22 Jan 2025
Proud to have contributed to:
How Can #DataCooperatives Help Build a Fair #DataEconomy?
#Report
projectliberty.io/news/how-c…
#Article
mdpi.com/2624-6511/4/3/62
#Video
youtube.com/watch?v=mTT0tCix…
Looking ahead to #cooperative chats in #WashingtonDC this April!
#DataTrusts #DataCommons
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22 Nov 2024
Are there viable business models for data empowerment structures that enable collective action?
At #ProjectLibertySummit our 'data that serves' session w/ @jensmolbak explores how 'public utilities' and #datatrusts can harness data as a shared asset to deliver essential services
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10 Sep 2024
In the past decade, Lab affiliates have published several books, changed public policy at the municipal and federal levels, launched new enterprise forms such as #DataTrusts, and supported 1000s of #NPOs worldwide to integrate #DataGovernance and responsible data practices.
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21 May 2024
Really excited for this round table event today discussing all things #DataTrusts
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5 Apr 2024
How important is it to promote mechanisms for sharing data among different actors to enhance its use and reuse? Discover it in our publication 👉 bit.ly/3xqUP5O
#DataTrusts #DataCooperatives #DataPools #PublicInterfaces #ResearchPartnerships
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9 Aug 2023
What are the minimum specification essential requirements #MinSpecs for #DataTrusts/data repositories/other data collabs? @paprica_alison #HDRNCanada's @kimchspr, @docschull & others convened an int'l team to discuss/test/refine. Here's what they found: ijpds.org/article/view/2105
ALT No significant visuals. White text on an orange background reads: International Population Data Linkage Network Conference. Data Linkage Research. Informing Policy and Practice. Public Engagement & other Essential Requirements for Data Trusts, Data Repositories and other Data Collaborations.
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31 May 2023
As research evolves and data possibilities grow, we need to develop new ways of protecting and sharing health research data. Discussing all this with #datatrust project colleagues today - youth participation v important @BISDataTrust #datatrusts @jessylaurenbell @GPDT_Project
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24 May 2023
My talk at #CoDSummit3 on moving compute to the data to unlock more data sharing in government, healthcare and between competitors is now online! I’d really like some feedback from gov types (this feature is for you 😘) and the #DataTrusts folks.
youtu.be/wg9LFDiM59s
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3 May 2023
Talking #datatrusts, their impacts on governance and community participation with my friend & colleague @biancawylie cigionline.org/multimedia/da…
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11 Apr 2023
The @born_scotland and @EdiPregResearch team will be there - also @NHS_Lothian sustainable healthcare, @cmvm_research on air #pollution, #biodiversity, @GLatombe chemicals @alillyf @GroundswellCon Green spaces for health @DataTrusts how can we share data for a healthier 🌎?
11 Apr 2023
Get ready to dive into the fascinating world of environmental health with lightning talks, interactive stalls, & a welcome drink at @ourdynamicearth
Discover the impact on #pregnancy by @futuresrosy
Register:
sciencefestival.co.uk/event-…
@EdinburghUni @EdiPregResearch #Edinburgh
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21 Feb 2023
"A cooperative could offer one attractive legal structure: all citizens are members and would share in any surplus generated, the governance reports to the data subjects, not shareholders. " #datatrusts @SalusCoop
17 Feb 2023
Health data could form the basis of a UK sovereign wealth fund on.ft.com/3I40gJv
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20 Feb 2023
I guess if you want your labour to be valued, you join a union; same principles with gaining value from the data you create. Sounds good to me. #dataunions #datatrusts
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31 Jan 2023
Fantastic pictures! So looking forward to taking forward lessons learned in the Born in Scotland Data Trust project with you! @AYPHcharity @JeremySachs_ @born_scotland #datatrusts
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31 Jan 2023
Great to hear your views on data and data governance @jessylaurenbell #datatrusts @born_scotland
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30 Jan 2023
Huge thanks to everyone who took part in this, so exciting to hear your views on use of data & get your input into our work on data governance @jessylaurenbell #datatrusts
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9 Dec 2022
Can we trust trust-based data governance models?
Bart van der Sloot & @EstherKey, @TilburgU_TILT
→ doi.org/10.1017/dap.2022.36
#Trust #DataGovernance #DataStewardship #DataTrusts #DataStewards #InformationFiduciaries
ALT Image of the title and abstract of the article 'Can we trust trust-based data governance models?'
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29 Nov 2022
Finally got to this great article that explains the differences between #datasharing pools, #datacooperatives, public #datatrusts and personal #datasovereignty initiatives. Well done @minaemme,
@Abesuman, Marisa Ponti, and Max Craglia
journals.sagepub.com/doi/ful…
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13 Nov 2022
This was the animating concern behind using #datatrusts - before they became part of the data exploitation hype cycle.
12 Nov 2022
What happens to the public record of history if Twitter goes bankrupt? The platform includes first-hand accounts of the death of bin Laden, the Arab Spring, the Iranian uprising and the Russian invasion of Ukraine. By me for @techreview technologyreview.com/2022/11…
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27 Oct 2022
Fantastic focus group today at The Pregnancy and Parents Centre in (sunny!) Edinburgh, as part of our Born In Scotland Data Trust project. Helping us shape ideas for future data governance.Thx to all involved! @rr_metabolicmed @lesaangelica @born_scotland @futuresrosy #datatrusts
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13 Oct 2022
So #DataCommons can take many forms:
🏛️#OpenAccess commons
🏛️data collaboratives
🏛️data cooperatives (#DataCoops)
🏛️public data commons
🏛️#DataTrusts
🏛️data unions
🏛️common data spaces & data access bodies (see #EHDS #HealthUnion). 5/14
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