Blessed mom, lover of snow, old fashion enthusiast and trying to be the change I wish to see in the world. #GoodTrouble
Joined June 2019
- Tweets 4,198
- Following 681
- Followers 1,094
- Likes 17,077
267 Photos and videos
Deb Paust retweeted
Jun 2
Thank you, @baseballhall !
Lou Gehrig’s dedication, hard work and perseverance continue to inspire visitors to Cooperstown and baseball fans around the world.
We celebrate the Hall of Famer’s enduring legacy on this #LouGehrigDay and every day at the Hall of Fame.
ALT Statue of Lou Gehrig in the Museum lobby as depicted in his home pinstripe Yankees uniform. (Milo Stewart Jr./National Baseball Hall of Fame and Museum)
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Today, on #LouGehrigDay, we join the baseball community in raising awareness for ALS and honoring the life of the great Lou Gehrig.
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Deb Paust retweeted
FDA is seeking input from the rare disease drug development community on its LEADER 3D educational materials! Comments are due by April 3, 2026. regulations.gov/search?filte…
#RareDiseaseWeek
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Important opportunity for people living with ALS. 👇
Feb 19
Dear Folks in ALS Land,
Please submit your "rare" disease insights to Senate Aging Committee using this form --
everylifefoundation.quorum.u…
Everyone can help put ALS on their radar, and this is important!
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10 Best Instagram Influencers to Learn Storytelling digitalvidya.com/blog/social… via @I_m_Digital
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Deb Paust retweeted
25 Aug 2025
The ALS Network is proud to collaborate with the @BarrowNeuro’s Summer Internship Program, led by Rita Sattler, PhD, to sponsor @ASU neurology student and intern Ria Moharil.
Read more about the next generation of ALS researchers: ow.ly/lS6M50WKFzY
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Deb Paust retweeted
2 Jul 2025
I'm back in DC to vote HELL NO on Trump's big bad tax bill.
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Deb Paust retweeted
1 Jul 2025
The Senate's tax bill is the most dangerous legislation in modern history—ripping health care from the sick, food from the hungry, and hope from working families, all to shovel more tax breaks to billionaires and corporate executives.
Just despicable. My full remarks.👇
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Deb Paust retweeted
7 Jun 2025
Thank you for being part of the ALS Caucus, Rep. @rosadelauro! We are so grateful for your commitment to supporting the ALS community and prioritizing the urgency of ALS, funding for research, support for people living with ALS, and more.
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Deb Paust retweeted
11 Mar 2025
Republicans just voted to hurt our economy, endanger our communities, and threaten our national security.
Statement from New Dem chair @RepSchneider on the passage of the Continuing Resolution.
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Deb Paust retweeted
11 Mar 2025
When it comes to government funding, we find ourselves at a crossroads: we can either pursue a long-term continuing resolution and abandon the work we've accomplished as Congress, or we can face a government shutdown, which is also an untenable alternative. We can do better than this.
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Deb Paust retweeted
11 Mar 2025
Republicans want to brag about funding the government but what good is funding when there's no one left at these departments to provide services? Republicans won't get my vote on government funding until they take REAL steps to improve government. They can start by firing @elonmusk.
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Deb Paust retweeted
10 Mar 2025
Urgent action! The House has released a continuing resolution bill to fund 2025 with dramatic cuts to the Department of Defenses’s CDMRP, which funds ALS research. We cannot allow this. Ask your legislators to continue to fund this critical program: iamals.org/cdmrp2025/
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Deb Paust retweeted
3 Jan 2025
Coming soon. More Than Our Stories - the eighth annual!
morethanourstories.org/
Be there or be square.
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Deb Paust retweeted
8 Dec 2024
Be good to people for no reason
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Deb Paust retweeted
2 Dec 2024
More Than Our Stories 2025 Feb 4-5 Registration will open soon. Meeting location on Feb 4 is near Union Station, DC. Cyber-Monday might be your friend for travel bargains. This is the #kickALS advocacy conference... Nothing else like it.
morethanourstories.org
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Deb Paust retweeted
4 Dec 2024
On #givingtuesday support a new nonprofit - GeoALS, using GIS (Geographic Information System) to #endALS and support researchers, connect underserved communities, improve access to clinic care and more.
geoals.org
@Team_Thriving @farmstronginfo
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You can donate to ALS research in honor of Janie and everyone living with ALS this Giving Tuesday! #EndALS #GivingTuesday als.net/donate/givingtuesday…
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