SICK WITH M.E SINCE 1996. CAUGHT LYME IN 2014. NO TREATMENT FOR EITHER. EVERYONE DESERVES TREATMENT 💙💚
Joined April 2009
- Tweets 21,057
- Following 4,333
- Followers 2,219
- Likes 9,606
906 Photos and videos
18 Apr 2024
18 Apr 2024
How many more people with #SevereME have to die before @NHS @NHSuk @RCGP @rcpsych and many more medical professionals take M.E seriously?
Learn about Myalgic Encephalomyelitis (most medics haven't)
Adhere to @Nicecomms M.E guideline (They know more than you)
#SaveCarlasLife
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18 Apr 2024
#SaveCarlasLife #exposeme @VictoriaAtkins
@SeemaMalhotra1 @NickRogersLDN @wesstreeting
@mimsdavies @sajidjavid @allanofhallam @doctorpallavi
18 Apr 2024
No one should feel tortured at the hands of medical professionals. While drs debate if her condition is psychological, Carla is suffering horrifically, has repeatedly lost consciousness & had seizure-like events that the hospital is ignoring #SaveCarlasLife #ExposeMENow @gmcuk
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18 Apr 2024
#SaveCarlasLife #exposemen @pscomm @SyedKamall @GlenysThornton @IloraFinlay @JimBethell @BaronessRos
@MRitchieSD @JuliaCumberlege
18 Apr 2024
No one should feel tortured at the hands of medical professionals. While drs debate if her condition is psychological, Carla is suffering horrifically, has repeatedly lost consciousness & had seizure-like events that the hospital is ignoring #SaveCarlasLife #ExposeMENow @gmcuk
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18 Apr 2024
West Middlesex Hospital claim “staff are committed to following…NICE guidelines”. Clearly not true in Carla’s case, in fact they seem to be actively flouting them. Action is needed urgently to #SaveCarlasLife ! #ExposeMEnow @PSCommissioner @PHSOmbudsman @ptsafetyNHS
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18 Apr 2024
Carla’s treatment is worryingly similar to that of Merryn Crofts & Maeve Boothby who also suffered terribly in hospital with severe MECFS before their tragic deaths. NHS MUST create a protocol for severe ME @victoriaatkins #SaveCarlasLife #ExposeMEnow organise.network/actions/pet…
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18 Apr 2024
Karen, Millie & now Carla, when will MECFS be treated as the serious multi-system disease it is? This is life or death, follow NICE guidelines! #SaveCarlasLife #ExposeMEnow @gmcuk @RCPhysicians @rcpsych organise.network/actions/pet…
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18 Apr 2024
Despite undisputable biological evidence of severe neuroimmune disease MECFS, NHS cont’ to psychologise & fail severe patients like Carla #SaveCarlasLife @VictoriaAtkins @wesstreeting @gmcuk @rcpsych @ptsafetynhs We DEMAND a protocol 4 severe ME! organise.network/actions/pet…
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18 Apr 2024
Carla’s ordeal echoes tragic deaths of Merryn Crofts & Maeve Boothby O'Neill. NHS STOP abusing & murdering people w/severe MECFS #SaveCarlasLife #ExposeMEnow @gmcuk @RCPhysicians @VictoriaAtkins@SeemaMalhotra1@rcpsych @guardian @thetimes thecanary.co/uk/analysis/202…
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18 Apr 2024
Carla’s drs ignore NICE guidelines & psychologise her ME This isn’t the first time NHS has failed severe ME patients. Action needed #SaveCarlasLife #ExposeMEnow @gmcuk @PSCommissioner @VictoriaAtkins thecanary.co/uk/analysis/202…
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18 Apr 2024
Noone should feel tortured at the hands of HCP’s. While drs debate if her condition is psychological, 23 year old Carla is suffering horrifically, has repeatedly lost consciousness & had seizure-like events that the hospital is ignoring #SaveCarlasLife #ExposeMENow @gmcuk
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18 Apr 2024
Losing consciousness, stroke-like symptoms, seizures - Carla who has v.severe MECFS & orthostatic intolerance needs urgent help, instead Drs ignore experts, cause suffering with light & sound & cancel referrals. This MUST change NOW #SaveCarlasLife @rcphysicians @PSCommissioner
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18 Apr 2024
How many more young women need to die for NHS hospitals to stop abusing severe ME patients and follow the NICEGuidelines? One day the medical community will look back at these tragedies with deep regret #SaveCarlasLife #ExposeMEnow @gmcuk @rcphysicians @rcpsych
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18 Apr 2024
Imagine being so sick it’s agony to eat, going to hospital for help, instead doctors cancel vital referrals, ignore experts’ instructions & cause MORE pain, whilst you rapidly deteriorate to seizures & unconsciousness because they think MECFS is psychological #SaveCarlasLife
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18 Apr 2024
NHS hospitals must stop abusing #SevereME patients. 23 year old Carla is deteriorating rapidly in hospital due to their continuous psychologising of her very severe ME #SaveCarlasLife #ExposeMEnow @gmcuk @rcphysicians @rcpsych
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18 Apr 2024
17 Apr 2024
Thank you SO much to @fionarh289 & others for putting together a Google doc with sample tweets all the links you need & people to tag for tomorrow's #SaveCarlasLife #ExposeMENow Twitterstorm starting at 11am with us livestreaming from outside the hospital.
docs.google.com/document/d/1…
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18 Apr 2024
18 Apr 2024
Just a reminder of why we're doing what we're doing today @GeorgeMonbiot @TimesONeill @iEllieFry @BBCHughPym #SaveCarlasLife #ExposeMENow
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supportinginvestinme retweeted
18 Apr 2024
Just a reminder of why we're doing what we're doing today @GeorgeMonbiot @TimesONeill @iEllieFry @BBCHughPym #SaveCarlasLife #ExposeMENow
17 Apr 2024
CW: distressing
We want you to meet Carla #SaveCarlasLife #ExposeMENow
With family's permission we're sharing some videos of her experience in West Middlesex hospital.
This first video is what happens when she is exposed to bright light. Staff won't cover the door window.
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18 Apr 2024
18 Apr 2024
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18 Apr 2024
18 Apr 2024
How many more young women need to die for NHS hospitals to stop abusing severely ill #MyalgicEncephalomyelitis
patients and start following NICE #MECFS guidelines? Patients need politicians and health leaders to act now. #SaveCarlasLife #ExposeMEnow @gmcuk @rcphysicians
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