Exec Director @OpenHumansOrg • Alum @ShuttleworthFdn • open (health|data|science|humans) • they/them 🏳️⚧️ • spouse of @cjbprime, parent, mad scientist
Joined September 2009
- Tweets 4,632
- Following 837
- Followers 1,493
- Likes 3,284
242 Photos and videos
Pinned Tweet
30 Mar 2018
Hi, I'm Mad! Welcome to my blockchain rant. Specifically: for genomes, health, and personal data.
"Why aren't you using blockchain?" they ask me. I'll tell you why!
Maybe you can RT this – or quote specific points – to inoculate other folks against fuzzy-brained BS 😞 1/16
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Mad Price Ball retweeted
10 Sep 2021
It's out! A careful description of building a community research project using highly personal information, including self-report of symptoms and wearable data, based on principles of participatory knowledge making and individual control of data.
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Mad Price Ball retweeted
27 Jun 2021
I had the opportunity to speak this morning at #ADA2021 about who (open source) closed looping is for.
My take?
It's for everyone who wants to use it, although not everyone will choose to do so. But those who choose to use it should be able to access it. Here's why:
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18 Jun 2021
In particular, to Mysterious Reviewer #2: THANK YOU!
It was thoughtful and constructive. It took time for you to do that! I really like the updates it prompted. 🙏
24 May 2021
"Peer production" describes things like Wikipedia & open source - can that exist for science, too?
@k_kloppenborg uses three case studies to see how "citizen science" projects stack up!
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Mad Price Ball retweeted
6 May 2021
Germany is on the wrong side of history on this, valuing profits over human lives. Shameful stance. Even France supports the #TRIPSWaiver now. x.com/dwnews/status/13903455… #PeoplesVaccine
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12 Apr 2021
School reopened today! After more than a year, and two diagnoses of ADHD... 😓
What next?
For today at least, I felt like this scene: youtu.be/94lZKJz4t-I
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Mad Price Ball retweeted
16 Mar 2021
Help fund trans-led research into the trans healthcare issues. Please donate if you can and share onwards so this amazing team can get to the full optimal finding target 👇👇
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Mad Price Ball retweeted
Looking for a cause to support on #InternationalWomensDay ? I know some of the people involved in this one, great scientists and humans both.
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Mad Price Ball retweeted
5 Mar 2021
TRANSBIOME - a crowdfund for transgender health @ £4k of their goal already. new platform to me, too, nice to meet you @goteofunding. support & share! en.goteo.org/project/transbi…
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Mad Price Ball retweeted
4 Mar 2021
An important contribution to the health of transwomen and MtX folks from @OpenHumansOrg, @LehenaffClara and @gedankenstuecke, with h/t to Shuttleworth alum
@madprime.
Contribute here: en.goteo.org/project/transbi…
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2 Mar 2021
RT @swabsession: Transbiome: A project to better understand the neovaginal flora #Transgender #WomensHealth #CitizenScience
t.co/…
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Mad Price Ball retweeted
26 Feb 2021
Today, I’ve donated to the #Transbiome project. Why?
(a short thread)
en.goteo.org/project/transbi…
#openscience
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Mad Price Ball retweeted
6 Feb 2021
You can join the Keating Memorial Self Research weekly chat, Thursdays at 10 am Pacific time, to get help for your Quantified Self projects from an experienced group of peers: quantifiedself.com/blog/the-…
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22 Oct 2020
Gene drives are a profoundly interesting governance challenge: the power to play god, to change ecosystems.
Please share with anyone that might be interested!
21 Oct 2020
Come work with us! New #postdoctoral job opening @UCSanDiego to work on public #engagement for #GeneDrive #Technology. Position supported via new NIH/NCATS R01 - retweets appreciated! Find out more here: bit.ly/35iu9SQ #science #ethics
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15 Sep 2020
Really amazing self-research by Steven Kaye on food ingredients and blood glucose w/ T2D! quantifieddiabetes.com/2020/…
Highlight: "insoluble fiber" blood glucose impact ranged from 76% to 0.4% of glucose IAUC (!!)
ingredients that are treated the same on nutritional labels D:
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24 Aug 2020
Whoa. I just called a number and got a busy signal.
I'm reminded of… youtube.com/watch?v=1OADXNGn…
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30 Jul 2020
soooo true
The moral of THAT story is don’t ever trust a grassroots group that’s eager to incorporate as a 501c3!!! It should be approached as a well-researched last resort, done somberly and begrudgingly, optionally you can refer to it as The Status as if it were a contagious disease
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23 Jul 2020
An hour from now! I'll be sharing my self-research experiences too… 😁
Specifically, effects of testosterone therapy & transition (I'm non-binary) 🏳️⚧️
Sign up here for the zoom link! forms.gle/ZHsbxKLsnDFjco4V6
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Mad Price Ball retweeted
21 Jul 2020
On Thursday I'll share my transgender experiences with self-tracking & hormonal transition! 🏳️⚧️
& in celebration of @stevenkeating, curiosity, and the value of researching ourselves ❤️
Thurs 10am PDT / 7pm CEST
RSVP to get a zoom link: forms.gle/ZHsbxKLsnDFjco4V6
17 Jul 2020
Please join us for a new set of self-research/personal science Show&Tell talks hosted with @OpenHumansOrg in honor of Steven Keating, July 23 2020. Details and RSVP here: forms.gle/ZHsbxKLsnDFjco4V6
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