Joined October 2021
- Tweets 171
- Following 67
- Followers 1,581
- Likes 203
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Pinned Tweet
24 Aug 2023
Out now: our new and updated DeSci Landscape!!
Many new projects have been added since our last update.
We aggregate data from the DeSci Wiki, so if your project is missing or needs to be updated, make sure to comment in the doc linked below.
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24 Aug 2023
Out now: our new and updated DeSci Landscape!!
Many new projects have been added since our last update.
We aggregate data from the DeSci Wiki, so if your project is missing or needs to be updated, make sure to comment in the doc linked below.
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UltraRare Bio retweeted
22 May 2023
🌐 We're excited to announce the FIRST #DeSci JOB BOARD! 🌐
Whether you're looking to build your team or participate more in the growing space, our platform is here to condense these opportunities and make it an easy process.
Check it out now on desci.world/jobs
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7 Apr 2023
Today is the last day to submit your idea to the ARPA-H Dash. The newest ARPA agency hopes to improve health outcomes and are looking for ideas!
📢 Our #ARPA-HDash is underway! 🏆 🏃♀️ Submit your idea TODAY through the online portal!
polyplexus.com/healthdash
ALT ARPA-H Dash tournament bracket abstract image
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UltraRare Bio retweeted
29 Mar 2023
The future of scientific discovery will obviously be increasingly ai-driven, automated and decentralized. molecule.to/blog/the-scienti…
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31 Mar 2023
Important milestone for the promise of base editing approaches!👇
30 Mar 2023
Today we report in @ScienceMagazine a one-time base editing treatment for Spinal Muscular Atrophy (SMA), the leading genetic cause of infant mortality worldwide, affecting ~1 in 10,000 births. science.org/doi/10.1126/scie…
PDF: drive.google.com/file/d/1H1k…
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UltraRare Bio retweeted
31 Mar 2023
Thank you for your continued support of #RareDisease, Katie! We need more allies in the media like you 🫶
30 Mar 2023
The journey to a rare disease diagnosis can be long and difficult but these four rare disease warriors are on a mission to change that. 💪
Watch my @sxsw @ChanZuckerberg conversation with @DavidFajgenbaum, @bsw5020, and @TaniaSimoncelli.
bit.ly/3Kld1BE
#ad
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24 Feb 2023
Great article about putting patients first when it comes to drug development. There are a few companies out there who are doing this.
Exciting times for the patient communities who have put so much into finding their cures. open.substack.com/pub/perlar…
by @PerlaraPBC / @eperlste
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UltraRare Bio retweeted
24 Feb 2023
The map of #DeSci by @UltraRareBio shared by @isss111 in her recent talk about BioDAOs and building for science in web3 at @DeHouseDAO. 🪩
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30 Jan 2023
Congrats to @vitadao on the raise! 🙌
Check out that molecular art by @danielyse_ 👀
Let's go, #DeSci!
🤩 We are excited to announce that we've closed a $4.1m fundraising round🌱 from strategic members including:
• @pfizer Ventures
• @ShineCapitalNYC
• @L1Digital_
• @beakerdao
• @SpaceshipDAO
• @balajis
• @bettslacroix
and many more
🧵
forbes.com/sites/johncumbers…
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30 Jan 2023
The article also features the DeSci Landscape and DeSci wiki, plus quotes from the amazing @LauraMinquini @Shamburgularara @aloktayi of @VibeBio and more!
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20 Jan 2023
20 Jan 2023
New Episode Alert 📣
Learn from mom, scientist and rare disease advocate Dr. @MadeleineOudin! We talk about her path to academia, her research studying cancer and neuroscience and more!
Link: youtu.be/MBlCAMOVhTA
Also available wherever you listen to podcasts.
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20 Dec 2022
Perlara 'walks the walk' of decentralized science, sharing their cure roadmaps with the public so that other rare disease families can learn from this important work! Check out all ten of the roadmaps in the link below 👇
cc @PerlaraPBC @eperlste
17 Dec 2022
How beautiful to see 10 cure roadmaps on its way to modeling the disease and finding a treatment. More 1-to-N coming through. Thanks @PerlaraPBC @eperlste open.substack.com/pub/perlar…
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UltraRare Bio retweeted
16 Dec 2022
A few great DeSci resources include:
-@ethereum's DeSci overview
-@science_b0's community
-The Desci Landscape Map by @JocelynnPearl & @danielyse_ at @UltraRareBio
x.com/UltraRareBio/status/15…
What other DeSci resources do you think are awesome and should be added to the list?
14 Oct 2022
It's here! Your brand new DeSci Landscape!
Updated 10/14/2022 by @danielyse_ and @JocelynnPearl input from the community.
And once again we're seeing an amazing expansion of DAOs, projects, and categories.
Let's check out who's here 👀
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20 Dec 2022
Amazing to hear stories like Susannah's! make sure to check out the @n_lorem foundation - they are truly miracle workers!
19 Dec 2022
Susannah, a nano-rare child, receives personalized medicine with the hopes to halt her neurodegenerative disorder. Her experimental medicine was created by n-Lorem to address her unique genetic mutation; the ultimate in personalized medicine. NYT exclusive linktr.ee/nlorem
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UltraRare Bio retweeted
29 Nov 2022
You can learn more about the story of @PerlaraPBC in this conversation we did for UltraRare the Podcast
cc @UltraRareBio @eperlste #DeSci
podcasts.apple.com/us/podcas…
29 Nov 2022
I founded @PerlaraPBC in 2014 as the first biotech PBC.
9 years 2 pivots later the business is not only profitable but growing and the first patient in a Phase 3 pivotal study sponsored by our first joint venture and family-led biotech @epalrestat will be dosed next week. 🧵👇
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18 Nov 2022
Kicking off our ART NIGHT 🎨🖌️
15 Nov 2022
Mark your calendars for November 17th at 5pm PT / 8pm ET for a @Web3WomenInSci SciArt Happy Hour with @UltraRareBio!!
Join us for a night of science-inspired painting 🎨, drawing, drinks 🍸, and catching up before the holidays pick up!
discord.com/invite/P7kPtqRfJ…
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18 Nov 2022
Talking about animal friendships and animal forms, and why everything becomes a crab: popsci.com/story/animals/why…
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