Advocate for Patient Centered Care for people with Complex Chronic Illnesses & Disabilities with Patient and Clinician Autonomy

Joined March 2021
1,415 Photos and videos
Pinned Tweet
I'm working on a special project & will be creating graphics for folks based on their pain descriptions that we can share with the our pain stories. #PainSpeaking #SeeOurPain If you're interested please send me a DM with your pain description.
31
44
113
Hope411PainSpeaking retweeted
Jan 20
Law enforcement leaders from across the Twin Cities spoke out about ICE operations in the area.
613
521
1,475
949,024
Hope411PainSpeaking retweeted
A 15-year-old student has drawn global attention after developing a device capable of detecting pancreatic cancer at its earliest stages. This matters because pancreatic cancer is one of the deadliest cancers largely due to late diagnosis. The invention is a low-cost sensor designed to identify specific biological markers linked to early pancreatic tumors. Unlike traditional tests that can take days or weeks, this device delivers results in just minutes. Medical experts reviewing the project noted that the technology could dramatically improve survival rates if deployed widely. Early detection allows treatment to begin sooner, when outcomes are far more favorable. What surprised researchers most was the depth of understanding behind the invention. The teenager studied existing diagnostic limitations and engineered a solution that addresses both speed and affordability. The breakthrough has earned international awards and scientific recognition, sparking discussion about how much potential remains untapped in young innovators. It highlights how curiosity, access to knowledge, and support can lead to life-changing discoveries.
381
5,573
21,742
557,096
Hope411PainSpeaking retweeted
4/In this episode, we also ask why a former federal official would write an editorial pleading for an opioid-free health care system, with serious factual errors, without disclosing he's being paid $60,000 by the maker of a new non-opioid medication
4
6
16
321
Hope411PainSpeaking retweeted
1/๐Ÿ”Š Our latest podcast from "On Becoming a Healer" The โ“ is: "Why are we addicted to talking about opioids rather than helping people with chronic pain?" Available on Spotify, Apple and wherever you get your podcasts (links below)
2
11
24
636
Hope411PainSpeaking retweeted
I remember being absolutely pissed off when I read what 'qualified' one as having Complex Persistent Opioid Dependence. Now, it appears that they've dropped that 'dx' and have called it simply prescription opioid use disorder. ๐Ÿคฆ๐Ÿปโ€โ™€๏ธ๐Ÿคฌ
1
2
6
97
Hope411PainSpeaking retweeted
Replying to @outbreakupdates
People don't ban drugs out of safety reasons. No one is made safer when they are forced to buy their drugs from unregulated markets. People ban them out of perceived morality and dishonesty.
2
12
178
Hope411PainSpeaking retweeted
Aspirin is trusted universally. It kills more than 3,000 Americans a year through internal bleeding. The same voices that call vaccines dangerous keep aspirin in the cabinet?
37
140
844
16,710
Well said! Watch the clip!
Truth bombโ€ผ๏ธ This man should be the one speaking on college campuses. โ€œTheyโ€™re planning for us to turn on each other and make this culture war a civil war. I am begging you, please, for the love of God, for the love of our neighborsโ€ฆ do not take the bait.โ€ Watchโ€ฆ
1
2
6
135
Hope411PainSpeaking retweeted
The dichotomy in antidepressant discontinuation trials is indeed a nuanced issue. While short-term trials focus on immediate withdrawal effects, they often overlook long-term consequences. This poses the question: how can we balance immediate symptom relief with sustainable mental health strategies? Have you encountered alternative methodologies in research that might address this discrepancy effectively? For anyone looking to dive deeper into similar discussions, check out sciqst.comโ€”an all-in-one platform for generating comprehensive biomedical reviews and answering complex questions. #Medicine

1
6
1,702

No, it's not a Tribble ๐Ÿคญ Can anyone identify the breed & the activity it's participating in? *Hint* it's assisting with a medical activity ๐Ÿ˜‰
42
๐Ÿ‘‡ THIS ๐Ÿ‘‡
1 Sep 2025
Replying to @arenella1
Let's not forget Bambi Bondi's claim that Trump prevented 258 million deaths by apprehending fentanyl at the border: She's claiming that 75% of the US population would have died by fentanyl overdose. They do it because it works with MAGA followers. WTF is MSM doing?
36
I read a recent article where a researcher from @RANDCorporation expressed their confusion as to WHY with the reduction in RX it hasn't had a positive impact on the #OverdoseCrisis. The number of individuals who indicated they use illicitly manufactured fentanyl (IMF) has 1)
Replying to @Pain_Speaking
Frequently the net effect of refusing people opioids for the worst intractable pain is many suicides. Opiophobes are okay with suicide since they do little to nothing to stop it.
1
5
8
464
significantly increased between the current NSDUH (2024) and the most recently available NSDUH (2022). IMO by applying just a bit of logic & reason, it shouldn't be that difficult to understand ๐Ÿ˜’๐Ÿคฆโ€โ™€๏ธ 2)
2
7
52
To #EndOverdose the Government must: โžก๏ธ ๐Ÿ›‘ interfering in the practice of medicine โžก๏ธ ๐Ÿ›‘ Attempting to practice medicine via legislation and/or administrative rules โžก๏ธ End the #WarOnDrugs & reallocate those funds to #Health & program which 1/2
31 Aug 2025
๐——๐—˜๐—” ๐—ฟ๐—ฒ๐—ฐ๐—ผ๐—ด๐—ป๐—ถ๐˜‡๐—ฒ๐˜€ ๐—œ๐—ป๐˜๐—ฒ๐—ฟ๐—ป๐—ฎ๐˜๐—ถ๐—ผ๐—ป๐—ฎ๐—น ๐—ข๐˜ƒ๐—ฒ๐—ฟ๐—ฑ๐—ผ๐˜€๐—ฒ ๐—”๐˜„๐—ฎ๐—ฟ๐—ฒ๐—ป๐—ฒ๐˜€๐˜€ ๐——๐—ฎ๐˜†. #EndOverdose dea.gov/ioad
1
4
11
660
impact the Social Determinants of Health 2/2
1
1
2
65