Bedridden PoGM #SevereME #POTS #MCAS #hEDS #ChronicPain. There is no liberation without disability justice. #CovidIsAirborne
Joined November 2021
- Tweets 7,128
- Following 433
- Followers 547
- Likes 13,907
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Pinned Tweet
9 Sep 2024
If covid magically disappeared today, we’d still have to contend with the trauma that our loved ones are fine with killing and (further) disabling us just as long as they weren’t inconvenienced. And I don’t know how I’m supposed to heal from that.
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11h
I’m constantly astonished that billionaires would rather ignore the climate crisis and prepare to live in a bunker with dvds and baked beans than devote a modicum of their bottomless wealth to saving the planet where we have fresh fruit and soft grass and blue skies.
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Me: Oh, this honeysuckle smells amazing.
Him: How can you smell it with that mask on?
Me: Some smells are gas-phase molecules that can get through this kind of mask. Doesn't it smell amazing?
Him: I don't know. I haven't been able to smell anything for six years.
Me: Really?
Him: Yeah. My first covid infection. It's got worse too. The other day our dinner was on fire, and I couldn't smell the smoke. The first I knew was when my eyes started watering, then the alarm went off.
👀
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for every misandrist, there are thousands of women eager to carry water for the patriarchy, and that's why i find people who say "feminism has gone too far" particularly foolish.
feminism hasn't gone nearly as far as it can go. women aren't nearly as angry as they should be.
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Jun 14
I work as a barista part time and I unfortunately witness everyone’s cognitive decline. Probably from us all constantly getting covid infections. It’s not looking great tbh.
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Jun 15
If our babies/children are missing developmental/academic markers & you refuse acknowledge a widely circulating virus that has been documented to impact physical, mental & cognitive health you’re either in denial or you’re obstinate & on the side of the overseer.
Mask up. xo
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You can’t return to something that doesn’t exist and that’s the predicament we live within currently.
Covid is an ongoing pandemic that the masses are ignoring but it isn’t ignoring them.
This is why people are dying younger and getting sick more frequently than pre 2020.
Jun 14
COVID-19 might have been 6 years ago, but it affected us deeply. Nobody remained the same. Time feels faster. The energy feels different.People are colder & more detached. Careers paused, some lost their identity. some are still stuck. The world we knew never really returned.
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“Adults can still access social media through age checks like facial recognition, digital IDs, passports and credit cards.”
So there it is - this wasn’t about banning under 16s from social media, this was about giving EVERYONE a digital ID.
RESIST 🚫
🚨 SUMMARY: The UK's social media ban for children from early 2027:
- "User-to-user" apps where people create, share and interact with content (e.g. TikTok, Instagram, Snapchat, YouTube, X, Facebook) will be banned for under-16s
- WhatsApp, Signal and YouTube Kids will be exempt
- Under-16s will also be banned from livestreaming, messaging strangers on gaming apps like Discord and using disappearing messages
- 16 and 17 year olds will face nightly social media curfews and limits on infinite scrolling with more details next month
- AI "romantic companion" chatbots will be banned for under-18s
- Adults can still access social media through age checks like facial recognition, digital IDs, passports and credit cards
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I see this type of tweet regularly now. My suspicion is that it's emblematic of the fact that many people globally are struggling with the notion that although societal non-pharmaceutical interventions for Covid-19 are long gone, something is still very off.
It's the virus.
Jun 14
COVID-19 might have been 6 years ago, but it affected us deeply. Nobody remained the same. Time feels faster. The energy feels different.People are colder & more detached. Careers paused, some lost their identity. some are still stuck. The world we knew never really returned.
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Please help.
The person who was doing enquiries is not available, so I need help finding land to put a caravan/ cabin on & caravan parks seem to be too expensive for me. Or maybe you have a granny flat?
In #Melbourne #Australia
Any safe housing for a severely ill person. $250wk
Ok, new ask for Anna in 🇦🇺
Pls RT
Does anyone in the Melbourne area have land they could let Anna live on in a trailer/caravan?
See replies for info, she needs to escape abuse but is severely disabled & can’t use shelters etc.
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Jun 13
Kim hat sich für assistieren Suizid entschieden, weil das leben mit ME/CFS kaum lebenswert ist.
