Husband, Father and ALS warrior #teamlapointeforthewin
Joined September 2009
- Tweets 467
- Following 595
- Followers 174
- Likes 2,094
45 Photos and videos
13 Aug 2019
Thank you @gillette. I’m battling ALS and this will help my wife and I tremendously.
Gillette TREO helps caregivers shave others with safety, control, and convenience. Now available on Gillette.com, learn more about TREO and why Carol uses it to care for her husband, Jim.
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Scott LaPointe retweeted
2 Aug 2019
GMB host sobs as she interviews Motor Neurone Disease police officer mol.im/a/7313521 via @MailOnline
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Scott LaPointe retweeted
9 Jul 2019
15 pALS and cALS wrote a letter to the FDA to hold them accountable for the long overdue ALS guidance document.
When we hand deliver this letter we want your name on it. This is all of our fight. Make your voice heard.
Read the letter and sign it here: iamalsorg.typeform.com/to/EY…
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Scott LaPointe retweeted
6 Jul 2019
It’s been 28,503 days since Lou Gehrig died.
Since then we won WWII, discovered AND cured HIV, declared that love is love and that racism and sexism will not be tolerated.
But we haven’t fucking cured ALS. By year end the @iamalsorg army will surpass 28,503 and we will #EndALS
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27 Jun 2019
Thank you #ALSChampions @RepBrianFitz, @RepTerriSewell, @RepJasonCrow, and @KenCalvert for co-founding the House of Representatives ALS Caucus. We can't wait to see what work we can accomplish together. x.com/iamalsorg/status/11439…
26 Jun 2019
Thank you @RepBrianFitz, @KenCalvert, @RepJasonCrow, and @RepTerriSewell
for co-founding the #ALSCaucus: A bipartisan group working to raise awareness about #ALS, think creatively about policy solutions, and accelerate our fight for a cure. You are all #ALSChampions.
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14 Jun 2019
Having ALS means having so many shitty things you loose. HOWEVER, I now receive sponge baths from my wife every day, which isn’t all that bad. 😉 #lookingforthepositive #iamals #EndALS
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Scott LaPointe retweeted
13 Jun 2019
Ha. Ha. Ha. Well played. Just be careful he doesn't leave you at the game. #GoBlues @NHL @David_Denman
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Scott LaPointe retweeted
8 Jun 2019
NOBEL? Why not? @nbcnews @cbsnews @abcnews @foxnews @realDonaldTrump @DonaldJTrumpJr @huffpost @wsj @washingtonpost
@latimes @newyorktimes @newyorker @timemagazine @vice @vicenews @AP @cnn @cnnbrk @GOP12 @senatus @seanhannity
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1 Jun 2019
Day 32 of ALS awareness month. Some believe it ended yesterday. I along with thousands of others still have it. Awareness doesn’t stop because we turned a page on a calendar. We stop when there’s a cure. #IamALS
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Scott LaPointe retweeted
19 May 2019
When you know, you know! ❤️💍
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Scott LaPointe retweeted
20 Apr 2019
Damn what an asshole.
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Scott LaPointe retweeted
20 Apr 2019
Life is all about priorities.
@US_FDA, we know you got a lot going on.
BUT it seems obvious to prioritize saving lives. That’s why we want the ALS Trial Guidance
We ask for a timeline. You gave one. Then you blew it off.
Now we take our fight public.
#ReleaseTheGuidanceNow
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Scott LaPointe retweeted
18 Apr 2019
Hey pALS/Avengers can I ask that you rt/promote FDA PROTEST JUNE 12TH tweets or create ur own. I recognize some being cautious w/ur image but styles aside come on man we r in this together & 2 win WE need this day to a revolution TOGETHER WE WILL MAKE HISTORY ALONE WE WILL DIE
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Scott LaPointe retweeted
18 Apr 2019
FDA PROTEST JUNE 12TH tweets got hundreds of impressions but almost no engagements. Why don't people care😞pALS should want this day to b epic & others should care- this can easily b u or a loved one tomorrow. I feel so..empty, hard to keep fighting..but failure is not an option
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