Jun 11
realtalkms.com/458: What does "best care" look like for someone living with advanced MS? It's a question every healthcare team should be asking. Dr. Stephen Krieger (@SKriegerMD) shares his thoughts on #RealTalkMS.
#MSAwareness #Neurology #MultipleSclerosis #MSCommunity #AdvancedMS
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27 May 2025
DAY 5(Midnight class- 1hr and longer mins)
Learnt the difference between BasicMS and AdvancedMS, the Timeframe that works best for each MS, what needs to occur for a point to be classified as an external point and entry rules(to be emphasized next class)
Looking forward to next class already- so far so eye opening😂(this is the real thing)
26 May 2025
DAY 4(Midnight class- lost track of time)
Understands the concept of Risk Management (RM in web3 is so different from FX istg😂) and Entry Types(Aggressive Entry and Confirmation Entry- I know I will be a confirmation entry girlie)
Understands using FVG as entry, TP and SL(a versatile baddie imo) but POI is equally important.
Quite fun learning about the dynamics of entries, SL and TP🤭
So far so fun🫶🏾.
(Real work begins tomorrow skdjsksdjs)
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"I’m here and still living a fulfilled life, no matter what gets thrown at me."
Jasmine lives with #AdvancedMS at just 23 years old. Find out how she finds joy in the connections with her family, friends and healthcare professionals.
pulse.ly/hxaafxabwo
#MultipleSclerosis
ALT Text reads, Advanced MS at 23 years old: my story - Jasmine. Image shows Jasmine in a powered wheelchair
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8 May 2024
I won't be speaking about #ChariotMS... Unless you ask! chariotms.com #AdvancedMS #MS chariot@qmul.ac.uk @mssocietyuk @NIHRresearch @mssociety @Barts_Charity @MarkWebb_ @themsguide @Paul_Griffin1 @aid4disabled local.nihr.ac.uk/news/questi…
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4 Sep 2023
Sat in the car waiting to pick my wife after work after the school was shut for 8wk summer holiday. Car said 28c. Feels like my legs are trapped in a vice.
#MultipleSclerosis #AdvancedMS
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7 Jul 2023
Catheters, cog fog & carers: Life with #AdvancedMS multiple-sclerosis-research.… @the_MSBlog @RachelHorne19 @aid4disabled @themsguide @RoxyMSAdvocate @MSTrust @mssocietyuk #ChariotMS www.chariotmscom @QMUL @Barts_Charity @NIHRtakepart @NIHRresearch
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7 Jul 2023
Thank you @StuStepsUp Marie for inspiring work @mssocietyuk @mscymru Ambassadors for people with #MS #AdvancedMS Check out chariotms.com #ChariotMS @QSMSCENTRE @MsStat2 @OctopusTrial @AttackMS_trial @the_MSBlog #MS @RachelHorne19 @themsguide @aid4disabled #NHS75 #GIG75
5 Jul 2023
Recently retired nurse & general manager and MS ambassador @StuStepsUp talks candidly about his experience of working in the NHS with MS over the last 40 years and how demand has changed vastly over that time.
#NHS75 #GIG75
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25 May 2023
Wonderful @emmahgray steering the @mssocietyuk #StopMS panel @RCPhysicians #ProgressiveMS #AdvancedMS #AttackMS
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25 May 2023
Ailsa Guidi about the compounds being tested in #progressiveMS @OctopusTrial: "That repurposed drugs are being used makes sure they are safe" Same applies to #ChariotMS👏 @mssocietyuk chariotms.com #AdvancedMS @mssocietyuk @mssociety @MSTrust @shiftms
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25 May 2023
Ailsa Guidi, living with #MS for >25 years, speaking at the #StopMSAppeal annual lecture @RCPhysicians about her experience becoming a #trial participant for the first time @MsStat2 #ChariotMS @OctopusTrial @mssocietyuk @mssociety @MSTrust @shiftms #AdvancedMS @RachelHorne19
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14 May 2023
#ChariotMS spontaneously teaming up today with @Danielsvoyage28 running & rolling the @terenure5mile in @Dublin_ie Of course, Dan beat me to the line helped by fantastic engine @allirelandref #inclusion @SotosSyndrome #AdvancedMS #MS @mssocietyuk @MSIRELAND
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21 Apr 2023
🚨#ChariotMS #AdvancedMS #RehabMS Join us for an hour of information & exchanging experience with progressive #MS #trials chaired by the @mssocietyuk Any questions @AndreaStennett @Kimberley_AP @cannedpix @SvetlanaMilca @Kaiu24 @themsguide @MarkWebb_ @aid4disabled @charlotte2153
21 Apr 2023
If you are interested in hearing some of the latest updates about #MultipleSclerosis research, @KlausSchmierer and the ChariotMS team are hosting a FREE webinar event for anyone to attend on Thurs 27 April 2023!
Follow the link to register your interest: eventbrite.co.uk/e/actionabo…
ALT Image shares information from the Eventbrite webinar information: "You are invited to join us for a remote webinar on Thursday 27th of April 2023 from 6 pm on Zoom to learn more about some of the latest advances in MS research, including the exciting ChariotMS trial! • Hear updates from the MS Society about the clinical trials getting us closer to stopping MS • Learn about the latest hot topics, like ageing and MS, and rehabilitation for advanced MS • Hear from people with MS who are taking part in trials • Find out what's involved in taking part in the Chariot MS study • Ask the experts! This is a free webinar and is open to the general public. The webinar will be chaired by Sophie Quick, Research communication officer at the MS Society. Once registered, you will receive an email with the link."
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30 Mar 2023
Right on schedule #ICT #AdvancedMS
29 Mar 2023
We got what we were looking for here in terms of the ITHs being protected until we took out the LTL at $26,583. Now it's time to attack the LTH #ICT #AdvancedMS
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29 Mar 2023
We got what we were looking for here in terms of the ITHs being protected until we took out the LTL at $26,583. Now it's time to attack the LTH #ICT #AdvancedMS
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16 Mar 2023
Sure what else would ya be doing? #nurseprescribing #prescribinginpractice #siponimod #advancedms #msnurse
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Thousands of families are affected by advanced #MS. Many feel they don't have enough support and worry about the impact it will have. A donation from you can ensure people living with #advancedMS receive the urgent access to health services they deserve ow.ly/iGn550FiCac
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More than 40,000 people live with #advancedMS in the UK. Many feel they don't have access to health services they greatly need.
It is vital that people with advanced #MS receive this care to improve their quality of life. To make a difference, visit ow.ly/irOL50FdjZg today
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There are around 40,000 people living with #advancedMS across the UK. Many do not have enough access to vital healthcare and support. Our Advanced #MS Champions offer specialist care specifically for people with advanced MS.
Find out how you can help: ow.ly/o3dQ50F4D6g
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16 Apr 2021
The MS Trust Advanced MS Champions are guiding care for people facing multiple, complex and ongoing MS symptoms.
You can learn more about the vital programme here - fal.cn/3eKZo
@MSTrustforHPs #mstrust #advancedms #multiplesclerosis #ms #mscare #mssupport
Advanced MS is a description of the level of the burden and difficulties that #MS is causing you, rather than the type of MS you have. Find out more about living with advanced MS here: ow.ly/pNzr50E5kyw
#multiplesclerosis #advancedms #advancedmultiplesclerosis
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