Lancement du site web du collectif voxEM, collectif que vous pouvez suivre sur bsky.app/profile/voxem.bsky.… ! Nous avons voulu créer un site ergonomique, accessible et régulièrement actualisé, utile aux #paEM francophones et à leurs proches. voxem.fr

It needs to be stated how groundbreaking this WE&ME call for funding is. This is the first time a research funder has written requirements that ensure so much that patients have been emphasizing for years: - PEM-inclusive criteria are mandatory - Meaningful patient involvement in projects is encouraged, and patient experts get paid -Severe and bedbound patients are actively prioritized - All data must be open and deposited in MAP ME/CFS in order to reuse the raw data for future meta analyses It is abundantly clear that this was written by patients - this is what it looks like when standards are built with and by us instead of *about* us. This will be a template for future projects, and, mark my words, we are going to hold the line until these criteria are the minimum standard.

N’oubliez pas le second paramètre à améliorer grandement, avec la température : la qualité de l’air intérieur (QAI). La loi de 2024 n’est pas appliquée dans les ERP…

🚨 Major news for ME/CFS research: WE&ME has launched a new research call worth over €1 million in total funding, supporting around 7 biomedical ME/CFS projects. What makes this especially notable, alongside the substantial funding volume from a foundation in a small country, is the degree of patient involvement. Members of the Science for ME (@s4me_info) community were heavily involved in shaping the call and will also play a major role in the review and jury process, helping guide funding decisions themselves. At the same time, the process includes internationally respected ME/CFS experts whose judgment and expertise I trust deeply. I may be wrong, but this could be one of the most patient-driven biomedical ME/CFS research funding calls of this scale to date. A huge thank you to everyone involved: the patients, patient advocates, researchers, WE&ME, the WWTF team around Benjamin Missbach, and all partners who helped make this possible. Most importantly, thank you to everyone who fundraised for or donated to WE&ME. This is where your money is going: directly into new biomedical ME/CFS research. Please share as much as possible! 🙏

💙Long Covid Advocacy in Liverpool on an outreach mission at the International Congress of The Royal College of Psychiatrists. #RCPsychIC As always, our aim was to engage politely and openly with those present. It was a resounding success... 👇️ 🧵

Encore. Encore une mort de trop.

"Scarborough, yesterday. *Taken by Fred Brown."

The one and only Lola Germs is back with an enthralling video about the history of airborne disease transmission. I’ve seen a preview and damn! it’s really is that good. Tune in next week for the première!

– You seem awfully obsessed with that branch #longcovid #postcovid #ableism #accessibility #satire

Can’t stop thinking about how Wall Street is celebrating Elon Musk becoming the world’s first trillionaire, while he single handedly eliminated humanitarian aid that will lead to the needless deaths of 4.5 million of the poorest children in the world in the next 4 years.

Parce qu'il ne mérite pas même un mur. Par terre, car il est l'indignité. @GDarmanin DÉMISSION ! Un accusé de VIOLS promu ministre aura détruit la #justice en 10 ans de sévices et d'incompétence criminelle.

New study showing that infections increase the risk of bipolar disorder, schizophrenia, and other psychoses - skin and soft tissue infection x1.16 - uti x1.44 - gut infection x1.53 - lower respiratory tract infection x1.28 - sepsis x1.69 - meningitis/encephalitis x3.36

RT @msmarysopinions: While we all watch #RolandGarros, let's remember when Zverev played with scratches on his neck, defensive marks from h…

RT @2601Reva59892: This is a good time to bring up this article for new tennis fans. A harrowing reminder of what victims of abuse endure a…

C’est une victoire de Zverev en GC mais c’est surtout une défaite pour toutes les femmes victimes de violences ainsi qu’un énième crachat sur elles

During Ean’s time in hospital, he was subjected to mistreatment, including being dropped into a swimming pool when he was paralysed, to see whether he would save himself. Here is a clip of Ean talking about his experience.

In 1988, Ean Proctor, a 13-year-old boy with ME, was removed from his parents and institutionalised for over 5 months. Wessely was one of the psychiatrists, he said Ean didn’t have ME and supported the separation from his parents. See excerpts from Malcolm Hooper.

– Help! – But have you tried just ignoring the water? #longcovid #postcovid #ableism #satire

sometimes i think about the absolute hell in which whales must live, enduring endless, inescapable machine noise from boats that also wrecks their ability to communicate with one another

The thing about perpetually fighting the BPS Brigade on the merits of their garbage arguments is that past a certain point (debunking PACE; blocking their “progress”) we’re only sinking time in a trap they’ve set. The only thing that will defeat them is funding quality science.

John Collier, 'The Witch,' 1893 #CaturdayEve