Jewish (free Palestine), #Disabled, #chronicallyill, lefter than leftist, and unfortunately a #poet. WEAR AN N95.
Joined March 2009
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Pinned Tweet
23 Aug 2023
I spoke at the #HICPAC meeting yesterday. I’m a severely immunocompromised, complex patient who caught RSV, pneumonia & COVID twice in the past 9 months from medical care. I’m not alone. 849 patients signed my letter earlier this year. chng.it/Jp9rq8Bvhp @PeoplesCDC
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14 Sep 2023
Activated mast cells from COVID
—>
Increased permeability of the blood brain barrier
—> neuroinflammation
—> autoimmune
Perhaps MS is a post-viral sequelae of COVID and not just Epstein Barr or COVID reactivates latent Epstein
Barr infection
13 Sep 2023
Why did the MS reddit community /r/MultipleSclerosis more than doubled since 2020?
🤔🤔🤔🤔🤔🤔
ALT Subreddit chart of the subreddit /r/MultipleSclerosis Showing the evolution of the number of subscribers since 2013. In 2020 the subscriber count was 15000, and from 2020 to now it gained over 25000 subscribers.
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14 Sep 2023
If you can afford masks, you should be also donating masks to those who can’t. Masks should be free, but they aren’t. Take extra N95s with you to offer cashiers, etc.
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SUPPORTING PATIENTS MEAN REQUIRING MASKS
14 Sep 2023
We're mobilizing a whole-of-country effort to cut America’s cancer death rate by half in the next 25 years and boost support for patients and families.
And it starts with a government-wide effort like this first-ever Cancer Cabinet to unleash every asset within our power.
ALT President Biden speaks at his Cancer Cabinet meeting.
ALT President Biden convenes a Cancer Cabinet meeting.
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Liv retweeted
13 Sep 2023
oh you’re in a relationship? which one of you has haunting nighttime anxiety where you contemplate the world and death and your ultimate purpose and which one of you falls asleep in 10 seconds
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14 Sep 2023
Why is nobody talking about the fact that half the leaves in Philly are dead and falling off the trees well before fall, likely because of the air quality earlier in the summer
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14 Sep 2023
And the reason ChatGPT could do so likely has something to do with the extensive documentation those of us with TC and OTC have done.
13 Sep 2023
3 years, 17 doctors with no answers to explain for this boy’s chronic pain, dragging of legs… etc.
ChatGPT provided a correct diagnosis of Tethered Cord Syndrome
today.com/today/amp/rcna1018…
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Liv retweeted
11 Sep 2023
...the toll of just trying to survive being sick takes so much energy and so many psychological resources that even if you do get to a place (like I am lucky to be in right now) where you're on treatment that works, you're doing better, your mental health might be ATROCIOUS
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Liv retweeted
11 Sep 2023
September 11th is how I learned that in emergency situations they’re trained to leave disabled people in the building.
Around the same time my middle school had a fire drill and they did just that.
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10 Sep 2023
I’m more miserable after the acute phase of (my 4th) #COVID infection than during it. Severe GI stuff, headaches and migraines every day, dystonia in my hands, chest and back (kidney?) pain. #immunocompromised
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Liv retweeted
8 Sep 2023
bizarre that if we got human feces on any bodypart besides our butt, we would never think that wiping it off with toilet paper would be sufficient.
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Liv retweeted
8 Sep 2023
There are actually hella leftists organizing around COVID, there are mask blocs popping up in every major city, the issue is these leftish institutions w any money, power, and run by UMC white ppl are doing nothing and silent
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Liv retweeted
8 Sep 2023
Thank you! I was particularly thinking of @chronicallyadyk's testimony at the #HICPAC meeting as I wrote this part about #ethics of HCWs refusing to #mask and #ADA accommodations. cc @MassGenBrigham @ericashenoy @CDCDirector forbes.com/sites/judystone/2…
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Liv retweeted
3 Sep 2023
hey, getting sick with a viral infection doesn’t “strengthen” your immune system! it actually makes you more susceptible to other infections!
hope this helps!
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Liv retweeted
3 Sep 2023
I think the one thing most non-disabled people fail to recognize about the medical system is that as soon as they get sick, and I mean big sick, they most likely won’t be able to get adequate care unless their condition is common and obviously treatable.
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Liv retweeted
1 Sep 2023
Got fired from an oral surgeon’s office today.
Showed up for surgery-assistant was visibly very sick-coughing & sneezing, no windows were open, no HEPA in room, no N95s.
He knows my medical history- promised safety.
Today, he shamed me and fired me for expressing concern.🖕
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