Making the most of things. Passionate about influencing services to reflect the needs of those who use them. Member of @RCObsGyn's Women's Network. Views own.
Joined August 2011
- Tweets 605
- Following 984
- Followers 206
- Likes 833
50 Photos and videos
13 Feb 2024
A week ago, I was preparing to share my views at @APPG_WH on women's #informedchoice. With @JanePlumb & @RCObsGyn I advocated for respect of women and our agency; health professionals' openness to learning; & access to the info we need, when we need it and in the way we need it.
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Ruth Joss retweeted
7 Feb 2024
Fab to speak l at today's @APPG_WH as RCOG's Women's Voices Lead. #InformedChoice needs to be business as usual for all healthcare, especially around pregnancy
@runsteadjones shared her positive experience & I a #groupBStrep story where lack of informed choice led to tragedy
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20 May 2022
Homemade badges by my son for us all to wear today! Raising awareness of Vascular Ehlers Danlos Syndrome. #REDS4VEDS #VascularEDS @AJsChallenge
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Ruth Joss retweeted
20 Feb 2022
"The film’s cinematography is bolstered by Anthony Weeden’s powerful score, which is at once ethereal and ominous, building the film’s slow burn intensity."
Hear that @anthonyweeden ☺️🎼🥰 hammertonail.com/reviews/the…
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Ruth Joss retweeted
At our last Charities Research Involvement Group meeting, we spoke about ways of keeping people engaged in research.
@AMHursey shared this great ‘Staying Connected’ toolkit developed by the @ParkinsonsUK participation steering group.
Check it out 👉🏽parkinsons.org.uk/research/s…
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27 Jul 2021
Great to have young people from @TheBRITSchool running drama and dance sessions for children via @CPParkTrust. Loved seeing everyone learning from the experience. More of this please!
Ruth Joss retweeted
9 Jul 2021
Co-creating our payment policy: a personal reflection from co-producer @Al_Richards_786 please have a read coproductioncollective.co.uk…
ALT A pile of giant gold coins with a miniature figure sat on top of the pile reading a newspaper
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27 Jun 2021
A must read for any clinician who encounters a vascular EDS patient. Great blog by Clare who writes so well about her experience and how frightening it can be when people don't understand your condition. From @AJsChallenge #vEDS
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25 Jun 2021
I agree! The presentation by @neilajryan was so very clear. I learnt a lot and feel much more informed. I now understand the importance of this area of work and explaining it in an accessible way.
24 Jun 2021
Thank you @neilajryan for such a fascinating talk on #genomics and the @RCObsGyn taskforce. Vital that women understand how genomics can assist them in making informed decisions
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Ruth Joss retweeted
24 Feb 2021
Measuring the invisible work of millions of volunteers is challenging yet critical to help us understand their value
📢Join the @ilo @UNVolunteers dialogue to learn new approaches & tools for measuring volunteering
🗓️4 March, 2-3 pm CET
Register today: bit.ly/3sAgNvt
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Ruth Joss retweeted
16 Feb 2021
Looking for ways to build #evaluation and learning into your #CoProduction? Get practical tips from @NPCthinks evidence and impact lead, @EParker000 and friends of ours @UCL Evaluation Exchange eventbrite.co.uk/e/making-ti…
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Ruth Joss retweeted
22 Oct 2020
☎️ We need your thoughts on our helpline. ☎️
It's important for us to understand what we do well, but also how we can improve our services.
Please take 5 minutes to complete our survey below by 25 October DEADLINE: 👉ow.ly/mWr150BZCfa👈
#StrepB #groupBStrep
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Ruth Joss retweeted
22 Oct 2020
Also to add that we have recently published on the important but often 'hidden' role of PPI leads, led by @elspeth_mathie researchinvolvement.biomedce…
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SUDC UK co-founders have lit candles this evening as part of the #waveoflight2020 - one candle for each family registered with SUDC UK.
We wish you a gentle evening. Their light shines on 💙🌟
#waveoflight #waveoflove
#blaw2020 #sudcawareness #childbereavement #cdr #charity
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Ruth Joss retweeted
13 Oct 2020
There’s lots of evidence that #involvement in #research studies adds value. But does #PPI in research add value for charities? An @slginvolvement report details the 10 ways that #PPI helps charities do their jobs better. Full report here: bit.ly/3nda2O2 @AMRC
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Ruth Joss retweeted
30 Sep 2020
We are very excited about our workshop which will be taking place on Friday!
We have an excellent group of people from across the UK bringing their widely varied experiences & views to help find the Top 10 questions for future reseach in #diabetes & #pregnancy!
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29 Sep 2020
Thanks @Mental_Elf for a fantastic session today. For anyone interested in future #publicengagement seminars you can sign-up via ucl.ac.uk/psychiatry/events/…
25 Sep 2020
I’ll be banging on about public engagement, mental health research and social media next week (Tue 29 Sep 2-3pm BST).
It’s a FREE Zoom webinar and everyone’s invited. Drop @jechan213 a line if you fancy joining us.
And tweet me if you have any specific questions 👍
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Ruth Joss retweeted
4 Sep 2020
Fab charity, looking for very special people. Could it be you? Click the link to find out more.
#StrepB #charitytrustee #charitychair #makeadifference
4 Sep 2020
We're looking for our next Chair & new Trustees.
It's an exciting time for #groupBStrep prevention - are you the right person for one of these key roles?
Click the link to find out more, & please RT.
#trustee #chair #recruitment
gbss.org.uk/latest-news/recr…
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