Today is my 45th birthday. I frankly should not have survived the last 5 years, but somehow I’m still alive. All I want, all I have wanted, is safe, adequate, compassionate medical care, so I can have a chance at LIVING again. I’m still not getting it.
#Care4ComplexCanada
This is EXACTLY how I almost died in 2021, boarded for 6 days in a filthy, crowded, understaffed Vancouver ER waiting room. Everything you described happened.
They allowed me to be discharged because my husband and I knew I would not come out alive otherwise - I was admitted via a different ER within 24 hours, deranged electrolytes, no longer able to walk, weighing 75 lbs, bedsores, having multiple severe drug reactions, fluid overload, later refeeding syndrome (inadequately treated), developed some kind of toxic/metabolic encephalitis from being overdosed for months with prednisone on top of thiamine deficiency.
I also believe that’s when I caught Norovirus, as it’s when I started having diarrhea that never stopped - I later had Rituximab which made me even sicker, and never cleared it, but it was only detected six months ago. I STILL haven’t been treated for ANY of this or been allowed any specialist care since, and only found out about the thiamine deficiency last year thanks to an American neurologist who did testing on me.
That week in the ER was the end of my life as I knew it, before that I was a normal sick person. It was the beginning of a spiralling cascade of iatrogenic damage that led to much more severe illness and disability, losing all my specialists, nearly doing MAID, being blacklisted from the medical system in Vancouver, being dropped off treatment for my autoimmune neurological disease, and left for dead and retraumatised over and over.
Despite enduring unthinkable hell and fighting to recover, with only moderate success, I continue to be shut out of care and have only been harmed more every time I’ve had to seek ER care since. At this point I refuse to go. I would rather die than be put through that again.
Today is my 45th birthday, it is over four years later, and I STILL have no medical care, am still being punished by the medical system for the harm I suffered, and live in daily terror that one of my now many more severe medical issues will become acute and I will have no choice but to go to the hospital again, and be mistreated and harmed and traumatised. It is one of the top things that still makes me want to go through with MAID.
Sorry to dump this all on your thread, but there are so many others suffering severe medical harm and neglect in this country - they tell me their horrific stories - and most doctors don’t seem to even want to know what is happening.
How is it acceptable that this is HEALTHCARE?? It’s literally disabling and killing people, and nobody seems to care. Make it make sense. Canadians - yes even medically complex people and seniors - deserve so much better.
SAFE medical care, and a shred of compassion when we are in our most vulnerable moments.