We want to thank RARE Revolution for giving us the opportunity to take over their socials today, to help spread awareness of what MSA is and the devastating affect it has on people lives. If you would like to learn more and support our mission you can follow us on social media at: @MSAtrust on Twitter/X @msatrust on Instagram @Multiple System Atrophy Trust on Facebook @msatrust.bsky.social on BlueSky Multiple System Atrophy Trust on LinkedIn #RARERevolution #Multiplesystematrophy #MSA #MSATrust @msatrust

MSA is an atypical parkinsonian disorder, meaning its initial symptoms are often similar to Parkinson's. Around two thirds of people with MSA first receive a diagnosis of Parkinson’s. Until recently MSA was thought to be a very rare disease. As we learn more about the disease, it has become easier to recognise and diagnose, though for many people it can still take several years to diagnose. Recent research suggests it affects about 4.5 people per 100,000 so that at any one time there are almost 3,500 people living with MSA in the UK and Ireland. Parkinson’s disease is about 45 times more common. MSA usually starts between the ages of 40 - 60 years, however it can affect people as young as 30. It affects men and woman indiscriminately. Whilst we understand what happens in the brain, we do not know what causes MSA. That is why we are one of the principle funders of MSA research. #MSA #MSATrust #Parkinson's #parkinsonian #Research @msatrust

Professor Oliver Bandmann of @SheffieldBRC is to lead a new collaboration in Parkinsons disease. The latest Translational Research Collaboration will improve patient access to research and enable more targeted and personalised approaches to disease modification and therapy. The collaboration partners with four charities: @ParkinsonsUK @CureParkinsonsT @PSPAssociation @MSAtrust to improve the quality of life and outcomes for people with PD and related disorders. nihr.pulse.ly/nvqrrzvo6y

Together with the @MSAtrust we’ve launched an online course for all #healthcareprofessionals who work in #neurology or with neurological patients and would like to learn more about #multiplesystematrophy (MSA) management and care: ➡️ eu1.hubs.ly/H0sYqcK0 #MSAawarenessmonth

delighted to have collaborated again with @sedlazeck , helping advance somatic mutation calling using samples from @UCLIoN @QSBrainBank , with thanks to @MSAtrust

Tomorrow Matt, Adam & Henry aka the South Sea Scullers set off on their epic 3000 mile row across the Atlantic raising money for @CureParkinsonsT @MSAtrust @sebsfoundation We have donated a selection of sheepskin pads to help prevent any unwanted blisters & keep bums happy!

Supporting our call: @diffstrokes @DystoniaUK @epilepsyaction @FahrBeyond @HeadwayUK Hereditary Brain Aneurysm Support @HDA_tweeting Independent Neurorehabilitation Providers Alliance (INPA) @InflamNeuroUK @mndassoc @mssocietyuk @MSTrust @MSAtrust 3/x

CHARITY DONATION During 2025 our Open Age squad have had fines for various things such as being late for training, incorrect kit and everyone’s favourite "T*t of the week." We have today made charity donations of £300 to both @MSAtrust and @SturgeWeberUK Good work lads 👏

It was great to join the MSA support group in Islington to explore patient views on PEG (feeding tube) insertion, quality of care & what a national care pathway could look like. This is part of a wider project co-developing evidence-based care pathways, starting with dysphagia. While we work toward cures & treatments, listening to patients lived experience and improving care right now is just as vital! Grateful to @MSATrust for supporting this work 💬🧡 @UCLIoN @UCLBrainScience @VioricaChelban @IonSynapse

Sam watched him go from sailing the seas to struggling to walk and talk. That's why they're targeting £50k raised for: • @MSAtrust • @CureParkinsonsT • @sebsfoundation (which supports poor kids through sport)

Thank you to all who made the MSA Symposium 2025 such an incredible experience. We appreciated the opportunity to connect with attendees and participate in discussions on Multiple System Atrophy (MSA) and atypical parkinsonism. @MSAtrust @UCLIoN

Alterity extends its gratitude to @UCLIoN and the @MSAtrust for inviting us to speak at #MSAsymposium2025 last week. We remain committed to creating an alternate future for patients living with neurodegenerative diseases such as #MultipleSystemAtrophy. #MSA #ATH434 $ATH $ATHE

We’re delighted to be attending the MSA Research Symposium today to hear about some of the groundbreaking new research in MSA @MSAtrust

CEO David Stamler will present our positive #ATH434 Phase 2 results at the 3rd Annual #MSA Research Symposium, hosted by @MSAtrust and @UCLIoN. Hope to see you there! #MSAsymposium2025 #MSAresearch $ATH $ATHE

🧠 Meet the Speaker | #MSASymposium2025 We’re excited to welcome Prof Andrew Singleton (GP2 Genetics Program), who will explore how GP2 is advancing global genetics research in MSA. 🌍🧬 @UCLIoN @MSAtrust @UCLBrainScience @MichaelJFoxOrg 👉 Register: msatrust.org.uk/event/msa-re…

At MSA Health & Care Professionals Study Day, Prof Henry Houlden provided an overview of MSA offering key insights for healthcare professionals. Dr Yee Yen Goh presented on how to diagnose MSA in patients, outlining key clinical markers & diagnostic approaches. @UCLIoN @MSAtrust

@TSC_Ireland @AtaxiaFI @HDAI_ie @CavernomaIre @WS_Ireland @debraireland @cf_ireland @SMAIrelandCom @HHTireland @MSAtrust @SBHIreland @ILFA_Ireland @iCANIreland @Dravet_Ireland @NarcolepsyI @oacsireland @IrishCancerSoc @CarersIreland @DisabilityFed

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More people can now regain their voice - thanks to @MSAtrust, @MissionMSA, and @MouthCancerMCF. We’re expanding the Impact Program beyond ALS to support MSA and head and neck cancer patients with free voice AI technology. If your nonprofit works with people who could benefit from advancements in voice AI, reach out to us at impact@elevenlabs.io. Read more: elevenlabs.io/blog/impact-pr…

Thank you for reminding people that we're here to listen 24/7 through the festive period 💚