The United Kingdom and Ireland Cystic Fibrosis Pharmacy Group. Pharmacists and Pharmacy Technicians dedicated to the care of all people with cystic fibrosis.
Joined April 2016
- Tweets 292
- Following 196
- Followers 330
- Likes 175
Photos and videos
UK CFPG retweeted
6 Jun 2024
Listen from 54:04 to hear Hannah, a parent of a child with CF, Amber, a student with CF, and our Director of Medical Affairs Dr Keith Brownlee talk about the difficulties many are having sourcing Creon on @bbc5live
➡️ ow.ly/pt4W50SaJAE
#cysticfibrosis #cfnews #creon
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UK CFPG retweeted
7 Jun 2024
So pleased to present the results of part 2 of the AtOM CF Study at @ECFSConference #ECFS2024 thanks to all the patients who took part from @CFLeeds and @cf_newcastle @NIHRresearch @MedicinesDavid @DrIanKellar @nikki_rou
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UK CFPG retweeted
22 Dec 2023
22 Dec 2023
Breathe: Pharmacists deliver high-level and impactful medicines-related care that improves patients’ outcomes and healthcare experience. This is most evident in respiratory medicine when they are imbedded within the MDT and able to also support colleagues. bit.ly/3sd8sD9
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UK CFPG retweeted
4 Dec 2023
Thanks @cftrust for a great workshop on CF & ageing (and a yummy lunch!)
Coming home with lots of new research ideas💡@NUH_CFUnit @NUHPharmacy @ukcfpg
#RespIsBest
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UK CFPG retweeted
10 Nov 2023
We will be commenting @ukcfpg as registered stakeholders, but encourage all group members to read and comment on the guidance
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UK CFPG retweeted
Christian is a #pharmacist. He can do a #genetic test for children with cystic fibrosis. That test means he can prescribe antibiotics with confidence.
It's another example of how #genomics is changing the way #pharmacists work.
🧬👉bit.ly/48tHIP5
#WorldPharmacistsDay
ALT Image celebrating World Pharmacist Day. The image talks about a genetic test which can identify which cystic fibrosis patients have a genetic change which means that they would react badly to a common antibiotic. That reaction would cause permanent hearing loss.
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Great to see Rianna flying the flag for pharmacy technicians delivering research on CF
22 Sep 2023
Here is Rhianna and Caroline presenting their work on medicines optimisation in @NUH_Respiratory at @APTUK1
#RespIsBest
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UK CFPG retweeted
5 Sep 2023
NEW publication!📢📢 Delighted that the first empirical study from my doctorate has been published in the Psychology & Health journal today (first 50 online copies free) @HealthPsyStaffs @NUH_CFUnit @DrJenTaylor246 @tandfpsychology #ProfDoc #Healthpsych 👉 tandfonline.com/doi/full/10.…
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UK CFPG retweeted
8 Jun 2023
CFTR modulators for ‘non-approved’ variants - a compassionate use programme in France…a huge need for a similar programme in the UK @NHSEngland @ukcfpg @cftrust
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UK CFPG retweeted
7 Jun 2023
A refresh of the top 10 research priorities in cystic fibrosis | Thorax thorax.bmj.com/content/early…
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UK CFPG retweeted
23 May 2023
If anyone from the @ukcfpg group is struggling to access the NHS Networks message board on the previous website, please see the link to the new website on @NHSnetworks twitter feed. If you scroll down the page on their new website, it offers a link to the old website.
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UK CFPG retweeted
19 May 2023
NEW EPISODE - Cystic Fibrosis
A joyful story this week when we chat to Louise Jenkins - who has cystic fibrosis - about growing up and trying to lead a normal life with this serious and unforgiving condition and the transformative effects of recent innovations in drug therapy.
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Two of our own and best authoring this
17 May 2023
Cystic fibrosis: management and monitoring of respiratory manifestations #pharmacyCPD
pharmaceutical-journal.com/a…
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UK CFPG retweeted
13 Apr 2023
New job alert! Fantastic opportunity to join @NUH_CFUnit as Local @cfhealthhub Behaviour Change Lead in cystic fibrosis @NUH_CFUnit 👉 bit.ly/415rYhe Please DM me for more info!😃 @acpcf @divhealthpsych @ukcfpg @bda_cf @NUHTherapies @ResearchNuh @NUH_Respiratory @cftrust
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UK CFPG retweeted
7 Apr 2023
7 Apr 2023
NHS pharmacists and techs involved in genetic or genomic testing or interpreting results (now or in the future)? Free taught course in genetic counselling now open for applications
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UK CFPG retweeted
27 Dec 2022
Might be of interest @ukcfpg @UKCPAResp
27 Dec 2022
Check out our recent review focused on human airway epithelium responses to invasive fungal infections! mdpi.com/2032890 #mdpijof via @JoF_MDPI
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UK CFPG retweeted
24 Nov 2022
Great to see this poster up at #BTSWinter2022: results of a national #CFHealthHub survey to understand the experiences of adults with #cysticfibrosis of obtaining repeat supplies of nebulised medicines. Well done @APaedPharmacist @sophie_doph @leaping_badger et al! @ukcfpg @acpcf
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UK CFPG retweeted
23 Nov 2022
Delighted to share the refreshed James Lind top 10 research priorities for cystic fibrosis (CF). Thanks to the >1400 people who made this happen. Let’s go to work! @questionCF @ebChildHealth @CFAware @ThoraxBMJ @cftrust
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