The irony ... 🤔
'The result would be, in insurance terms, an “adverse-selection death spiral,” as the healthy opt out of expensive insurance, the sick opt into it, and premiums spin out of control.'
washingtonpost.com/blogs/ezr…
Looking forward to presenting at @HACA_Conf next week with @amishra123, presentation is ready to go! Aseem and I will be presenting on Wed 12th July in Lecture Theatre 4 at 11:25am on the work we’ve down with #CVD using General Practice data #HACA2023#datasaveslives#GPdata
😊Chris from Comeytrowe says: "My surgery has been brilliant. No problems for my husband and I seeing our doctor. College Way Surgery is outstanding"
👉Read our response to the national #GPdata released last week here: bit.ly/3tQRMPf#primarycare#somerset#NHS
With the GP Access Data released today from @NHSDigital , Dr Jeremy Imms explains how people in Somerset can access their GP.
❗️You can️ also read our response to today's figures from NHS Digital on GP appointments here: bit.ly/3tQRMPf#PrimaryCare#GPdata
...to NHS patients in the UK?
Well, if you haven't done so already, do read @madhumita29's piece from last month:
ft.com/content/6f9f6f1f-e2d1…
...noting the largest 👇 (2nd largest pre-pandemic) #commercial customer for English patients' data.
An American company called @IQVIA...
...and over a year after Jo Churchill indefinitely postponed the start date for #GPdata extraction:
digital.nhs.uk/binaries/cont…
...and despite "assurance groups" and a tsunami of #data/#digital 'strategies' and papers, we await sign of ANY of the three main tests having been met:
...which, nearly 10 years later, is still a near-complete #fail.
(Arguably, things started to go south within months - especially when @NHSEngland refused to write a #letter to every #patient in early 2014, to tell them it was about to start hoovering up their #GPdata...)
ALT Membership
The GP Data for Planning and Research Public and Patient Engagement and Communications Advisory Panel represents organisations/areas with knowledge and expertise in patient and public experience of healthcare, including:
Office of the National Data Guardian
Understanding Patient Data (until end October 2021)
UseMYData
Healthwatch
Association of Medical Research Charities (AMRC)
patients and members of the public - known as lay members
ALT Membership
The GP Data for Planning and Research Check and Challenge Advisory Group represents a number of organisations/areas with knowledge and expertise in Data usage and security, and the GP Profession, including:
British Medical Association (BMA)
Royal College of General Practitioners (RCGP)
Office of the National Data Guardian (NDG)
Office for National Statistics (ONS)
Information Commissioners Office (ICO)
Nuffield Department for Primary Care Health Sciences (PHC)
Academy of Medical Royal Colleges (AoMRC)
Association of Medical Research Charities (AMRC)
National Institute for Health Research (NIHR)
Poor subediting again; the #GoldacreReview was commissioned in February 2021, i.e. BEFORE last year's attempted #GPdata grab had even surfaced, in May.
(Also Ben's haircut is rather more professorial these days...)
theguardian.com/society/2022…
For those wondering about #GPDPR, this timeline 👇 is your (implicit) answer:
Because "a TRE has been developed and implemented" is a *prerequisite* to any new #GPdata collection...