Weil die Schmerzen, das Leiden, das AlleinGelassenWerdenMüssen, die Ignoranz durch die Medizin und das System kaum auszuhalten sind.
Ruhe in Frieden 🖤
Inhaltshinweis: Assistiertes Sterben
Ihr Lieben,
diesen Beitrag teilen wir für Kim 💜
So wie sie es sich gewünscht und
selbst gestaltet hat.
Kim war Teil unseres Herzteams. Sie hat mit ihrem brillanten Verstand unendlich viel beigetragen.
ALT Auf einem weißen Hintergrund sind ganz unten mehrere übereinanderliegende blaue und lilane Muster zu sehen, die wie Wellen oder hohe Berge aussehen. Über diesen sind viele goldene Sprenkel verteilt. Darüber ist ein Foto von Kim Linke zu sehen. Auf dem Foto sitzt sie auf einer Terasse vor dem Meer und blickt lachend in die Kamera. Sie trägt ein Oberteil mit Leopardenmuster, eine blaue Brille und eine Kette. Über dem Foto steht in blauer Schrift "Kim Linke", darunter steht ebenfalls in blauer Schrift "06.10.2000-10.06.2026".
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Jun 13
Ich kannte Klaus nicht, aber seine Abschiedsworte berühren mich sehr.
klaus-schorn.de/2026/06/absc…
Mein Mitgefühl allen, die Klaus kannten und vermissen werden.
Fünf Tode binnen einer Woche.
Ich bleibe sprachlos zurück.
#MEcfs
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Jun 13
The richest man on Earth, Elon Musk, is also the one who has claimed the most benefits, $38b in subsidies, $150 from every single adult American in the USA.
He hasn't paid a cent back.
He is the benefit scrounger you cannot afford.
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Jun 14
RT @wine_x13: I'm never getting over the fact that romance as a genre, as the HIGHEST selling genre, exists largely because straight women…
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Elizabeth Warren’s proposed 3% tax on people with over $100M in wealth would generate $30B in revenue each year on Elon Musk’s fortune alone. That’s about how much the US spends each year on affordable housing subsidies.
Tax. The. Rich.
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Jun 13
I’m sorry about my ongoing lack of advocacy.
Things are already next to unbearable.
I don’t know if I’ll survive this.
It’s all to much.
No job, friends or family.
Housing & food insecurity.
No ability to get out of flight mode.
Constant, unrelenting anxiety.
This is not a life.
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🚨#MEkills🚨
Der vierte Todesfall eines #MECFS Patienten innerhalb nur einer Woche!💔
⚠️Und trotzdem ist die Todesgefahr dieser als Fatigue bagatellisierten Krankheit völlig unbekannt!☠️
Jun 12
Today, I learned of the fourth death in the #MEcfs community within a single week. None of this would have seemed possible to me before my own illness.
We are both witnesses to and victims of a complete systemic failure.
💙🕯
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It’s really hard to keep interacting so I have an online presence & people don’t forget I’m still (sorta) alive.
I gotta crowdfund & I don’t have the energy on a team of 1.
Not sure what else to write.
Got a laundry list of diagnoses. #SevereME on its own is enough.
Yeah.
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Another nurse in Northern Ireland was chased and died during the race riots in 2024
Nurse chased by four masked men in racist attack during riots
rcni.com/nursing-standard/ne…
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Jun 13
Perimenopause group right now:
“Hello… is anyone having a hard time breathing?”
Me: blasting Adele music from the other side:
🎵 HELLO FROM THE OTHER SIDE
I MUST’VE CALLED A THOUSAND
TIIIIMES
TO TELL YOU I’M SORRY FOR EVERYTHING COVID HAS DONE
BUT WHEN I CALL, YOU NEVER SEEM TO BE HOME 🎵
It’s not your hormones, ladies. It’s the virus that never left. 😭🦠
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Jun 13
Betrayal trauma has made me withdraw frm my friends for past 2 yrs, even tho they did not cause the trauma. I cannot seem to text them back with much more than an emoji. This comes after 4 years of being so busy surviving w/o adequate help, that I also couldn’t stay in touch. 😭
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