We have merged with @actionforME and are now known as Action for M.E. Healthcare Services, providing holistic care and support for people with ME/CFS.
Joined November 2010
- Tweets 870
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- Followers 860
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Pinned Tweet
31 Jan 2022
Thank you all for supporting The ME Trust over the past 10 years.
Tomorrow, we will merge with Action for M.E.. We will continue to offer our existing Doctor, Physiotherapy, Counselling and Chaplaincy services and support under the name Action for M.E. Healthcare Services.
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31 Jan 2022
Thank you all for supporting The ME Trust over the past 10 years.
Tomorrow, we will merge with Action for M.E.. We will continue to offer our existing Doctor, Physiotherapy, Counselling and Chaplaincy services and support under the name Action for M.E. Healthcare Services.
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31 Jan 2022
We are excited to be combining the power of our organisations and strengthening the services we offer. During 2022 we plan to scale up our provision of clinician-led, holistic health and wellbeing support to help more people with M.E. and their families. @actionforme
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The M.E. Trust retweeted
25 Jan 2022
The 4th episode of our Learn About M.E podcast is now live. In this episode, we hear from medical students about their experience of learning about ME/CFS in their medical schools.
buzzsprout.com/1717775?fbcli…
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The M.E. Trust retweeted
28 Jan 2022
We've now been able to send responses to all the applicants for the final workshops.
We're so grateful to have so many excellent people joining us and wish we could have had all of you!
These workshops are sure to create some fascinating dialogue.
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The M.E. Trust retweeted
18 Jan 2022
Researchers from @LivUni are conducting a survey looking at the experiences of transcutaneous vagus nerve stimulation in people with ME/CFS. Information sheet (bit.ly/3Ig88pO) & survey (bit.ly/3tAw8Qd) Open 'til 11/2/22 #pwME #MECFS
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The M.E. Trust retweeted
27 Jan 2022
.@SonyaChowdhury (Webinar)
Please do go to the M.E. charities like @actionforme and @MEAssociation if you need help with getting a diagnosis of ME/CFS.
If you do get a ME/CFS diagnosis (including following COVID-19 infection) you can take part in DecodeME. #LongCovid
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The M.E. Trust retweeted
26 Jan 2022
We have received a request from a journalist exploring experiences of access to services and support during lockdown. Do you think you can help? If you can shed light on your experience, drop us a comment or email us at media@actionforme.org.uk.
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The M.E. Trust retweeted
25 Jan 2022
🔴Epstein-Barr virus (#EBV) can play a key role in causing #MS, a recent study showed.
EBV is known to play a role in causing some cases of #MEcfs (through causing glandular fever).
#DecodeME will look for evidence that genetic factors make EBV more likely to trigger ME/CFS.🧬
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The M.E. Trust retweeted
25 Jan 2022
You're invited to our Thurs 10am webinar, with:
➡️launch update
➡️@lifeofpippa_ @theslowlane_ME @chicaguapa explain how #MEcfs patients & carers help tell others about the study
JOIN:
*Zoom (Register at: us02web.zoom.us/webinar/regi…)
*Live on Facebook
(Recording available later.)
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26 Jan 2022
"I appreciate how kind, sympathetic and thoughtful the doctor was."
#patientquotes #METrust #MECFS #pwME
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The M.E. Trust retweeted
23 Jan 2022
Have questions about the study?
Join this month's webinar on Thurs morning: us02web.zoom.us/webinar/regi…
(We'll post the recording and transcript when they're available.)
20 Jan 2022
🔴 Great news: DecodeME opens for first participants this month. 🧬 Please RT!
Phase 1 opens on January 31 for around 550 people.
🙏Thanks so much for your support. We can't wait to share the study with you! 💙
#MEcfs #PwME #MyalgicE #MillionsMissing
decodeme.org.uk/great-news-d…
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The M.E. Trust retweeted
15 Jan 2022
Putting it into Practice: What NICE ME/CFS means for GPs
A thread ⬇️ doctorswith.me/nice-gp-updat…
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The M.E. Trust retweeted
22 Jan 2022
Encouraging healthy people to exercise is fine but please remember that exercise is contraindicated for people with #MECFS and many #LongCovid patients. #r4today
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The M.E. Trust retweeted
21 Jan 2022
An exciting few weeks ahead w this & @DecodeMEstudy launch. 2022 is the year for people with #ME #MECFS to finally receive the investment & focus they more than deserve. More research, more funding, more understanding, more healthcare…let’s end the ignorance, injustice & neglect
21 Jan 2022
We are excited to announce that we will be merging with The ME Trust and launching our new Action for M.E. Healthcare Services on 1 February 2022 @METrustUK
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21 Jan 2022
We are excited to announce that we will be merging with @actionforme and launching our new Action for M.E Healthcare Services on 1 February 2022.
Find more details and information on our merger here: metrust.org.uk/our-merger-wi…
#METrust #MECFS #pwME
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The M.E. Trust retweeted
20 Jan 2022
🔴 Great news: DecodeME opens for first participants this month. 🧬 Please RT!
Phase 1 opens on January 31 for around 550 people.
🙏Thanks so much for your support. We can't wait to share the study with you! 💙
#MEcfs #PwME #MyalgicE #MillionsMissing
decodeme.org.uk/great-news-d…
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21 Jan 2022
The last years made us very wary of hugging. Yet, hugging is important esp for #pwME. It can reduce stress improve our heart health.
Today on #NationalHugDay we encourage you to let your dearest know that you’re there for them with a (virtual) hug lifting their spirits #MECFS
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19 Jan 2022
“The letters/emails sent after each appointment summarising what was discussed are invaluable, thank you so much. Everything about the services at the Trust are so well thought out to meet all the needs of patients with ME. This immediately makes one feel welcome […],not alone.”
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The M.E. Trust retweeted
14 Jan 2022
A new survey has been launched looking for experiences of transcutaneous vagus nerve stimulation by #pwme
Please share widely, this is an international study so can be completed across the world!
More information here:
physiosforme.com/post/vagus-…
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The M.E. Trust retweeted
17 Jan 2022
We are thrilled to have received such a large number of applications to join our final workshops, however this does mean we won't be able to select everyone.
We're aiming to let all applicants know if they've been selected by the end of January.
#MECFS #PrioritiseME #MyalgicE
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