How do you get an extra dose of motivation in your workday?
At NMD Pharma, we recently had the immense pleasure of welcoming Stefan Bos, who lives with SMA, and his caregiver, Erna Speelman, who is also his mother, to our offices in Aarhus.
Stefan lives with spinal muscular atrophy (
#SMA), but, as he puts it: “I have SMA, I am not SMA.”
During his visit, Stefan met with colleagues across
#NMDPharma, toured our in-house laboratory facilities, and shared his personal story of living with SMA. He gave us valuable insights into his everyday life, what works, what does not, and what continued movement would mean to him.
Stefan also shared a message that resonated with all of us: “If you can help me keep the movement in my finger, support my voice, and support my breathing, I would be very appreciative.”
For our
#scientists and teams working to advance small-molecule drug candidates designed to enhance
#MuscleFunction and endurance in people living with
#NeuromuscularDiseases, Stefan’s visit was a powerful reminder of why individual patient stories must remain central to
#DrugDevelopment.
At NMD Pharma, we are dedicated to improving the lives of people living with neuromuscular diseases, and we value the voices, experiences, and perspectives of
#Patients and
#Caregivers. Their insights help shape how we think about research, clinical development, and the potential impact of our work.
Thank you to Stefan and Erna, for sharing your story, your valuable perspectives, and your world with us 🙏🏻
#SMA #SpinalMuscularAtrophy #NeuromuscularDisease #DrugDevelopment #RareDiseases #LifeSciences #PatientCommunity