Pharmacy professionals who care for people with cystic fibrosis
Joined March 2016
- Tweets 221
- Following 239
- Followers 425
- Likes 221
22 Photos and videos
Euro CF Pharmacy Group retweeted
6 Jun 2024
First sessions of the day “Psychosocial Care in the CFTR Modulator era” - Dr Edwina Landau mentioning that it’s essential to involve the CF Pharmacist in managing psychosocial side effects of Modulators. Also a hot topic at the @ecfpg meeting yesterday. @ukcfpg
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Happy #RxTechDay to all the wonderful pharmacy technicians working to provide better care for people with Cystic Fibrosis
A small and select, but growing group! You’re brilliant and you’re invaluable to us all
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Euro CF Pharmacy Group retweeted
21 Sep 2022
One for everyone affected by CF personally and professionally to complete @ukcfpg
We know that getting the view of the CF community has helped shape research over the last few years… now let’s take it further!
21 Sep 2022
Survey 2 is now LIVE! surveymonkey.co.uk/r/qCFsurv… the researchers have done their bit and we present to you the 71 questions that we would like you to go through, select your favourites and then rank your Top10. Please share far and wide
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11 Jun 2022
And that’s a wrap 🎬! Really wonderful being back face to face @ECFSConference #ECFS2022 & great to see lots of pharmacy teams presenting their work. Thank you Rotterdam! @ukcfpg @SianABentley @NicolajshawShaw
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10 Jun 2022
Tablet based audiometry in pwCF to monitor ototoxic effects of aminoglycosides - well done ECFPG pharmacists @Shereenyb and Jamie C 👏🏻 @ECFSConference @SianABentley @NicolajshawShaw
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10 Jun 2022
Edwin, one of our Dutch members giving a brilliantly patient centred talk (and entertaining!) talk on polypharmacy in the CFTR era @NicolajshawShaw @SianABentley @ECFSConference @ukcfpg
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9 Jun 2022
Busy day at @ECFSConference today…. Great seeing presentations from many of our members, and big plans ahead for ECFPG - drug app on the way & planning educational syllabus for pharmacy teams working with pwCF @SianABentley @NicolajshawShaw @ukcfpg
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9 Jun 2022
Sorry you couldn’t be here face to face @APaedPharmacist but here virtually at least 👏🏻👏🏻
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Euro CF Pharmacy Group retweeted
9 Jun 2022
Monica our hard working pharmacy technician @ECFSConference in Rotterdam with her poster on how she been supporting patient medication 💊 supply’s @CFLeeds @LeedsHospitals
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Euro CF Pharmacy Group retweeted
#ECFS2022 @ECFSConference Day 1 presenting @Msluclocket & #cysticfibrosis MDT colleagues discussing impact/outcomes of switching from one #PrecisionMedicine to another in #paediatric population @cftrust @cf_care @BWC_NHS @BCHPhysio @BWC_dietitians Great work everyone!
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7 Jun 2022
Tomorrows the day! Safe journey everyone & look forward to seeing colleagues at our Euro CF pharmacy meeting tomorrow 🤗 @SianABentley @NicolajshawShaw @ukcfpg
4 May 2022
Only 5 weeks to go 🎉🎉 Lots to catch up on at @ECFSConference #ecfs2022 @ukcfpg @NicolajshawShaw @SianABentley
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4 May 2022
Only 5 weeks to go 🎉🎉 Lots to catch up on at @ECFSConference #ecfs2022 @ukcfpg @NicolajshawShaw @SianABentley
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4 Feb 2022
Roll up roll up.. it’s (hopefully) back to face to face conferences again! Pharmacy meeting back to its usual slot on Wednesday (8th June) afternoon - be great to see you all again @ukcfpg @SianABentley @NicolajshawShaw
The registration for the 45th European Cystic Fibrosis Conference, which will be held on 8-11 June 2022 in Rotterdam, the Netherlands, is now open! The conference is organised as an in-person event. More information on: ecfs.eu/rotterdam2022/regist…
#ECFS2022 #CysticFibrosis
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Euro CF Pharmacy Group retweeted
26 Jan 2022
@ukcfpg @ecfpg really important refresh of an instrumental piece of work for defining research priorities for CF care. Literally takes 5 minutes to complete. #QuestionCF @patrickiwilson @NicolajshawShaw
26 Jan 2022
Where are our healthcare professionals at? We’re keen to hear what you think should stay, what should go and what could be added in. #QuestionCF #cysticfibrosis
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Euro CF Pharmacy Group retweeted
20 Jan 2022
And we’re live! surveymonkey.co.uk/r/questio… please let us know if the research priorities are still relevant 5 years on or if there’s something else research should be looking at! Please RT
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Euro CF Pharmacy Group retweeted
24 Sep 2021
Fantastic to collaborate with a great group of CF pharmacists on this project @ukcfpg @ecfpg . Next step: to embed adherence data in the prescribing process @cfhealthhub 😁 authors.elsevier.com/c/1doG7…
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Euro CF Pharmacy Group retweeted
12 Oct 2021
Annual @ukcfpg study day is happening today (virtually of course). Really looking forward to seeing all of the speakers today even if we can’t catch up ‘off screen’. Thank you to @MariLeaDavies1 and Douglas for organising what a fantastic programme of speakers
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Euro CF Pharmacy Group retweeted
31 Aug 2021
Happy Tuesday! First publication from my @NIHRresearch / @NHS_HealthEdEng pre doctoral fellowship! @janedaviescf @ImperialNHLI Clinical PK & dose recommendations for posaconazole gastroresistant tablets in children with CF academic.oup.com/jac/advance…
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16 Jun 2021
A huge thanks to @ECFSConference for a great conference. Although we’d all have loved to be in Milan we reached a wider audience with a huge turnout for our Pharmacy meeting - 105 attendees from 21 countries 🤩. See you in Rotterdam next year! @SianABentley @NicolajshawShaw
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