115 Photos and videos
Pinned Tweet
11 Jan 2017
Worldwide #ALS/ #MND foundations & researchers work together to understand the genetic basis of ALS & find a cure projectmine.com/about/
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21 Jan 2022
This morning over 50 researchers met online for the latest research updates, during a #ProjectMine science meeting! Knowledge on these new findings help to further accelerate research to understand the #genetic basis of #ALS
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13 Jan 2022
Researchers from #ProjectMinE have identified 15 genetic risk profiles for Amyotrophic Lateral Sclerosis (ALS) This leads to important new insights regarding #ALS. Read all about it on our website projectmine.com/largest-gene…
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11 Dec 2020
Honoured to receive the #HealeyCenterAward today at the @mndassoc symp! Started in 2014 by ALS patients, MinE is now the largest single disease whole genome sequencing project in the world. A big thanks to everyone that made this possible #MakeItYours
ALT ALS patients Robbert Jan Stuit, Bernard Muller and Garmt van Soest, who founded Project MinE
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4 Dec 2020
Research updates shared between more than 40 researchers in online #ProjectMinE Science meeting today. Updates on new findings help to further accelerate research to understand the genetic basis of #ALS
ALT Researchers update each other during the online Science meeting today
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23 Nov 2020
We are saddened to hear of the passing of Pat Quin. As co-founder of the #IceBucketChallenge his inspiration helped to kickstart #ProjectMinE to obtain the first whole genomes. Since them Project MinE has contributed to the discovery of several ALS-genes
23 Nov 2020
Pat Quinn, who helped raise $220 million to fight ALS by promoting the Ice Bucket Challenge in 2014, died on Sunday. He was 37. nyti.ms/337IaCF
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21 Oct 2020
Help us to find more ALS genes and to work towards therapies for #ALS. Donate to #projectMinE projectmine.com/donate
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15 Sep 2020
To understand the genetic basis of #ALS and to ultimately find a cure for this devastating, fatal neuromuscular disease, Project MinE aims to analyse the DNA of at least 15,000 ALS patients and 7,500 controls. projectmine.com/
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14 Aug 2020
We are a collaboration of researchers & associations in 20 countries. Together we are speeding up ALS research! ALS centres around the globe are welcome to join #projectMinE projectmine.com/information-…
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27 Jul 2020
Two recent @NEJM studies on genomic therapies for #ALS patients show that genetic discoveries can directly lead to the development of genomic therapies for ALS patients. This reinforces the relevance of #ProjectMinE to patients with ALS. projectmine.com/genomic-ther…
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15 Jul 2020
More than 200.000 people worldwide are living with ALS. Project MinE is a large-scale research initiative devoted to discovering the genetic cause of ALS. The goal is to identify genes that are associated with ALS. Make a donation or start a campaign today projectmine.com/campaigns
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18 Jun 2020
A new breakthrough from Project MinE! We show that a ‘repeat expansion’– an abnormal repetition of a stretch of DNA – in the ATXN1 gene increases the chance of developing ALS. Our findings are published in @braincomms. Read more about our results here: projectmine.com/atxn1-a-new-…
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Project MinE retweeted
8 Jun 2020
Tazelaar et al. show an association between intermediate ATXN1 repeat expansions and ALS, possibly via mislocalization of TDP-43, emphasizing the role of polyglutamine expansions in the pathophysiology of ALS bit.ly/30r9tHk @_Makeityours @LeonardvandBerg @AmmarAlChalabi
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3 Jun 2020
#ProjectMinE is a patient-¬driven groundbreaking genetic ALS research. The project is a worldwide collaboration between ALS centres and foundations. projectmine.com/
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22 Apr 2020
Help us raise more funds by starting your own campaign. Need inspiration? Check out the current campaigns. projectmine.com/campaigns/
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2 Apr 2020
More and more countries join this groundbreaking genetic ALS research. So far, we collected 10.605 DNA profiles! projectmine.com/status/
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10 Mar 2020
Such large-scale genetic research into the origins of #ALS is unprecedented! As such, we are fully committed to making a revolutionary breakthrough in the search for the cause of #ALS. But, to reach our goals, we need your help. projectmine.com/about/
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20 Feb 2020
Make a donation today! 100 percent of all donations to Project Mine will go directly towards the mapping and analysis of DNA profiles. projectmine.com/
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31 Jan 2020
Our DNA sequence contains a complex genetic code. Determining which DNA variants relate to #ALS is very challenging. Project MinE researchers all around the globe are collaborating to overcome this challenge. projectmine.com/project-mine…
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29 Jan 2020
To understand the genetic basis of #ALS and to ultimately find a cure for this devastating, fatal neuromuscular disease, Project MinE aims to analyse the DNA of at least 15,000 ALS patients and 7,500 control subjects. projectmine.com/
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