Neurodiversity Warrior 🧠💪🏻 | ADHD | Carer to AuDHD Teen | ND & Carer Advocate | LongCovid 11 mos | Crafty | 🏳️🌈 | 🇦🇺🇺🇸 | ASRC Supporter👇🏻🌏 🕊 |
Joined October 2011
- Tweets 3,752
- Following 1,751
- Followers 392
- Likes 3,014
245 Photos and videos
Candy Sparkles ✨ (she/her) retweeted
19 Jan 2023
Lost in the discussions about "mild" cognitive changes in people with #Longcovid in the idea that for millions of people, slight changes represent the difference between holding/losing a job, driving /crashing a car, turning off the oven/burning the house down. @WesElyMD
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Candy Sparkles ✨ (she/her) retweeted
24 Oct 2021
I'm thrilled to announce @SimonSchusterAU has acquired the global rights to my new book about #AIbias.
Huge thanks to @enolan6 @Jacinta_DiMase & @Chrys_Stevenson for your generous support.
The 'bot book' will come out around #IWD2023 😊
simonandschuster.com.au/p/Si… #FutureFeminism
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Candy Sparkles ✨ (she/her) retweeted
31 Dec 2022
Manage as if it were HAND. academia.edu/resource/work/8…
30 Dec 2022
Most popular read this week: Several leading health systems have established #COVID19 #neurology specialty clinics to help patients address neurologic side effects of long COVID: bit.ly/3Q0QtqU
#neurotwitter #BrainHealth #coronavirus @AANMember
ALT A patient sits at a desk across from a doctor.
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Candy Sparkles ✨ (she/her) retweeted
30 Dec 2022
I turned 33 today, and have Long Covid.
By 34, I don’t know if I will be healthy or bedridden with crippling fatigue.
Governments don’t want to hear about this and doctors can’t help.
If you think this is unacceptable please RT. If you are in the same situation please like.
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15 Nov 2022
Please support if you can. Great initiative @BeingCharisBlog 💖
14 Nov 2022
If you're disabled & experiencing food insecurity, leave your wishlists (even if they aren't for food) or pay links below.
If you are able, please help the people below.
Even $1 goes a long way.
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Candy Sparkles ✨ (she/her) retweeted
13 Nov 2022
“The pandemic opened the world’s eye to the fact many chronic illnesses have been ignored & ridiculed,” says @VirusesImmunity “#LongCovid has taught the world these diseases are real, there is a biological basis for them, & we need to study them” medicine.yale.edu/news-artic…
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24 Oct 2022
#LongCovid & #MECFS community: After a crash do you usually go back to your prior “progress”?
Currently on day 5 of a (bad) crash & worried I’ve regressed.
Was used to 2-3 day crashes then recalibrating. Can mental heavy lifting have an impact? (@TraceySpicer)
Candy Sparkles ✨ (she/her) retweeted
13 Nov 2022
YES! This Garmin thingy is hugely helpful as a reminder of the toll any exertion - making a meal, talking on the phone, etc. - takes on the body battery.
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13 Nov 2022
❤️
13 Nov 2022
I think what some people don't understand about disabled people and hygiene is that if it was just as easy for disabled people to shower as abled people with no negative side effects, we would do it all the time.
#ActuallyAutistic
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Candy Sparkles ✨ (she/her) retweeted
12 Nov 2022
Thought we would have flying cars by now…
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24 Oct 2022
#LongCovid & #MECFS community: After a crash do you usually go back to your prior “progress”?
Currently on day 5 of a (bad) crash & worried I’ve regressed.
Was used to 2-3 day crashes then recalibrating. Can mental heavy lifting have an impact? (@TraceySpicer)
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Candy Sparkles ✨ (she/her) retweeted
5 Nov 2022
Shoutout to all the humans who’ve gotten me once or twice, had an easy time of it, and so think they’re done. You all just have no idea what I can do. Yet. 😛
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Candy Sparkles ✨ (she/her) retweeted
7 Oct 2022
Ten things twitter folks know about Covid that people on the streets don't.
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Candy Sparkles ✨ (she/her) retweeted
8 Nov 2022
The impact of #LongCovid on the American workforce
Persistent loss of ~500,000 workers
"A mass disabling event"—@Cutler_econ
wsj.com/articles/covid-workf… by @sinoceros @laurenweberWSJ
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