@ ELIXIR, KCL, HDRUK, NHS & WHO. Working towards FAIR & secure research access to biological & health data; Advocate of openness, innovation & access for all
🙌 A case study from @PathOS_EU project has demonstrated the value and impact of @uniprot, the universal protein resource. 💪 Findings of this case study strengthen the case for sustainable funding for 🌍 global #openscience resources.
Read the news: loom.ly/Rcpa8cU
Recent policy changes have led to disruptions to the support of internationally shared #opendata infrastructures.
ELIXIR’s position paper recommends: 🌍 Europe invest in open data as a critical enabler of innovation 👉 f1000research.com/documents/…#OpenScience#Science4EU
Honoured to be appointed Director of @ELIXIREurope - the European life sciences data infrastructure. Looking forward to joining the vibrant community that has been built up during @NBlomberg leadership #ELIXIR#ESFRI
📣 The ELIXIR Board has appointed Tim Hubbard as the next ELIXIR Director. Tim brings a wealth of scientific, technical and management experience and will take up his position in March 2024.
Read the news 👉 loom.ly/_mM2e6w
We are excited to invite you to our annual #HDRUKConf24 on 5 and 6 March 2024 in Leeds. 🎉
This free two-day, hybrid event will celebrate progress and bring people together to accelerate the trustworthy use of health data for public benefit.
Register: hubs.li/Q026JmkT0
Great opportunity to join Dept of Medical and Molecular Genetics at @KingsCollegeLon - right in the centre of London, on the Guy's Campus next to the Shard and London Bridge!
🚨🧬 Job alert!!! 🧬🚨
Lecturer/Senior Lecturer in the Dept of Medical and Molecular Genetics @KCLBMBioscience
A great opportunity to work alongside many thriving research groups focussing on the genetic mechanisms of disease in the heart of London! tinyurl.com/y23cjhnx
Another fantastic session wrapping up at the Digital Maturity Forum: ‘Intelligent Clinical Decision Support: Pharmacogenetics and Genomics as a Digital Service’. What key points did you take away from this discussion?
@M_YousafAhmad, @VickyChaplin3, @timjph, @VidehaSharma
Great opportunity to oversea the development of the largest of the new NHS Sub-National Secure Data Environments, to securely support research and direct healthcare improvements - last chance to apply, shortlisting soon! #datasaveslives#snsde#nhstransform
Now recruiting: Managing Director for London SDE
As the capital develops one of the world’s largest Real World Evidence assets, the London SDE is recruiting a Managing Director to oversee its development.
Find out more: ow.ly/zaCn50PAI2E#RWE
Still plenty to do interpreting whole genomes for rare disease as I discuss. Want to contribute to @CAGInews, Genome Interpretation equivalent of the #CASP competition? Looking for Postdoc Fellow to design challenges using the @GenomicsEngland data and TRE kcl.ac.uk/jobs/069158-resear…
My take on wider impact of health data infrastructure designed to support care and research, built to support @GenomicsEngland and others over the last 10 years and now adopted by @NHSEngland@NHSTransform - privacy via data access not data distribution #NHS75#ourDNAdecade
My take on wider impact of health data infrastructure designed to support care and research, built to support @GenomicsEngland and others over the last 10 years and now adopted by @NHSEngland@NHSTransform - privacy via data access not data distribution #NHS75#ourDNAdecade
A recognised strength of the 100,000 genomes project has been the strong ethics and oversight mechanisms, including the permanently established participant panel genomicsengland.co.uk/patien… - @genomicsengland is now looking for members and chairs of two key oversight committees
Two of our vital advisory committees are getting a refresh and seeking new members and chairs 👉 ow.ly/E2NS50OUUpk
As a member, you'll help us grapple with some of the complexities of working at the interface between clinical care and advancing genomic research.
@NHSEngland & @HDR_UK Alliance are doing a joint survey to understand UK adoption of the #OMOP Common Data Model (CDM) for NHS data and inform future plans. Help us to understand how we can improve the use of health data for R&D:
surveymonkey.co.uk/r/NJY5TVT
The Genomics England Research Summit is back!🧬 In person, in London, on 19 September. Register early to secure your seat and hear the latest in cancer and rare disease genomics - bit.ly/GERS2023#GERS2023
ALT text: 'Genomics England Research Summit, 19 Sept 2023, Registration open' and image of full conference room
The successful projects are being paired with policy analysts working in @DHSCgovuk, @ONS, and @UKHSA to ensure that the results benefit both patients and NHS staff through their rapid influence on healthcare policy.
ALT “We have ‘buddied up’ every project with Government analysts working in the Department of Health and Social Care, the Office for National Statistics and the UK Health Security Agency, to ensure that the results feed immediately into policy and practice.” Dr Mary De Silva, Deputy Chief Scientific Advisor, Department for Health and Social Care (DHSC)
How come @NBCUniversal has taken down a review of one of its films by the respected film critic @KermodeMovieyoutube.com/watch?v=GdRXVsyD… - any exerts from the film surely covered by “Fair use”? Makes you wonder if the review was negative and this is censorship
And @KermodeMovie has been restored, though unclear whether @NBCUniversal initiated. Girls and boys, the defence of freedom includes calling out any egregious abuse of the Digital Millennium Copyright Act #DMCA wherever you find it - and sometimes errors like this get corrected!