysfunction, the immune dysregulation, the broken energy metabolism, the autonomic collapse, it will have done something no institution has bothered to fund properly in years. That would be historic. Please save us.
May 22
what problem do you most hope AI will solve in the future? maybe we can help!
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Ted Monroe retweeted
Millions of people got sick, then got sicker — and then stopped getting better. They came back with normal labs. Unremarkable imaging. And the quiet suggestion that maybe the problem wasn't biological. Long COVID didn't just introduce a new illness. It exposed how modern medicine responds when suffering can't yet be measured. Modern healthcare systems struggle with: - Illness without measurable biomarkers - Symptoms that fluctuate and defy categorization - Patients — especially women — whose suffering outpaces the science - Chronic complexity in a system built for acute resolution What Long COVID revealed was already there. Patients with ME/CFS, fibromyalgia, and dysautonomia (like POTS) had been describing this reality for decades. Long COVID just made it impossible to ignore. In this essay, I explore: - Why Long COVID exposed cracks in medicine that existed long before the pandemic - How "we can't explain this" quietly became "this may not be real" - Why chronically ill patients already knew this story - How a system built for acute disease failed millions with chronic illness - Why Long COVID's research funding is catastrophically misaligned with its actual harm - And what medicine still owes the patients it dismissed open.substack.com/pub/britta…
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