If only detail mattered. 🎥 TikTok - @dr.noc

Grab a shirt and save the arcade. Thank you @ArielAces @ArtPixels305 for this good deed helping the arcade staying alive. For those who don’t know him, Ariel is the one who we work with for our store Merch #savethearcade #justoneshirt Here is the the link: artisticpixels305.com/produc…

MY FAMILY NEEDS YOUR HELP!!!!!! A Message from my parents about my nephew.... 4 weeks ago our grandson Kase was rushed to children’s Nebraska after a CT scan in Kearney showed a brain tumor. Children’s Nebraska in Omaha was able to fully resect the tumor. Kase has recovered well from the surgery; however, the diagnosis we received this week showed the tumor as a high grade glioblastoma and to make it even worse it showed he has LI–fraumeni syndrome. Li–Fraumeni syndrome (LFS) is a rare, autosomal dominant, hereditary disorder[1] that predisposes carriers to cancer development. As a child and even more important a child with this rare disorder, he should be treated with proton radiation therapy. There are such few cancer centers that have this treatment available and we keep hitting dead ends.  It feels like we are struggling to find a facility to help get us the treatment for his specific LFS treatment approach. Every minute matters in stopping any remaining cells from growing.  These cells being treated in his brain with proton, versus photon, therapy significantly reduces his risk of a secondary cancer growing due to the LFS disorder. We as a family are reaching out with hopes that there is someone you might know that would know someone that can help expedite getting him to an oncology team of doctors and help us give him the very best chance that he can have. In just the few days since his diagnosis we have had doctors tell us it doesn’t matter which treatment he gets and others that have said it does matter. We desperately want him to have the best option to live as long and healthy as possible. We are being challenged with lack of consistency and poor communication and are looking to change this in some way.  We truly believe, and so does our Oncologist at Children's Hospital in Omaha, that his best option, and chance, is immediate proton treatment, since this drastically reduces the risk that secondary malignancy would grow. Or, that other forms of cancer would develop, which is what would be guaranteed to happen, if they proceeded with the photon therapy approach. We are asking you to help us get the word out. We are forever grateful for all the support our family has received already, but are asking for anyone that can help us get in touch with that one, right person, and we can and will be there immediately! Every child deserves the very best chance anybody can give them and we want that for Kase. We are continuing to reach out to cancer centers and trying to get a response but are not having much luck. With the urgency, it cannot be delayed any longer. Every minute matters. If you or someone you know can help us, please DM me and we will exchange information there. Again we want to thank everyone for the support and prayers our family has received and continue to receive. We are forever grateful for anyone that can help us urgently get the treatment he deserves. With our deepest gratitude Troy and Cindi Clayton